This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sun May 19, 2013 11:07 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 576 posts ]  Go to page Previous  1 ... 4, 5, 6, 7, 8, 9, 10 ... 39  Next
Author Message
 Post subject:
PostPosted: Tue Sep 25, 2007 8:37 am 
Offline
Family Elder
User avatar

Joined: Wed Aug 11, 2004 3:00 pm
Posts: 1610
Nice find Sharon, I'll add it to the pipeline list.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Sep 25, 2007 4:38 pm 
Offline
Family Member
User avatar

Joined: Thu Mar 08, 2007 4:00 pm
Posts: 47
I would love to know what the ideal dose would be in you are taking the extract.
Sorry if i've missed it but i didn't seem to be able to see it in any of the literature.

Elly


Top
 Profile  
 
 Post subject:
PostPosted: Tue Sep 25, 2007 7:32 pm 
Offline
Family Elder
User avatar

Joined: Fri Feb 06, 2004 4:00 pm
Posts: 750
Elly

I'm not taking green tea extract (yet).

I've roughly calculated from the clinical trial info that they are using approximately 380 mg of EGCG (in two doses of 190 mg each) for the first three months of the trial and 760 mg (in two doses of 380 mg each) for the remainder of the trial. I based that on my understanding that the extract they're using is 95% EGCG per 100 mg of extract.

It's my impression that different brands of green tea extract have varying amounts of EGCG so I'd definitely check that out. I did google the brand they're using in the trial and it didn't seem to be readily available in the U.S.

Hope that helps a bit...

Sharon


Top
 Profile  
 
 Post subject: lef.org
PostPosted: Tue Sep 25, 2007 11:05 pm 
Offline
Family Elder
User avatar

Joined: Wed May 24, 2006 3:00 pm
Posts: 284
Location: Near Wash DC
I find the Life Extension "Mega Green Tea" to be of quite good.

It is 98% Polyphenols 710.5 mg

The EGCG content is 45% per capsule 326.5 mg EGCG

I take one in the a.m. that is "lightly caffeinated" and one in the p.m. that is "decaffeinated". (The EGCG content is the same)

http://www.lef.org/newshop/items/item00954.html

http://www.lef.org/newshop/items/item00953.html

Their products (the LEF Brand) are of very high quality and are tested by two major labs on a regular basis.

I also have two mugs of tea each day.(A combination of white, green and black teas)

The ENTIRE article is in my web storage!!!!!!!!

http://home.ix.netcom.com/~jdalton/egcg-neorond-ms.pdf

jackD


Top
 Profile  
 
 Post subject:
PostPosted: Wed Sep 26, 2007 4:27 am 
Offline
Family Member
User avatar

Joined: Thu Mar 08, 2007 4:00 pm
Posts: 47
Thanks guys :)

I went out and bought the only one available in the health shop near me before i saw your replies.
I'm in Australia and i don't know if we have access to these other brands.
I'll take the ones i have and then reassess.

Thanks again

Elly


Top
 Profile  
 
 Post subject:
PostPosted: Wed Sep 26, 2007 5:49 am 
Offline
Volunteer Moderator

Joined: Sat Mar 11, 2006 4:00 pm
Posts: 7607
elly i just googled ecgc olive leaf extract and it said that the combo of green tea and OLE can be synergistic/beneficial

had a look at life extension online. if you are interested in ordering their stuff they have an ordering contact in fiji.
http://www.lef.org/newshop/shippingtips.html#oz


Top
 Profile  
 
 Post subject:
PostPosted: Wed Oct 10, 2007 4:07 pm 
Offline
Family Elder
User avatar

Joined: Thu Jan 27, 2005 4:00 pm
Posts: 1148
Location: Northern Ontario, Canada
Quote:
to take antibiotics and LDN,

Hope it's ok to take antibiotics, codeine and mj :D
The mj is legal now but it still tastes the same !

_________________
Had ms for over 19 years now.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Oct 11, 2007 3:49 am 
Offline
Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2012
Location: Bedfordshire UK
Yes, Robbie, its OK!

Sarah :lol:

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Dec 04, 2007 9:52 am 
Offline
Family Elder
User avatar

Joined: Thu Jan 27, 2005 4:00 pm
Posts: 1148
Location: Northern Ontario, Canada
<shortened url>
I wonder how much different strains will make when treating symptoms. I wish we could get a sample of strains to try and see whats the best.

_________________
Had ms for over 19 years now.


Top
 Profile  
 
 Post subject:
PostPosted: Wed Dec 05, 2007 5:27 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 11, 2006 3:00 pm
Posts: 2197
Location: Dayton, Ohio USA
Robbie,

I've done some of that. One of my friends thinks he lives in Amsterdam and is always trying to get me to try "white wedding", "blueberry" and all kinds of other really high end strains. I can't afford them (they go for like $75-$80 USD for a 1/4 oz.). He always lets me sample though. He has had all the different strains like Indica and Sativa and all the variants. What I've found is that the really high end stuff, no matter whether it's Sativa or Indica are NOT good for me. They are almost too strong and it really zaps all my get up and go.

For me anyway, the best strain seems to be the old standby Mexican compressed stuff. You don't get too high and even if you take one hit too many, you don't overdo it. So to answer the specific question, for me it's not the strain, it's the potency, and somewhere in the good to slightly above average potency seems to do the best for me.


