This Is MS Multiple Sclerosis Community: Knowledge & Support

This popped up on my now pretty scant CCSVI Google news alert, not much there these days just the usual big pharma media claptrap about all that went awry 5-10 years ago, pretty boring stuff with lots of generalities and few specifics and almost no science.

Anyways this piece was a refreshing traipse down some pretty innovative thinking, and practice. Not some Facebooky testimonial or the like. Here's the link:

http://wmeritum.pl/jak-wyleczyc-nieuleczalne/229323 ...

CCSVI Atlanta claims to have a tech trained in the Zamboni method Doppler. I NEED to know if anyone has experience with this place. The technician is named Lanie Fleet.
My son is having serious issues and we have been searching for someone trained to perform a Doppler study on him.
Please reply if you know anything.

This article points out that endogenous retroviruses that are normally latent reactivate under hypoxia (bad blood flow) conditions. Could this explain the relationship between CCSVI and MS?

Investigation of Endogenous Retrovirus Sequences in the Neighborhood of Genes Up-regulated in a Neuroblastoma Model after Treatment with Hypoxia-Mimetic Cobalt Chloride

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5826361/

Human endogenous retroviruses (ERVs) have been found to be associated with different diseases, e.g., multiple sclerosis (MS). Most human ERVs ...

MY DOC IS TELLING ME TO GET ON TYSABRI. DOES ANYONE HAVE ANY POSITIVE RESULTS TAKING THAT MEDICATION?

I noticed a post referring to Trigeminal Neuralgia on the ThisisMS website. Because THX1138 posted something recently I assumed the issue was current, but in fact it dates from 3 years ago. No matter. I will copy here what I wrote and also send on the info to my sister. The 2 disorders, MS and TN (Trigeminal Neuralgia), are apparently « cousins » from the same stress related family. This implies they both can respond favorably to ...

Impaired Cardiac Function in Patients with Multiple Sclerosis by Comparison with Normal Subjects

https://www.nature.com/articles/s41598-018-21599-0

Abstract

Multiple sclerosis (MS), neurologic disease affecting young population, may cause cardiovascular dysfunction, due to autonomous nervous dysfunction, physical invalidity, increased oxidative stress, and systemic inflammatory status. However, cardiovascular function is rarely evaluated in these patients. We assessed left and right ventricular (LV and RV) function by 2D, 3D, tissue Doppler, and speckle tracking echocardiography, ...

Do you remember the reports about improvement after PTA? Not sure about the relationship, but is worth to read about.

Impairment of acquired color vision in multiple sclerosis: an early diagnostic sign linked to the greatness of disease.

https://www.ncbi.nlm.nih.gov/pubmed/29392642

To assess the type and degree of both red-green and blue-yellow color vision deficiencies of Calabrian males affected by multiple sclerosis.

MATERIAL: Eighty Calabrian male patients were enrolled (age range ...

https://www.ctvnews.ca/health/ms-patients-experience-fewer-headaches-after-jugular-veins-opened-with-balloons-study-1.3772510#_gus&_gucid=&_gup=Facebook&_gsc=u9bTJaC

http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0191534

improvements seen long-term from PTA in RRMS, SPMS, may work in PPMS as well, relieves venous pressure

Mid-term sustained relief from headaches after balloon angioplasty of the internal jugular veins in patients with multiple sclerosis.

https://www.ncbi.nlm.nih.gov/pubmed/29360844

Abstract
OBJECTIVES:

Multiple sclerosis (MS) patients frequently suffer from headaches and fatigue, and many reports have linked headaches with intracranial and/or extracranial venous obstruction. We therefore designed a study involving MS patients diagnosed with obstructive disease of internal jugular veins (IJVs), with the aim of evaluating the impact of percutaneous ...

Cerebrospinal Fluid Dynamics in Patients with Multiple Sclerosis: The Role of Phase-Contrast MRI in the Differential Diagnosis of Active and Chronic Disease

https://synapse.koreamed.org/DOIx.php?i ... 18.19.1.72

Conclusion

This study indicated that CSF flow is affected in MS patients, contrary to the hypothesis that CCSVI-induced CSF flow decreases in MS patients. These findings may be explained by atrophy-dependent ventricular dilatation, which may occur at every stage of MS.