end of life issues

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end of life issues

Postby Choupinette » Sun Jun 29, 2014 12:13 pm

I see, being new to this forum and having vaguely browsed through the forum categories, that there is no mention of the end of life issues.

My husband is presently paralyzed (except for his left arm and hand), living in a nursing home, and is starting to have hallucinations and delusions brought by the MS.

So I was hoping to find some tips about how to deal with this on this thread ("Mental and Spiritual Health"), but I see that I'm in the wrong place.

For all of you who can still have some mobility, live at home and have your brain untouched, I say: Enjoy, enjoy while you can!
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Re: end of life issues

Postby NHE » Mon Jun 30, 2014 1:32 am

Welcome to ThisIsMS. We have lost several forum members to MS over the years. Here is one...

Here are thegreekfromthed's posts thegreekfromthed-u7281-posts.html
His blog: http://www.thegreekfromdetroit.com/
A post from his family: general-discussion-f1/topic21807.html
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Re: end of life issues

Postby DougL » Mon Jun 30, 2014 5:12 am

welcome to TIMS. very sorry to read about your situation.

i am not sure many here are qualified to talk about end life issues. perhaps you should seek counseling from places such as the MS Society.

best of luck to you and your husband.
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Re: end of life issues

Postby Choupinette » Mon Jun 30, 2014 9:10 am

Thank you all for your replies. The MS society does not have anything about end of life issues, except just a dry .pdf listing all the things that can go wrong (not being able to swallow, and then a tube can be used, etc.) Pretty dry, clinical stuff, and not a peep about resources specially dedicated to people in that condition. But I'll try and research some more.

Thanks for the links, I'll check them out.

Cheers to everyone!
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