Top
 Profile  
 
PostPosted: Sun Dec 30, 2007 11:11 pm 
Offline
Volunteer Moderator
User avatar

Joined: Sat Nov 20, 2004 4:00 pm
Posts: 2704
Tea-Boned
Arthritis Today, 2008; 22(1):55.

Do you drink tea to excess? If so, you could be harming - not helping - your bones. Tea, touted as a great source of antioxidants has been shown to reduce inflammation. And the news gets better: A recent study showed that drinkers of black and green (but not herbal) tea have higher bone density than non-tea drinkers. But drink too much, and the tea party may be over.

Tea - hot or cold, decaf or regular - contains fluoride, and a new report from the Mayo Clinic in Rochester, Minn., shows that compulsively drinking tea could lead to toxic serum fluoride levels and a painful bone condition. People in the study drank far more than most people do - from 10 to 40 cups per day. But other studies show the effect on bones may start with as few as four cups per day.

Whereas normal amounts of fluoride may increase bone density, too much can cause pain in the hips and legs, stress fractures, nausea and weight loss, as well as osteosclerosis - a condition in which bones become too dense.

So drink tea - It’s good for you - but do so in moderation. And if you experience unexplained pain in your back or lower extremities, take a look at your tea consumption, and then talk to your doctor.

Source: American Journal of Clinical Nutrition; Vol. 86, No. 4 and Mayo Clinic Proceedings; Vol. 82, No. 6.

    ·~°~· ·~°~· ·~°~· ·~°~· ·~°~· ·~°~· ·~°~· ·~°~· ·~°~· ·~°~·

Here's a link to the full paper from the Mayo Clinic as well as the abstract.

Fluoride-Related Bone Disease Associated With Habitual Tea Consumption
Mayo Clin Proc. 2007;82:719-724

Acquired osteosclerosis is a rare disorder of bone formation but an important consideration in adults with sclerotic bones or elevated bone density results. In such patients, malignancy, hepatitis C, and fluorosis should all be considered when making a diagnosis. We describe 4 patients evaluated at our Metabolic Bone Disease Clinic from May 1, 1997, to July 1, 2006, whose bone disorders resulted from chronic fluoride exposure due to excessive tea intake. Three of these patients had toxic serum fluoride levels (>15 μmol/L). Although the clinical presentation of the patients varied, all 4 had an unexpectedly elevated spine bone mineral density that was proportionately higher than the bone mineral density at the hip. Other clinical features included gastrointestinal symptoms such as nausea, vomiting, and weight loss; lower extremity pain sometimes associated with stress fractures of the lower extremities; renal insufficiency; and elevated alkaline phosphatase levels. Readily available, tea often contains high levels of fluoride. Obsessive-compulsive drinking behaviors and renal insufficiency may predispose to excessive fluoride consumption and accumulation. The current cases show that fluoride-related bone disease is an important clinical consideration in patients with dense bones or gastrointestinal symptoms and a history of excessive tea consumption. Furthermore, fluoride excess should be considered in all patients with a history of excessive tea consumption, especially due to its insidious nature and nonspecific clinical presentation.

NHE


Top
 Profile  
 
PostPosted: Sat Feb 16, 2008 7:27 pm 
Offline
Family Elder
User avatar

Joined: Thu Apr 05, 2007 3:00 pm
Posts: 113
Location: North Carolina
Do I really need to wait and wait for the FTY 720 PPMS trial or can I try Cordyceps or isaria sinclairii? Has anyone any experience with it?

_________________
Primary Progressive, Onset 10 years ago at age 42, diagnosis 6 years ago, Vit D, Chinese Herbs, Exercise, yoga. So far tried antibiotics, fumaric acid and 4AP. Currently participant in the FTY720/PPMS Trial.<br />


Top
 Profile  
 
 Post subject:
PostPosted: Sun Feb 17, 2008 3:31 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2684
Location: Sydney, Australia
I have tried cordycreps, and didn't find any noticeable benefits. FTY720 from my understanding, is a derivative of the mushroom stuff, not a simple extract.


Top
 Profile  
 
PostPosted: Thu Feb 21, 2008 11:05 am 
Offline
Family Elder
User avatar

Joined: Mon Feb 14, 2005 4:00 pm
Posts: 1363
Location: London
I have found that ganoderma lucidum is an effective anti-microbial, notably Epstein-barr which is my neuro's favourite candidate for causing MS.
<shortened url>
<shortened url>
I have started taking some of these from iherb in a combination with other chinese herbs like shiitake.
I am also taking lots of curcumin and licorice which both exhibit anti-viral qualities.

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,


Top
 Profile  
 
 Post subject:
PostPosted: Thu Feb 21, 2008 11:25 am 
Offline
Family Member
User avatar

Joined: Sun Jan 06, 2008 4:00 pm
Posts: 27
Very interesting stuff! Do you think this would be an acceptable product from vitacost: http://www.vitacost.com/NSI-Reishi-Mushroom-Extract and
if so how much daily?


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 576 posts ]  Go to page Previous  1 ... 4, 5, 6, 7, 8, 9, 10 ... 39  Next

All times are UTC - 8 hours [ DST ]


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: