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PostPosted: Sat Dec 02, 2006 9:31 am 
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Joined: Wed May 03, 2006 3:00 pm
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Location: Calgary, AB, Canada
My neuro recommended this site. She said it has relaible info on alternative meds.
http://www.ms-cam.org/index.php3/
NN


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PostPosted: Sun Dec 03, 2006 11:41 am 
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Joined: Sun Nov 07, 2004 4:00 pm
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Location: Colorado
NN -

I receive my treatment at the Rocky Mtn. MS Center. Dr. Allen Bowling has completed quite a bit of research on alternative care for MS. I would say the doctors are conservative. This would not be the place to go if you want information on antibiotic treatment, (Sarah, on this site, is your resource) LDN and etc. I have found the doctors to be very caring and supportive, but, this does not infer that everyone would agree with me. Each of us has to explore and find where we are comfortable.

The information on the site is quite comprehensive and you are able to post questions to the doctors - and, you do get answers!!

Hope this helps

Sharon


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PostPosted: Sun Dec 03, 2006 3:21 pm 
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Location: Calgary, AB, Canada
Hi
Being from a medical background, I guess I would like to follow things that have at least a little research to back them up. I am not brave enough to just try anything. I thought that this might help ppl like me. I also really liked the fact that you can post questions.It's really nice to know that they write back. Thanx for your comments Sharon.
NN


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 Post subject: books
PostPosted: Sun Dec 03, 2006 9:11 pm 
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Joined: Thu Feb 09, 2006 4:00 pm
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Location: Northern Virginia
Bowling's got books out there. I've read that last one.

It's interesting and I clearly learned something from reading the stuff. I'm not going to say, "fabulous reading". I'm going to say "interesting". Why?

It's all about context.

The science moves fast (and slow - depending on your perspective) and when Bowling wrote this stuff, there was ........ CRAB's. That's about it. A few years makes a difference and more is known and more stuff is available. Not LOTS. Just more, but behind the scenes there is more science, and this demysifies some stuff. So loading up on supplements requires a greater depth of thinking than Bowling presents, more is understood today than when he wrote his stuff.

It's interesting, gets one started with a perspective. but it's just a start and at this point it's like studying history when what you really want to do is pick up the Sunday paper.

Vitamins are interesting, T-Reg cells are exciting. napay

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Understanding MS 101: Doctor Talk and People Talk<br /><br />


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PostPosted: Mon Dec 04, 2006 8:50 am 
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Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2013
Location: Bedfordshire UK
NN, The antibiotic treatment that I have been using does have plenty of research to back it up. Much of it is listed in David's website:

http://www.davidwheldon.co.uk/ms-treatment.html

David is an FRCPath, a top level, doctor in the UK, about as medical as you can get. My email is at the bottom of this post. If you send me yours I can let you have a pdf of the paper he recently had published with Charles Stratton of Vanderbilt University.

Sarah

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


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PostPosted: Mon Dec 04, 2006 10:51 am 
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Location: Calgary, AB, Canada
Hi Sarah
I have to say that I do think that the Abx tx would work for some ppl. I think that I may be oneof them. Just before I was Dx with MS, I had frequent UTI's. I was on Abx pretty much once a month. I then asked my Dr. if I could have a prescription for a large number of the Abx so that I so that I wouldn ot have to go to him evey month and he agreed. After my Dx, I took the Abx for a week just to see how I would feel. I have to say, even though the Abx is not the one that you talk about, I still felt better that week. I did not even have a UTI then and I did not even know about the Abx tx. It made sense to me at the time. I do beleive in the autoimmune theory mixed with environmental factors. I just think that MS is triggered by a somthing in ppl. Your body tries to respond to it by making lots of antibodies and things go wrong. That response could very well be to bacteria. My email is neda@shaw.ca
thanx,
NN


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PostPosted: Tue Dec 05, 2006 7:39 am 
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Joined: Thu Jun 17, 2004 3:00 pm
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Location: Bedfordshire UK
I just sent you an email. I hope you get it because my wonderful server has gone completely nuts. Let me know if you don't and I'll try again!

Sarah :?

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An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.


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