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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

11-15-15 MacLeans article on Kirsty Duncan and CCSVI

Why MS scientists are taking aim at Canada’s new science minister
Anne Kingston on how the criticism levelled at Kirsty Duncan over a controversial MS treatment is surprisingly unscientific


BY ANNE KINGSTON
November 15, 2015

Here's an excerpt from the above article in MacLeans Magazine:

What is striking about the criticism levelled at Duncan by scientists this week is how unscientific it is. Facts are cherry-picked. In referring to “good science,” Murray, a former head ...
Read more : 11-15-15 MacLeans article on Kirsty Duncan and CCSVI | Views : 599 | Replies : 0


Article on Dr Zamboni: Open surgery for CCSVI

I found this "TCTMD" article through a google news search. See the link below this quote for the full article:

Controversial Intravascular Therapy for Multiple Sclerosis Moves from Cath Lab to the OR

Key Points:
* ‘Father’ of CCSVI theory of MS advocates open surgery for some patients
* Data show increased venous flow, improved brain ventricle volume

By L.A. McKeown
Wednesday, November 25, 2015

http://www.tctmd.com/show.aspx?id=133231
Read more : Article on Dr Zamboni: Open surgery for CCSVI | Views : 649 | Replies : 2


Study: How MS Can Be Triggered By Brain Cell Death

Here's an interesting article about a new study:

"Brain Cell Death May Cause Multiple Sclerosis":

http://www.healthline.com/health-news/brain-cell-death-may-cause-multiple-sclerosis-121815

There's a lot in this article. For one thing it reminds me of a key aspect of the CCSVI theory: that demyelination precedes immune system activation in MS.

The article may also be interesting to people with progressive MS. And the following quote from the article is really telling about the pharmaceutical industry:

So when can people with MS ...
Read more : Study: How MS Can Be Triggered By Brain Cell Death | Views : 734 | Replies : 2


LWW Journals Spotlight on MS... MUST READ ABSTRACT

Hi all, Just got the abstract in my email today!!!

Thanks,

Bob


http://journals.lww.com/theneurologist/ ... sis.5.aspx
Read more : LWW Journals Spotlight on MS... MUST READ ABSTRACT | Views : 698 | Replies : 3


The Missed Immune Connection in the Brain

https://www.facebook.com/permalink.php? ... 2427429118

The Missed Immune Connection in the Brain" listed as #27 in Discovery Magazine's top 100 Stories of 2015.
http://discovermagazine.com/2016/janfeb ... connection

According to the research -- the jugular vein is the drainage system for the lymphatics found in the brain.

Sharon
Read more : The Missed Immune Connection in the Brain | Views : 750 | Replies : 1


ISNVD Conference 2016

ISNVD 2016 Conference
CCSVI ALLIANCE·TUESDAY, DECEMBER 15, 201529 Reads
Dear Colleagues,

At this time, we are pleased to announce that Registration and Hotel Booking links are now open for the 2016 ISNVD Annual Meeting in New York City. Additionally, abstract submissions are currently being accepted for competition.
The meeting will take place this coming April 29th and April 30th, 2016 in New York City at The New York Academy of Sciences located at 7 World ...
Read more : ISNVD Conference 2016 | Views : 682 | Replies : 0


Alternative Treatment/Therapies After Two Failed Treatments

Hello everyone,

I wanted to start this post because I was having trouble finding a thread that was dedicated to therapies yet to be tried for those who have already gone the route of the "Liberation" procedure.

In 2010, after being considered an MS patient but not having any lesions, I looked into Lyme disease which I was later diagnosed with. I hope you'll stick with me because I would receive two CCSVI Liberation angioplasties ...
Read more : Alternative Treatment/Therapies After Two Failed Treatments | Views : 616 | Replies : 1


How are the stents holding up?

Long time lurker, first time poster. I’ve been wondering how some of the people here who received stents some time ago have been doing? I remember reading about complications in some including Jeff Beal, Marie Rhodes, SammyJo, but can't find those posts right now and don't remember the nature of their issues. Did stents break? Did endothelium overgrow inside? Did they have thromboses? How are others’ stents holding up? My PCP says they only last ...
Read more : How are the stents holding up? | Views : 1462 | Replies : 16


Understanding Multiple Sclerosis

CCSVI is just one component of a more global, biomechanical disease process which we call MS. I have outlined a framework for understanding MS which incorporates a multitude of contributions from various sub-disciplines of medicine, including contributions related to CCSVI. Contributions from Schelling, Williams, and others have been included. Please read and consider. Do not hesitate to email me for help, that is what I am here for.

http://www.anothingnobody.com/Content/u ... ing_ms.pdf ...
Read more : Understanding Multiple Sclerosis | Views : 1985 | Replies : 32


ISNVD 2016-moving forward

ISNVD 2016 will be at the Academy of Sciences in New York City in April.
Keynote speaker will be Jonathan Kipnis---his lab discovered the brain's lymphatic vessels and immune system--which rely on veins for drainage.
Also, lots of international presentations on CCSVI clinical trials and registries.

This research is not quietly going away, it is growing in scope and influence, as more connections continue to be made between brain health, diseases of neurodegeneration, and the ...
Read more : ISNVD 2016-moving forward | Views : 664 | Replies : 0


 

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