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Seeking guidance—what testing should I have done?

Hi folks,

I am about four years in to my medical mystery journey. I have been diagnosed with bilateral Meniere's Disease (2011), and I also have had periods of MS-like symptoms, with inactive lesions twice showing up on my brain MRI with contrast. I have had two spinal taps—the first was negative and the second (most recently, in November 2014) was inconclusive. Oligoclonal banding was present in my CSF and blood. My neurologist noted to ...
Read more : Seeking guidance—what testing should I have done? | Views : 22 | Replies : 1 | Forum : Undiagnosed


120 mg or 240mg Tecfidera dose

Hi All,
I'm a new MS patient. I'm older than the average newcomer at 53 and male. My initial outbreak was limited to slight facial paralysis, which passed after several days and double vision/vertigo which went away with steroids. I'm now on a regime of Tecfidera 240mg twice daily. My question is this. Do I really need to be on such a heavy dose as this? Is anybody doing a lesser dose with a good ...
Read more : 120 mg or 240mg Tecfidera dose | Views : 60 | Replies : 3 | Forum : General Discussion


FDA-approved drug ‘boosts myelin synthesis’

The Journal of Neuroscience is reporting that a University at Buffalo researcher has discovered a way to keep remyelination going, using a drug that's already on the market.

According to scientists, there is a brief period after the myelin sheath has been attacked and damaged when it is able to repair itself, but this doesn’t last and the damage deteriorates further as someone with MS ages and their condition progresses..... Read More - http://www.ms-uk.org/myelin
Read more : FDA-approved drug ‘boosts myelin synthesis’ | Views : 73 | Replies : 0 | Forum : General Discussion




MS-UK launches international live web chat service

MS-UK launches live web chat service to support anyone affected by multiple sclerosis after seeing a 23% increase in contact

MS-UK, the national charity supporting anyone affected by multiple sclerosis to make the most of today, has launched a live web chat feature on its website at www.ms-uk.org/livewebchat..... Read More - http://www.ms-uk.org/MSnews
Read more : MS-UK launches international live web chat service | Views : 34 | Replies : 0 | Forum : General Discussion


‘Miracle’ stem cell therapy reverses multiple sclerosis

A pioneering new stem cell treatment is allowing people with multiple sclerosis to walk, run and even dance again, in results branded ‘miraculous’ by doctors.

Patients who have been wheelchair-bound for 10 years have regained the use of their legs in the groundbreaking therapy, while others who were blind can now see again.

The treatment is the first to ‘reverse’ the symptoms of MS, which has no cure, and affects around 100,000 people in Britain...... ...
Read more : ‘Miracle’ stem cell therapy reverses multiple sclerosis | Views : 63 | Replies : 0 | Forum : Stem Cells


The waiting game

I'm sure everyone has went thru it. My anxiety has been ridiculous this week, and I feel like I need to vent to people who understand. My husband has been on vacation all week, and sadly he hasn't had a great vacation. I've just felt terrible with all these symptoms, and then the worry makes it worse. I keep having these little spasms in random places all over my body, along with the other symptoms ...
Read more : The waiting game | Views : 103 | Replies : 5 | Forum : Undiagnosed


Mito Q

Hi,
Any views or experience with Mito Q - Thanks.
Read more : Mito Q | Views : 122 | Replies : 0 | Forum : General Discussion


Having trouble finding "the truth" about MS statistics

Does anyone have a sense on accurate MS progression statistics?

Right, I understand that MS is unpredictable and no one can predict the course of your disease blah blah blah. But it also seems like there are totally clashing sets of information (and unscientifically, personal experiences) and it's hard to know what's real.

There are blurbs on the NMSS page that approximately 2/3rds of pwMS will remain able to walk, although possibly with a cane ...
Read more : Having trouble finding "the truth" about MS statistics | Views : 195 | Replies : 4 | Forum : General Discussion


Association between nutritional quality and MS (2015)

Kroushavi, M., Behrooz, M., Rashidkhani, B., Bahadori, N., & Hekmatdoost, A. (2015). Association between index of nutritional quality and multiple sclerosis. Journal of School of Public Health and Institute of Public Health Research, 12(3), 0-0. Chicago http://sjsph.tums.ac.ir/browse.php?a_id ... lc_lang=en

Background and Aim: The role of nutritional quality of the diet in the development and progression of multiple sclerosis (MS) is not yet well understood. The aim of the present ...
Read more : Association between nutritional quality and MS (2015) | Views : 121 | Replies : 0 | Forum : Natural Approach


 

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