pgy wrote:
What do followup MRIs show after commencing LDN? Do lessions disappear of just no new ones? Any info would be appreciated.
Hi pgy,
I don't think there has been enough real research to give you a definite answer for that one. I don't think I've ever posted my LDN experience on here yet, but I did a 1 year + experiment with it - as carefully and scientifically as I could.
After much difficulty getting a prescription for it, I finally got my neuro to at least order an MRI, and I started my LDN prescription the day after. I took LDN for one year, keeping detailed daily charts of every symptom and more notes. At exactly one year, I got another MRI, ordered by my cooperative neuro. She said she could NOT prescribe LDN, but didn't mind if I took it. I'm the only person I know of who has had such
precise MRI evaluations of their LDN results - exactly 1 year. They're not doing extensive clinical trials or anything.
The MRI reports (same MRI equipment, same radiologist) showed no change whatsoever from one MRI to the next, and no enhancing lesions. There had also been no change from my very first MRI about a year before that one either. I had no noticeable flares/exacerbations. If I had been taking any other meds, they would have been declared a resounding success for me.
I thought LDN was GREAT for my innumerable symptoms. And...it seemed to promote healing in many non-MS ways. But...the main problem was that my slight walking difficulties continued to progress slooowly through the entire year, at the same speed as before LDN, and I ended up using a cane about halfway through it.
It's difficult to evaluate that kind of success/failure... I kept taking LDN until my PCP at the time decided to freak out about it like my other ones had and fired me as a patient with a certified letter. I'd try it again - if only for symptom relief.
Good luck to you!
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