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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Hope But Hopeless

Having watched the documentary (I live in Canada). I am filled with such hope, I mean it all makes total sense in my opinion . I am a 33 year old women who has been sick since 20 . It started with bladder problems, then 2 years later I developed left drop foot and heaviness in my thighs. A year later I was diagnosed with MS, after they initially thought it was either spinal tumor ...
Read more : Hope But Hopeless | Views : 3009 | Replies : 16

US Neurologist, Dr. Daniel Kantor's blog about CCSVI

A well written blog by a US Neurologist, Dr. Daniel Kantor about CCSVI.

Click on blogs.

Entry dated November 25, 2009 entitled Going to the other side.

Read more : US Neurologist, Dr. Daniel Kantor's blog about CCSVI | Views : 3142 | Replies : 13

neurologique !!!! EVERYONE READ THIS

please go to this link !!!!!!! Does it sound familiar ???
Read more : neurologique !!!! EVERYONE READ THIS | Views : 1785 | Replies : 11

Oh, Radeck?

Expected to hear from Radeck by now. High stents are the only thing I can think of that would keep such a man quiet this long, but I didn't think high stents were in the cards for him. Anyone know anything?
Read more : Oh, Radeck? | Views : 39442 | Replies : 194

My Neuro REFUSES to complete forms for CTEVD Study in Buffal

Hi all...

I haven't posted here much but I've been following since February or so. I have also posted on the FB page and I'm more active at Brain Talk.

So yup, uhuh. My Neuro flat out REFUSED to complete the forms to allow me to potentially participate in this study.

Okay, so I've had the forms for a week or so and yes, I didn't fax them to the MS Clinic until 8:15 Monday ...
Read more : My Neuro REFUSES to complete forms for CTEVD Study in Buffal | Views : 2416 | Replies : 13


Is anyone aware of who the contact is regarding the study in Hamilton? I am not really sure if it is being carried out there but I have heard rumours. Does anyone have the name of a contact doctor to become a patient in the CCSVI study anywhere in Canada or the U.S.? I have had MS since 1981 and have fared well until 2003 and I am now on a downward slope. Any contact ...
Read more : STUDY AT MCMASTER IN HAMILTON | Views : 2301 | Replies : 1

What tests should I ask my doctor for?

I want to check if I have CCSVI. What tests do I need to ask my doctor for?

I have had full spine/brain MRIs with the contrast injection. Would these MRIs show vein abnormalities?
Read more : What tests should I ask my doctor for? | Views : 1290 | Replies : 3

My Evidence

This might sound foolishly romantic, pathetic and naive, but to me, one conclusive evidence for the CCSVI paradigm is what the CTV show revealed: The love of Dr. Zamboni to his wife as a motor to his studies. In a quite logical way, at least to me, this really is a quite weightily fact. The conclusion is: Let's assume (for a very VERY short moment :wink:) that ...
Read more : My Evidence | Views : 1431 | Replies : 2

MS expert questions CCSVI...

11-25-2009: The Ottawa Citizen reports that MS expert downplays Italian surgeon’s treatment. With all due respect to Dr. Freedman, I think MS patients have absolutely nothing to lose by testing themselves to see if indeed they have partially or completely blocked veins. I come from a family of doctors and while I am cautious, the cost benefit analysis suggests that you have nothing to lose by testing yourself. These doctors should disclose their research grants ...
Read more : MS expert questions CCSVI... | Views : 6549 | Replies : 44

Oh what a week I'm having!

OK, most of the detail is going on my blog post later. I have a pretty cool story to tell that has surprised me in a big and good way. As you all know I've been doing "pretty well" here as of late. Finally have had enough accumulation of little things that have resulted in me having to admit that it's changed for the better.

So yesterday I got my hardest test to date and ...
Read more : Oh what a week I'm having! | Views : 3265 | Replies : 22


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