herbals

Discuss herbal therapies, vitamins and minerals, bee stings, etc. here

Postby jimmylegs » Mon Jan 11, 2010 5:57 am

i think Terry uses homeopathic stuff. one of my friends knows all about it but i haven't learned about or tried any remedies myself.
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Postby Terry » Mon Jan 11, 2010 9:50 pm

I did try it. I am not doing it now.
If you are going to try it, get a homeopathic doc to suggest remedies. Do not go to the store and read the labels and decide yourself.
A doc well versed in homeopathy will talk to you for some time before suggesting which remedy and which dosage. They look for personality, current physical symptoms, health history, overall makeup of the person.
The idea is to give a remedy which in larger dosage would cause the problems you are currently having. At the minute level it is given, they say it will remedy the problem.
Without a doubt, I had a reaction to the stuff I was on the longest. Got a rash for one. Was told this is a good thing. Illness coming from the center to the skin.
Maybe it helped me. I don't know. With MS, it is hard to say what works and what is the "natural progression".
I stopped only because I was unhappy with the doc. I never bothered to find a new one.
If you try it, let us know how it goes. I, for one, will be very interested to hear.
Let me know if you have any questions. I don't know a lot, but I can share what I do know.
And thanks for the reminder about homeopathy. I hadn't thought about it for a while.
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Postby kats » Tue Jan 12, 2010 4:31 am

Hi Jimmylegs and Terry,

Thanks for the updates.

I was interested in Homeopathy to see if anyone has had any success.
I am not the one who has MS it is my son that has had since June 2003. He has tried Betaferon which made him feel worse than what he was and also had relapses whilst on it. Has Tried Avonex with much the same side effects as the Betaferon. Has Had the majority of the Mitoxantrone treatment about 7 doses which has put a hold on the disease for now but not sure for how long this will last. Has tried Homeopathy for 1 1/2 years but he did not beleive that it was doing him any good so has just quit the treatment. This was thru a GP that also did Homeopathy. Since having the Mitoxantrone and the Homeopathy he has not had a relapse. But he has not improved either. Has remained the way he was before starting both these last treatments. At the moment he is only taking fish oil .Vitamin D caps Multi vitamin and also a variety of Colostrum capsules. Not seeing any improvements. With the heat it is a struggle for him to to keep moving. I cannot wait for the results of the Buffalo tests to see if the CCSVI treatment is going to come to Australia.
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Postby jimmylegs » Tue Jan 12, 2010 5:59 am

hi kats thanks for coming here to help your son. what exactly are his day to day symptoms? what are the amounts in the various supplements he takes? i will attach my signature to this message, it has links to common nutritional strategies for dealing with ms.
if your son can get some blood work to assess a few levels that might point up some ways to improve the supplement problem. does he have a physiotherapist? one thing i chose for exercise was swimming to help keep my spinal cord cool while getting my body moving.
we're all with you re: study results!
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Postby kats » Tue Jan 12, 2010 6:45 am

Hi Jimmylegs,

Main symptoms are not being able to walk uses a frame so he struggles daily with this. He ha a weekly massage to stretch his legs as he has spacticity. He takes baclofen for this . He has physiotherapy once a month now but only gives him exercises to do at home and that is about it. He too has started to do some swimming now that the weather is warm. His other symptoms are not able to empty out the bladder properly, fatigue has been an issue although he has been ok of late with this. I have noticed he cannot stand too much noise and always tells us to turn the volumes down. He has a slur in his speech which we have noticed but is still fine you can understand him. He hates the heat it really knocks him down. Has the footdrop finds it difficult to lift the legs especially the left now . This has alternated it was his left at first then right and now left again. He currnetly is not on any meds except the baclofen for his spasms.
He takes 6 colostem capsules daily . colostrum powder twice a day and cellworxs before bed these are all natural things that he has started to take in the past 4 months but so far have not noticed any improvements. Vit D 1 capsule (5000) . 1 Centrum Capsule Multivitamin . Some Fish oil tablets 2-4 a day. He was taking 4 different Homeopathy drops but got too much for him to take as he did not see any results and gave up as you needed to not eat berfore the drops and after the drops each time 1hr. I guess got too much for him and has stopped.
I am worried that perhaps it was the homeopathy that has held him from having a relapse. He beleives it was the Chemo Mitoxantrone that has had the effect. I hope he is right as I cannot bear to see him having another relapse. that is why I have questioned the homeopathy.
I could not find you in the introduction site where are you from if you don't mind me asking?
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Postby Terry » Tue Jan 12, 2010 7:23 am

Kats,
I did get better while on it- at least for a while. I went from being a wall walker- falling on several occasions, to having decent balance and doing better. This was not so long after my first big DX flare, however, and I kind of assume that I would have regained my balance anyway. It seems that is usually the way it is at first. You regain much.
I had a horrible period while on homeopathy where I could not think. I told the doc this and he said he was unaware that MS causes cognative issues. I was pretty sure I had a seizure- again he was unaware. During treatment I began to get other new symptoms. Whether these were "healing" or "progression" is entirely up to the interpreter. I do know that the theory is that homepathy takes you back in your illness. You go from the most recent symptoms back through your symptoms to the beginning. I wasn't revisiting my symptoms, I was getting new ones.
On my first visit to the doc, he told me he didn't know much about MS. I wasn't worried about that at the time. If he knew homeopathy, then he could work with what I told him and treat me whether he understood MS or not. Problem was he quit listening to me.
So upon rereading this I'd have to say "negative". Didn't work. But, I am NOT a hands down black and white person, so I'd never tell you not to encourage your son to try it again. There were many times I thought I should switch remedies, but the doc continued to give me the same one, just changing the dosage. I don't know if changing would have made a difference.
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Postby kats » Tue Jan 12, 2010 7:44 am

Terry I did notice with my sons walking he used to sort of cross his legs when walknig he had stopped crossing whie walking but he was taking 4 different drops If I can read the bottles at some stage I will let you know what the names were. This homeopathy doc said with chronic disease it will take at least 1 to 3 years to see results but also stated that he is not "Jesus". I only wished that he continued for a few more months or so but He made the decison to not go back. Now we have CCSVI to look forward to . Have you had any tests re this ? Sorry there is so much to read on this site and I am new cannot remember reading about you being liberated.?
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Postby jimmylegs » Tue Jan 12, 2010 8:52 am

kats sry i forgot to include the signature w/ links here it is
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Postby jimmylegs » Tue Jan 12, 2010 9:00 am

i'm from ontario canada, and had to postpone my 06 exchange to australia due to my dx attack in jan that yr. i made it to oz by july 06 and stayed til november.

when i first arrived in oz i was still paying the salon to wash my hair for me! throughout the time there (perth mostly with a visit to sydney) i was still doing a lot of learning about my ms and how to deal with it. i improved a lot.

when i finally got the papers needed for employment i worked as a bush and dune restoration technician, outside all day mostly through oct and nov, but i could handle it.

i have never needed a walker.. during dx attack i was at my worst off but nutrition really helped me. ms is different for diff people but i think it's always worthwhile to really look at what is happening in the blood and at least try to get that matching 'healthy controls' while we wait for the ccsvi thing to unfold :)

ps i am female, my username throws ppl off..
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Postby Terry » Tue Jan 12, 2010 5:59 pm

kats,
I started on Medorrhinum. Doc watched for changes. None. So he switched me to causticum. I have three different dosages of causticum, and he even made changes to the dosage of each dosage if that makes sense. It seems like there was another in between those two, but I'm sure I'd still have it if there was, so I guess not.
I did this from early spring 2006 to summer 2008 at least.
I never had to skip a meal to take mine. I used little tiny ball-like pills and dropped them in water. Stir stir stir to dissolve and then take just teaspoonfuls out of it- throw the rest away.
BTW, the homeopathic doc warned me not to do steroids anymore. I had already done one round of oral steroids before I saw him. Funny how some things "stick". Now I cringe whenever anyone says they are on steroids.
No, I haven't had CCSVI testing. No need yet, until I know what I'd do if I found a problem. Still kicking that one around and waiting for new info.
Yes there is much reading here. I used to read everything. There is no way to do that anymore. I now know what I am NOT interested in, and I skip those things. The others I get to as much as possible.
There are some amazing people here, full of knowledge and willing to share. Take your time and read read read. I'm sure it will help you and your son along. I certainly don't know what I'd have done without TIMS.
I'm addicted!
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Postby kats » Wed Jan 13, 2010 5:11 am

Thanks Jimmylegs. :) Very good info on these links that you have provided. I need to find the time to read read read as Terry has said.
My god there is so many supplements. Which my son has tried previously at some stage but because my son was still going down hill he stopped taking a lot of these supps and also on starting the homeopathy the doctor said to put them all away they were a waste of money. Doc also said he did not want anything to interfere with his treatment. Out of all the supps that my son was taking he allowed him to continue with the fish oil caps and vitamin C tablets. The rest of the bag of supplements that I showed to the homeopath he advised us that it was a waste of money and to stop taking them. So he did stop.

Terry thanks for the info -it seems I have a lot of reading to do and I think that I am also getting addicted to this site. I am currently on a bit of a holiday and have a bit of time. Once back at work I will ease of a little as I will struggle to find the time. Perhaps I will tell my son and he can join the site to read in his spare time.
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Olive Leaf Extract

Postby EyeDoc » Wed Jan 13, 2010 2:25 pm

I had a patient today swear that olive leaf extract has helped her fatigue. Does anybody take this? Thoughts?
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Postby jimmylegs » Wed Jan 13, 2010 2:36 pm

i tried it when i was in australia. a liquid, mint flavoured. it was supposed to be to help fight off colds. i took a bit of it, but did not notice any miraculous improvement in terms of fatigue. i was not really fatigued in the first place by that time, though. sry, not much help..
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Postby jimmylegs » Wed Jan 13, 2010 2:43 pm

i have not found supplements to be a waste of money - which ones exactly was your son told to throw away? did the homeopath ever take any bloodwork to determine your son's levels of nutrients known to be low in ms patients? it seems weird to me that someone would think a person needed toxins in their system, meanwhile nutrients are a waste of time. there is a boatload of science backing up nutritional approaches to ms.
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Postby Terry » Wed Jan 13, 2010 5:00 pm

JL,
After I'd been to the homeopath for quite some time I asked him if he had a nutritionist on staff. His answer was "I am a nutritionist". Yet the only blood work he did was what I asked for.
It really makes no sense.
I'd love to find a doc without tunnel vision!
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