Need info on LDN

A board to discuss Low Dose Naltrexone (LDN) as a treatment for Multiple Sclerosis
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hopecomesnow
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Post by hopecomesnow »

thanks...I was confused with the blockage and endorphines think!
thanks for clearing me!!!
HCN :D
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Vhoenecke
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Post by Vhoenecke »

I am from Canada and interested in starting LDN or finding someone to help me. Let me know if anyone is out there. Thanks

Val
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bebop
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Post by bebop »

Val,

If you go to www.LDNaware.org there is a Canadian page and Facebook group. I'm sure they can help.

bebop
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GinaMass
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LDN

Post by GinaMass »

I started LDN a couple of months ago. My energy is definately better. Legs seem to be a bit better too, but I also started 10000 IU of vit d at the same time. Stopped Avonex/
My only complaint so far is some mid night waking up. a couple of times at midnight/unable to get back to sleep at all.
I am looking for someone in Texas to test me for CCSVi. Anyone?
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Sharon
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Post by Sharon »

Ginamass

Go to the local universities -- ask around the IR departments to see if you can get someone to test you for CCSVI. Print off and hand out the information from Dr. Mark Haacke's website http://www.ms-mri.com/

I have not heard of anyone getting the testing completed in Texas --- maybe you can be the first!

Sharon
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shye
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Post by shye »

Erika and Sharon,
It would be a great help if you said the dosage of LDN tht you take--read some literature tht says 4.5 best, others 3, others 2 ! So how to decide..
Thanks
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Vhoenecke
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Post by Vhoenecke »

Thanks Bebop,

I am looking into starting LDN I have RRMS dx Jan 2009. On copaxone and wanting to try LDN. Will piggyback both for a bit then if things go well drop Copaxone. I appreciate hearing from people who have been liberated and still on LDN. Thanks for all of the stories.

Val
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