I'm so sorry to hear about what's happening. Here's a bit of my experience with some this.
You asked: Do any of you have hot spells with your whole body getting wet but different than menopause is or was?
Absolutely, positively yes. I also wonder if my thermostat is completely wacky. I know hot flashes from menopause quite well.
What I experience is not a hot flash but lots of sweating after relatively minor exertion. It happened yesterday. I went for a walk in about 85 degree heat. Back at the office in a meeting I sat there dripping for about a 1/2 hour and finally jokingly said, "Looks like you're going to have put in a shower for my ADA accommodations." It is mostly my head and neck though, not my whole body. I also don't really know if it's due to the MS, but I'd like to have a shower at work.
Whole body night
sweats with menopause are known to occur. Luckily I didn't have those.
I am hypothyroid and that can also cause hot flashes and sweating. It's my understanding hypothyroidism is one of the most under diagnosed conditions in women so you may want to double check that they've ruled that out.
I don't have high or fluctuating blood pressure (yet). Mine's in the low range of normal.
You wrote: Woke up and could hardly walk, legs kept collapsing and did not want to work. Very fatigued and not sleeping well.
I have not yet had the experience of waking up and having a hard time walking or having my legs collapse. I have had the experience of my legs not wanting to work, sort of like I'm attached to a bungee cord or something. I attributed what I experienced to the MS. Since you're not diagnosed with MS yet, I'd definitely think about seeing your neurologist before October because IMO what you've described could be due to MS or it could be due to other things.
I've had days when I'm fatigued. So far I've not had any trouble sleeping. I do understand though what you mean when you said my body is not working well
. It's really hard for me to know if that's the MS or just part of getting old.
Hopefully some others will chime in here and we can all learn. It's ok to vent and please feel free to pm me too.
I hope you start feeling stronger and more energetic soon.