This Is MS Multiple Sclerosis Community: Knowledge & Support

Thanks JL and MrR...yes I'm keeping on with the "drops" for him and am allowing him about 10 mins sun exposure a day without sunscreen - hopefully his levels will rise even further and by the next time of testing in June he will be in a really healthy range.

He even knows what I mean when I say "can you find your drops?" and fishes them out for me, hands them to me and then lies still with his mouth open. He thinks they are a treat and grins afterwards!

I am just so happy to at least try to help reduce his risk from this *%$*@#* disease, IYKWIM.

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Concussus Resurgo
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RR-MS dx 1998 and Coeliac dx 2003
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Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.

The Sami diet is also naturally gluten-free.... as a coeliac MS'er I noticed that a few years ago when I watched a documentary on them. They are, in essence, following a mesolithic diet - one that predated the farmers in the neolithic and the introduction of gluten (oats, wheat, barley, rye), chicken eggs, dairy etc. The BBD in effect.

Although I think the coffee was probably not around in mesolithic times

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Concussus Resurgo
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RR-MS dx 1998 and Coeliac dx 2003
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Copaxone, Cymbalta. EPO, Fish Oils, Vitamin D3 2000 IU daily, Cal/Mag/Zinc, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle.

Hi.

Just a clarification, with the risk of repeating somebody else.

The term "steroids" refers to a class of fat soluble molecules capable of crossing cell membranes. Steroid hormones activate receptors at the interior of the cell, which can do several things, usually promoting expression of certain genes, altering parameters of the metabolism and behavior of the cell.

Not all steroids act on the same receptors. Each has its very own specific role.

sou

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Shortest joke: "We may not be able to cure MS but we can manage its symptoms."

Thanks Sou!

I can always use clarification. I often get lost in the weeds explaining myself trying to make it simple I can lose clarity, please feel free to help me out if you can!

I have a similar Q: Why there is so many MS patients in Australia? A lot of sun, and perhaps plenty fish oil in their food...
The fact that MS is rare around the exuator is connected with the sunshine only, isn´t it? Could there be a difference in parasite rates (hook worms) in different regions?
How about Lapps and Escymos and possible parasites? Do they eat raw meat or the hung one?

Ru -



not just sunshine but civilization environmental toxins industry etc.

to my understanding population in oz is mainly in the southeast spreading up the east coast in a narrow band, with a dense little population pocket in the southwest also.
in northern oz you're about as far from the equator as, say, mexico. in the southeast of australia you can get to be as far from the equator as parts of the northeastern US and the southernmost parts of canada.
as to diet.. i was only there for a few months but certainly plenty of fish and chips seem to get consumed in australia.. and on my work crew we were big fans of tinned tuna.. not the best options available, but certainly widespread and cheap.

I think there's also a genetic component. Oz was settled by brits- who have higher MS rates. Mostly native populations live along the equator (think Central America, Africa) The aboriginal people in Australia don't have MS, it's the white folk who came from Europe. Same in South Africa.

That said- toxins, viruses, antibiotics, metals, stress, saturated fats, high glucose, pesticides and all the modern civ. baddies promote autoimmune disease, inflammation and endothelial dysfunction. Genetic predisposition combined with environmental triggers....bang.
AC

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Good point! Thanks.

yes there are definitely far lower ms rates among the aboriginal and torres strait islanders than non-aboriginal australians - although if you hunt for it, there are hints that it's starting to make an appearance (in spite of relative access to health care discrepancies etc).

Another Q: Why there is so many MS patients among inhabitants of Sardinia island? They are of the same race as other Italians, the same sunlight, similar fish oil input, environment, etc...
But MS rate is much higher in Sardinia...

i'd be inclined to say they were looking for it harder there, so they found it more.

however according to this study, that only accounts for part of the discrepancy:



so something changed in the environment:

thus pointing to a corresponding change in the distribution of exogenous risk factors in this highly genetically stable population.

from result #5 in regular google search on:
sardinia incidence ms

pubmed link: http://www.ncbi.nlm.nih.gov/pubmed/15990443

some have linked the changes in ms risk in sardinia to disappearance of malaria. i'd be taking a good hard look at history of ddt/similar use.

I've mentioned this somewhere before...can't find it.
Sardinia is/was a huge industrial mining location- and their drinking water has been found to be polluted with heavy metals-

http://geea.geoscienceworld.org/cgi/con ... ct/2/3/243

There's actually an Italian study( in Italian- no link) from the '50s which linked diseases to mining pollution-
[Diseases caused by dynamite explosions in Sardinian mining industry.]

Metals (especially cadmium) destroy the endothelial balance of nitric oxide (studies cited in my paper) and can be part of the tipping point for MS-
AC

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

All this is true, but miners spend most of the daylight hours in darkness.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

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