Sorry guys, I've moved on to CCSVI !!
I mean, that's where I've moved my proverbial eggs to.
I think campath slowed down a wicked downward spiral but there's something out here that's keeping me down. Or I mean my wbc attack ON. whatever i don't know, but campath's not enough. i have to admit my diet is crap...but beyond that i don't know what else to do to to get better.
I accepted, bought ...

I was in the CAMMS323 trial and I received Campath (although I still do not know the dosage). I was only diagnosed with RRMS for one year and 2 months before going into the trial. I am currently at month 11, and will likely be pulled out of the study.

I tolerated the infusions very well, and even continued to improve for 6 months after the initial set of infusions, but right around the 6 ...

So far no side effects to speak of and to be honest not real sure what to expect. I went into this without any real expectations. I just trusted my doctors to lead me in a direction that I assume they are certainly more knowledgeable about. Now I have found this site and am curious as to any stories pertaining to possible changes specifically in regards to bladder issues. My most annoying MS symptom is ...

I am so glad that i found this site...........I am two months in and feeling a lil crappy...so glad to read all of these post because it has helped me to understand how this medication works..I have been told by my doctor that it does take time, so now that I am able to get a feel for how much time I feel renewed! Clinging on to hope that I will have wonderful results like ...

well ive past the 5 month mark. no relapses so far, i think... no real changes in symptoms. my chronic sleepiness since december is decreasing somewhat, but that may be normal for relapsing remitting since it has been 9 months since that symptom came up. but all my old symptoms are still the same. i still can go to the gym 5 days a week and work out for an hour. (almost have my eyes ...

Genzyme Says Follow-up Data From Alemtuzumab Phase 2 Trial Continues To Show Lasting Benefits - Update
9/11/2009 1:32 PM ET





EnCana Revives Plan To Split Into Two Companies - Update
(RTTNews) - Friday, biotechnology company Genzyme Corp. (GENZ: News ) said that four-year follow-up data from its completed Phase 2 multiple sclerosis trial continued to show durable reductions in relapse rate and sustained accumulation of disability three years after the majority of patients received their ...

Okay, so I am an RN. The Dept of Health in my county has mandated all healthcare workers to get vaccinated, or else have a doc's note.
I asked my research nurse, and she said okay. Then I brought it up again, and now she doesn't remember saying okay. She says that the study people say "No vaccinations!".
It's a good thing I waited a few days on the shot!
What have the rest of ...

Well it has been a long time sice I posted. I hit the 6 month mark recently. I had some immediate adverse events after the treatment, but then I have been doing well neurologically actually really pretty good. My balance, gait, and strength have been better. My vertigo that lasted > 1 year has subsided to very managable levels where it was at one point bringing me to the brink of the end of life ...

While I was getting my Tysabri Infusion we met a man and his wife who came in to say hello the infusion nurses. He said he would be back next week to start year 2 of Campath.

I asked if he thought it helped and he said definately, although he still could not tolerate the heat and humidity at all. He was excited to have year 2 infusions.

The infusion nurse also said they we ...