Experiences of LDN

A board to discuss Low Dose Naltrexone (LDN) as a treatment for Multiple Sclerosis

Experiences of LDN

Postby LR1234 » Mon Mar 16, 2009 10:57 am

HI, I am looking through all the available treatment options from Abx to antivirals, DMD's and LDN. I hope to make a decision very soon

I want to try and find out what the experiences are of people taking LDN specifically to progression. I have RRMS and understand that LDN boosts the immune system rather than suppressing it. I want to find out if people are really progressing less on LDN and having less relapses.

THanks
LR1234
Family Elder
 
Posts: 1505
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Advertisement

Postby DIM » Mon Mar 16, 2009 12:55 pm

www.remedyfind.com and search with the terms RRMS kai low dose naltrexone.
You can find also experiences posted at: http://ldn.proboards3.com/index.cgi?
User avatar
DIM
Family Elder
 
Posts: 384
Joined: Thu Feb 28, 2008 4:00 pm
Location: GREECE

Postby Annecat » Mon Mar 16, 2009 1:11 pm

Hi there,
It is my understanding that LDN does not so much "boost" the immune system as it regulates it. (which is ,very simply put, the premise for why it works....it keeps the overzealousness of the immune system in check.
I am only learning about it myself but from what I have read the idea that it boosts the immune system is not entirely accurate.
I have some saved info on my actual PC which is sadly now in the repair shop and unwisely I did not back up my files....If I get it back I will gladly forward you what I have. Unfortunately it looks more like I will be restarting my search and recollecting info. Live and learn.
User avatar
Annecat
Newbie
 
Posts: 2
Joined: Thu Aug 23, 2007 3:00 pm

Postby LR1234 » Mon Mar 16, 2009 2:39 pm

Thanks for your responses. Anne you are right it does regulate as opposed to stimulate/boost.

I am going to give LDN a go.
LR1234
Family Elder
 
Posts: 1505
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Postby Sharon » Tue Mar 17, 2009 7:21 pm

Look at the following website - this is a new database with anecdotal stories of MS'rs use of LDN - I think there are over a 100 stories

http://www.ldn-database.carnebeach.com

Sharon
User avatar
Sharon
Family Elder
 
Posts: 1236
Joined: Sun Nov 07, 2004 4:00 pm
Location: Colorado

Postby LR1234 » Sun Mar 22, 2009 3:45 pm

Thanks Sharon.

I might start a different thread for this question but has anyone had MRI scans before and after taking LDN? There is a lot of anecdotal benefits of taking LDN but I am interested in hearing if it has made a difference to the MRI's and lesion formation.
LR1234
Family Elder
 
Posts: 1505
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Postby Sharon » Sun Mar 22, 2009 4:10 pm

Yes, I have had MRI's before and after. I was diagnosed in 2003 - have had an MRI each year. I have had no change in my MRI results before and after LDN. My MRI has never showed active lesions or inflammation.
I have been on LDN since May of 2008

Sharon
User avatar
Sharon
Family Elder
 
Posts: 1236
Joined: Sun Nov 07, 2004 4:00 pm
Location: Colorado

Postby LarryLDN » Tue Mar 24, 2009 1:16 am

http://www.larrygc.com/mystory

All my MRI results over 6 years are in one post on the above link thread

It's on page 3 of the thread, post #23 (link)
-- LarryGC/LarryLDN http://www.larrygc.com/ms
-- My LDN journal http://www.larrygc.com/mystory
User avatar
LarryLDN
Family Member
 
Posts: 52
Joined: Thu Dec 11, 2003 4:00 pm
Location: Staten Island, NY

Postby LR1234 » Tue Mar 24, 2009 2:47 am

Cool Larry, looks like LDN is helping with the lesions etc.

I read your entry about cocoa and chocolate, I also have a major reaction when I eat chocolate which is a bummer cause I love chocolate!!!!
LR1234
Family Elder
 
Posts: 1505
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Postby LarryLDN » Tue Mar 24, 2009 2:55 am

who doesn't love chocolate?

the last food allergy testing shows I'm not 'allergic' to chocolate any more

I eat it every now and then, still get telltale symptoms from it, but it doesn't turn into an attack any more. I think dark chocolate may trigger vertigo. I said some day I'd test that again, maybe it's the right time too
-- LarryGC/LarryLDN http://www.larrygc.com/ms
-- My LDN journal http://www.larrygc.com/mystory
User avatar
LarryLDN
Family Member
 
Posts: 52
Joined: Thu Dec 11, 2003 4:00 pm
Location: Staten Island, NY

Postby DIM » Thu Mar 26, 2009 2:37 am

Wife is also on LDN two years now and has same problems with chocolate, she was mild allergic to it but now she eats from time to time a piece of dark (>70%) chocolate, unfortunately last time she has had bad reaction to it although she loves chocolate (as 100% of people)! :lol:
Fortunately the mild stiffness from chocolate was temporary!
User avatar
DIM
Family Elder
 
Posts: 384
Joined: Thu Feb 28, 2008 4:00 pm
Location: GREECE

Postby Bubba » Thu Mar 26, 2009 10:06 am

I asked my neuro about it and insisted to him that I was Very interested in it. He said, "They dont make it yet"? He wouldnt even entertain anymore talk about it.. :evil:
User avatar
Bubba
Family Elder
 
Posts: 486
Joined: Fri Feb 13, 2009 4:00 pm
Location: Turkey Creek, Florida

Postby Sharon » Thu Mar 26, 2009 10:21 am

Bubba -

Doesn't that just make you mad? :evil: You know more than your neuro!!
User avatar
Sharon
Family Elder
 
Posts: 1236
Joined: Sun Nov 07, 2004 4:00 pm
Location: Colorado

Postby skydog » Thu Mar 26, 2009 5:49 pm

I tried LDN almost two years ago for three months. Wasn't sure if it was doing that much then but looking back from where I am right now I would be willing to try again. Kinda searching for a place to start over since not doing so great at the moment. Numb hands and not much use of the legs... Crashed and burned lately. Peace Mark
Plant a BIG Garden Live in the Moment
User avatar
skydog
Family Elder
 
Posts: 306
Joined: Tue Feb 24, 2009 4:00 pm
Location: North Oregon Coast

Postby LR1234 » Fri Mar 27, 2009 2:45 am

Hey Mark,
Are you on any special diet i.e the BBD and supplements? (just a thought as I know that when I came off my diet I crashed bigtime)


L x
LR1234
Family Elder
 
Posts: 1505
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Next

Return to Low Dose Naltrexone

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service