This Is MS Multiple Sclerosis Community: Knowledge & Support

anyone else been offered an extension for the campath clinical trial? genzyme wants to do yearly infusions now. any info would be good, i am setting up for my next infusion in end of april. this will be number three for me the initial 5day dose, followed by 3day dose. then i guess this will be a maintenance dosing..

I went in for the monthly blood draw and urine sample deposit and got a call that I have to go back to get my urine checked again. They detected protein in it and want to retest to see if it's still there. Has any other campather had this happen? Anybody know what it might mean in regard to campath? I didn't think it's a symptom listed for ITP.

quick up-date...sorry for delay but had 2nd round campath on the 25th of August, body reacted better this time BUT just had a bad relapse about Nov 25th or 26th it started...this one was the wort yet....had 5 day's of sol-u-med, because of the holiday, had 2 days skipped one had another one skipped two days and then 2 more...coming out of it but not sure what to expect when sol-u-med wears off.. think relapse ...

Hi

I currently live in Sydney Australia and am looking to get campath - trials are closed - does anyone know where it is possible to get it off-label?

I am moving to London UK next year so anyone there would be good for me too.

Thanks!

Just another anecdote:
2/2007: First (and only) MS-exacerbation, started with Rebif
3/2008: First round of Campath (high dose; off-label)
5/2009-1/2010: Pregnancy (we had some little troubles to conceive), delivered a perfectly healthy baby
3/2010: Second round of Campath (high dose; off-label)
7/2010: Early miscarriage (surprise pregnancy); no chromosomal abnormalities found (had a D&C)
10/2010: ITP

I went to work fine, came home at night still feeling perfectly fine only to discover my legs were covered ...

http://online.wsj.com/article/SB1000142 ... 24006.html

I know there's been a discussion about this, but it seemed to focus on females. Have any of you males who've had campath either sperm banked before it, had any counselling about it or had any drop in fertility?

I was treated with my second round of Campath in early May. In June I started with a rash that first appeared on my head around my hairline. I initially thought it was the new shampoo I bought so I quit using it. The rash continued and popped up on my torso. I went to my neurologist/study doctor to let him have a look. He sent me to a dermatologist who confirmed that it was ...

Genzyme's Alemtuzumab for Treatment of Multiple Sclerosis Granted Fast Track Status by FDA


CAMBRIDGE, Mass., Jun 14, 2010 (BUSINESS WIRE) -- Genzyme Corporation /quotes/comstock/15*!genz/quotes/nls/genz (GENZ 49.50, +0.45, +0.92%) announced today that its alemtuzumab for multiple sclerosis development program has been granted Fast Track status by the U.S. Food and Drug Administration (FDA). This designation covers patients with relapsing-remitting forms of the disease.

The FDA's Fast Track program is designed to expedite the review of new ...

This forum has gotten very quiet lately. For those of you using Campath off-label or in one of the trials could you please report your condition?