I am now nearing the three month mark post campath infusions.
I'm feeling pretty good, in spite of a recent fall that banged me up.
Friday, I return to the doc.
I am wondering how others are doing, as time goes by post infusions, and what I might expect.
Has anyone seen real improvement yet?

got the rash today. looks like little pimples all over the fronts of my shoulders. doesn't itch though, which is a good point. i also had to go to urgent care for the cough. turns out i have bronchitis.

went ok, other than i've now got a cold. yuck. so, do i have any immune system or what? nobody seemed to care that i was sick. i had the scary nurse... i woke up with mimi-a nurse that came right off the drew carey show staring down at me. and wow was she evil. i felt really feverish and yucky all day friday, and whatnot. yesterday was ok though. today seems ok. still sick ...

just wondering how people felt two months post infusion, still feel the same symptoms havent decreased, just curious maybe im expecting too much too soon. dx 07/2007 thank you..

so yesterday was good, in that there were no steroids. so no gaining another five pounds overnight. but this morning, my joints are KILLING ME. and i'm tired. but what's new there. and so far no rash, which is great. so i'm off to the last day now, woohoo!

ok.. i really don't get how to type in bold here... because it really suits my eyes better. but it just does something weird with parentheses stuff that i don't get.
today was the LONGEST day. finally they got the iv in on the first try, after i suggested using some warming blankets on my arms first(past nursing experience myself...duhhh)
i didn't have much issues today, just extremely tired. i could barely move myself to ...

well today went much faster as the pharmacy actually sent the meds up on time. i was just really sleepy the whole day. around hour three of the campath i was kinda nauseated, but just decided to go to sleep instead of getting anything for it. i didn't want to have to hang around any longer than necessary to be observed... funny thing was... my sister asked me when i get home if i was ...

did today. how did you people sleep? they were taking my vitals every fifteen minutes. holy cow. my bones hurt. i'm tired. i'm going to bed. little nauseous, but mostly i have a headache. i just want the dog to go outside and do her thing so i can go to sleep.

so.... i got the campath arm of this thing. which is good, because i hate rebiff with a passion. now i'm kinda scared. i start tomorrow. my husband is working nights this week, and my sister is going to watch my kids(she lives nextdoor). they said i'd probably be able to drive myself. but i have to ask people that have already done this: were you nauseous? do i need to take some sort of ...

So I needed to switch tx after 4 years on copaxone. Doc recommended I choose between tysabri and Campath, as he is involved in the study. It was a really hard decision, especially since I was dead set against taking an interferon. The research nurse said that if I was randomized onto the rebif I could drop out. So I went thru the entire process, then on randomization day - hooray!!!
I got my five ...