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News News of Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

NEW PAPER- venous blood flow and iron deposition in MS

Anomalous venous blood flow and iron deposition in multiple sclerosis

link to abstract

Ajay Vikram Singh1 and Paolo Zamboni2

1Department of Physics, European School of Molecular Medicine (SEMM), IFOM-IEO Campus, Centro Interdisciplinare Materiali e Interfacce Nanostrutturati (CIMAINA), University of Milan, Milan, Italy
2Vascular Diseases Center, University of Ferrara, Ferrara, Italy
Correspondence: Professor P Zamboni, Director Vascular Diseases Center, University of Ferrara, Milan, Italy. E-mail: zmp@unife.it

Received 27 ...
Read more : NEW PAPER- venous blood flow and iron deposition in MS | Views : 5004 | Replies : 24


only in MSer's?

Is CCSVI only found in people with MS? If so, could the detection of CCSVI be used to help diagnose MS?

Anyone in Canada been tested or treated for CCSVI? Just wonderring how our medical plan deals with this, particularly in B.C..

Thanks
Mike
Read more : only in MSer's? | Views : 986 | Replies : 2


CCSVI Doppler Demonstration on YouTube

Here ya go guys. It pays to be married to a geek :D
Jeff helped me convert the PAL DVD from the Bologna conference into a youtube video-

http://www.youtube.com/watch?v=yGFe-3h26Vs

Hope it helps-
cheer
Read more : CCSVI Doppler Demonstration on YouTube | Views : 2437 | Replies : 4


Genetics/Azygous

At the symposium, Dake at least acknowledged something that has concerned me a lot when he said he didn't know why he wasn't seeing much azygous trouble compared to Zamboni's 86%.

Since Zamboni has seen primarily Italians, and Dake primarily Americans, is it possible there's some genetic pool predisposing Italians to congenital azygous issues? I realize most Americans were Europeans 200 years ago, but still.

It seems that if there were such a difference then ...
Read more : Genetics/Azygous | Views : 1327 | Replies : 8


Radiologist and Zamboni's sample video

Hi all.

I have a wonderful radiologist who is very interested in CCSVI and we want to have a Doppler scan performed on me. He has been researching how it is done (hopefully, he has studied in Italy, speaks the language and knows some of the people appearing on the papers!!!) but he would also like o have the video that Zamboni mentioned at the conference.

Does anybody know if it is or will be ...
Read more : Radiologist and Zamboni's sample video | Views : 1462 | Replies : 5


The Stone Is Rolling - Word is out

**WARNING - GEEKY MOMENT**

I am somewhat of a google super user, and have lots and lots of google new alert, blog search and old usenet searches posted to me via RSS daily.

The majority of the search terms used to be work related (Oil & Gas) but since Mel was diagnosed I've had a lot of MS related searches too.

It's actually quite a trip down memory lane looking at the terms I entered ...
Read more : The Stone Is Rolling - Word is out | Views : 1219 | Replies : 6


Cenaculum Studiorum Bologna 8 September 2009

I am just back from Italy and I wish to share with you my experience in partaking in the first international congress on CCSVI and MS.
First of all I have to aknowledge that the organization of the meeting was impeccable and that the technological support was first class: I felt proud to be Italian and from Ferrara.

Prof. Zamboni opened the proceedings by outlining the key questions the meeting was set to answer and ...
Read more : Cenaculum Studiorum Bologna 8 September 2009 | Views : 3992 | Replies : 16


After Bologna- What can we do?

For those of us wondering, what can we do? There are many things available to us now.
(Maybe a sticky, NHE? I'll let you make the call...)

1. What we can do to find a doctor to treat CCSVI:

If you are an MS patient or care taker, and want to bring CCSVI information to your doctor- go to
http://www.fondazionehilarescere.org/eng/index.html

Every single bit of Dr. Zamboni's research is available ...
Read more : After Bologna- What can we do? | Views : 3550 | Replies : 33


A/B have swelling & water retintion in legs & feet p

My feet and legs are huge, did I mention HUGE!!!

I think I will have to go back on the BP pill to help with all this fluid.

Just wondered it anyone else experienced this.????

I had had a 10 lb weight gain since stented, No doubt where it is, I just look at my feet and legs. Wooow!!

cat
Read more : A/B have swelling & water retintion in legs & feet p | Views : 2561 | Replies : 27


Sept 8, 2009 Bologna CCSVI conference- finalized notes

Home...haven't slept in a couple days, and will do so tonight!
All good. Truly an incredible experience. Below are my notes, transcribed as written. My comments are in parenthesis. To be in a room full of doctors from all different specialties, looking at CCSVI and putting the pieces together was miraculous. Most folks on the board will recognize many of these names and research. The complete picture is coming together-I was honored to be the ...
Read more : Sept 8, 2009 Bologna CCSVI conference- finalized notes | Views : 14295 | Replies : 75


 

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