Is there anyone here from the UK that takes LDN?

A board to discuss Low Dose Naltrexone (LDN) as a treatment for Multiple Sclerosis

Is there anyone here from the UK that takes LDN?

Postby crispy » Mon Feb 02, 2004 11:05 am

:cry:

Hi all,

After putting a long and detailed case to my GP, he has just phoned to say that he won't be prescribing LDN for me. unless he hears from the local neuro that it's ok.

Since learning of LDN and reading hundreds of case notes about its success, it has been all that has kept me going :(

Has anyone in the UK got some way of convincing the medical profession that LDN is not a problem? If so, please pass it on.

All the best to all,
Chris P
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Postby Arron » Mon Feb 02, 2004 1:43 pm

Crispy,

A poster in the LDN review thread here (Dave R) posted the following:

the address for a Dr who can send you LDN in the UK bob.lawrence@ntlworld.com

say you got his name from Dave Richardson


Other posters have contacted this doctor with success (he seems to be running a wait list but can at least get you started with some more information).
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Postby crispy » Mon Feb 02, 2004 3:01 pm

Hi Arron,

Thanks for the post - I have already contacted Dr Bob and as you say, he is very busy. It was him who told me that my doctor should be able to come up with the goods - I supplied him with as much information as I could find, but no joy :roll:

I have spent hours reading all of the available information, but I guess doctors don't get time for reading.

All the best,
Chris P
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Postby Arron » Mon Feb 02, 2004 3:23 pm

Well that's simply unacceptable for him to close the door on you like that. What are you considering to do now? I'm sure we can ask some of our members who are in the UK to spill their sources ;)
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Postby crispy » Mon Feb 02, 2004 4:45 pm

Thanks Arron, I am a bit down now because I had been counting on him agreeing. Going from thinking there was no hope, to learning about LDN and thinking things would change, or at least get no worse.

He is still waiting for a reply from the local neuro who has a strong interest in MS, so that's still a possibility, but I'm not counting my chickens anymore. :(

Dr Bob has added me to a waiting list, so I guess I could just be patient. Meanwhile, I shan't be getting much sleep, I've just given up tonight after an hour in bed.

All the best,
Chris P
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Postby Arron » Mon Feb 02, 2004 5:01 pm

Hi Chris,

I'm very sorry to hear about this whole situation. While I'm not going to advocate doing anything behind a doctor's back, you can possibly order Naltrexone without a prescription from various pharmacies. That is a risk you'd have to evaluate, but I only mention it to remind you that doctors should never be in a position to control your life and your health, particularly when they are victims of ignorance.

In a more law-abiding vein, here is a link to a good LDN forum with lots of knowledgeable posters who could possibly point out another UK doctor:

http://disc.server.com/Indices/148285.html

Between there and here, you should be able to find an alternate source. And if not, we have two backup plans... wait for Dr. L or take matters into your own hands.

Best,
-Arron
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Postby crispy » Mon Feb 02, 2004 6:51 pm

Thanks Arron, you make some useful points. I'll certainly give the other forum a look, I'm amazed I haven't come across it before.

All the best,
Chris P
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Postby AnnW » Fri Feb 13, 2004 6:25 am

I must be one of the lucky ones. I went to my doctor this morning armed with all the information from the LDN website and he prescribed it for me without any fuss or bother.

I was gobsmacked, it took all the wind out of my sails because I thought I was at least going to have an argument. I supposed he realised from the outset that I wasn't leaving his office without a prescription. :lol:

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Postby crispy » Fri Feb 13, 2004 8:23 am

Hi Ann, :D

Thanks for the information, it may help when I next visit my GP.

You don't feel up to naming him by any chance? Sorry, perhaps that's asking too much :oops:

Please let us know how you get on with it :)

All the best,
Chris P
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Postby Andy » Fri Feb 13, 2004 9:13 am

WELL DONE ANN! :D Lets hope more doctors here in the UK follow suit. I'm sure Dr L would be pleased to learn he has helped you get a script from your doctor.
I'm still trying to persuade mine.
I've written to John Reid MP (Health Minister) and even Tony Blair to bring LDN to their attention and ask them to look into possibly getting medical trials done on LDN here in the UK. Maybe everyone in the UK who has MS could do the same, lets BOMBARD them with information, then maybe they will sit up and take notice. PEOPLE POWER!
I am determined to get this myself too, even if I have to get it from USA.
:)

Good luck with your LDN
let us know how you get on with it.

Andy
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I've got my LDN at last!

Postby Andy » Sat Feb 21, 2004 8:59 am

:lol: Hi Everyone, I'm just letting you all know I've started my LDN at last!
I decided to go ahead and obtain it from the US. I started taking it on tuesday evening, so I will keep you informed as to how I get on. It was all done very professionally and above board, even my neuro didn't see a problem with me doing that, at least until he does some more research and decides whether he can prescribe or not. At least he is willing to do that, some doctors and neuros don't even try to learn more about it and just dismiss it full stop. I find that unacceptable really.
The LDN may help, it may not, but at least I can find out for myself and not just sit back wondering, "what if."
I'll keep you all informed
Regards
Andy :D
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Postby crispy » Sat Feb 21, 2004 9:31 am

Hi Andy, :D

Thanks for the update. I wondered if you were not about as I hadn't had a response to my last message, glad you're ok. Just for the purpose I have come down with the dreaded lurgy now, so I may not be about much for a few days.

All the best,
Chris P
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I'm new here...

Postby RobH » Sat Feb 21, 2004 12:27 pm

Hi all

I'm new here, at this forum, but have been living with this thing for 10 years or so now, my RR status has been good up until a couple of years ago and now I'm relapsing every 6-10 months or so. I'm interested in LDN and have read positive things about it, but I'm concerned my GP here in the UK will not prescribe. I want to get some pertinent info ready for my visit so she can see I've done my research etc and I'm serious about it. Now, I have done tons of reading on this, some research articles, some speculative stuff, but are there any particular articles etc that I should take along to my GP? I see some of you have been successful in recieving LDN, what info did you present to your GP?

Kindest regards

Robhowells@madasafish.com
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Hi there Rob..

Postby Paige1 » Sat Feb 21, 2004 4:48 pm

There are several places that you can go and print out information. www.remedyfind.com is one place where many have posted their true experience with it. You might try information from http://www.vrhotwires.com/Bill_Meikle/MS/LDNandMS.html
Lots of things you could probably print out there. I say...do not take no for an answer in regards to getting a prescription for this. I have been on it for about 20 months now and truly believe that it has halted any further progression of my MS. I wish you luck and if all else fails there is always the phone consult that you can do like Andy did. All is not lost. Do keep in mind that neuros are a bit more set in their ways with regards to what they feel is the proper treatment for MS. I only wish half of them had MS...they would change their tunes mighty quick huh?..Good luck to you.
Paige1
 

Postby robH » Mon Feb 23, 2004 1:12 am

Thanks for that Paige, some of the information at those links seems appropriate to take along to the GP. I won't hold my breath though, some GP's and Neuro's here in Wales can be a little reluctant to try new things. Having said that I'm also going for a plan B after seeing that another poster went to the US for LDN.

Keep well

Rob
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