by Mike56 » Sun May 17, 2009 9:35 am
Hi Linda, thanks for the reply. Hey, Surrey, we lived at 64th & Scott rd in the early 80's. Live in Blind Bay now (Shuswap Lake) Anyway, I hear you re-not wanting a rush diagnosis, I too would just as soon find I have something that can be cured. It's just that because of all the symptoms, and the fact that the Doctors haven't found anything else, my wife and I have come to believe it is MS. We do know it is a "demyelinating, MS type of disease", to quote my Neurosureon. I've even been tested for Syphalys of all things! I am waiting for results from a VEP, and a Doctor/clinical professor from UBC Vancouver has a blood sample of mine, though even my GP doesn't know what he is testing for. I'll be getting another MRI in August. my GP is going to make an appointment for me at the MS clinic in Kelowna, maybe they can help me out. The main reason I want a diagnosis either way is so that I can research meds and decide if they're right for me If there is a way to slow down the progress of whatever my disease is, I want to know all about it.
Just another comment about age. I'm quite pleased I didn't have these difficulties at a young age! But it seems odd that your Neuro would say if you were younger, it would be MS. Maybe you've had it for years without knowing? Good luck to you, too!