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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

I've been lurking

I've been lurking here for a few weeks- so much to read! Thought it was time to introduce myself.

I have advanced PPMS. Full time wheelchair user. Problems were confined to my legs until about a year ago. Now I have difficulty with my hands. I use Dragon Naturally Speaking a lot for dictation software. Took long term disability from my engineering job in May.

My question today is, does anyone know if procedures have ...
Read more : I've been lurking | Views : 3138 | Replies : 19

Canadian Documentary ????!!!!

OK... so I've seen posts on this board about a Canadian documentary coming out on the 24th of November. That's not very far away. I searched the whole board for the word "documentary" and got only a few hits. This sounds HUGE !!! Would anyone out there who knows more than I do (which is NOTHING) give us some more scuttlebutt on this ????????
Read more : Canadian Documentary ????!!!! | Views : 24773 | Replies : 152

Shot down in CO

Read more : Shot down in CO | Views : 1744 | Replies : 7


mrhodes40 wrote:I Surgeries are strong placebos, actually the strongest they've tested in allopathic medicine

This is true of course....

I'm going to Poland for the procedure but sometimes there's a nagging voice in my head which asks:

Could all the positive results of the people who have been stented be due to a placebo effect?

I hope not :(

Excuse the mistakes in my English. I'm from ...
Read more : placebo | Views : 2810 | Replies : 7

How do I put my photo on?

I feel so silly, but I really don't know how to attach my photo, can someone help? Such a little thing, but so frustrating.
Read more : How do I put my photo on? | Views : 1606 | Replies : 11

Another distinguished professor is looking at CCSVI

Hi everyone,

A coffee friend of mine is the wife of George Johnson, a well known and respected member of the scientific community. He is on Wikipedia !!!!! A link to his Wikipedia page :

I have been emailing him all the scientific and awesome stories about CCSVI and he is VERY interested. He is also a science writer and assured me that he would write a column on CCSVI probably in January. Right ...
Read more : Another distinguished professor is looking at CCSVI | Views : 2838 | Replies : 8

Self-assessed EDSS score

Need a how-to guide on this one. Don't know if my neuro ever did that for me, had all the usual studies/tests etc including the EVP which confirmed delayed response on my right side optic nerve, which matched my original presentation of sudden onset diplopia (eye turned inward). I'd like to fill out the patients log deal but neuro has never communicated much of anything other than when my next appt is, and how soon ...
Read more : Self-assessed EDSS score | Views : 2529 | Replies : 11

Good News - Alex is full time!

Starting next week she will be supporting Dr. Dake (actually us!) full time!!!
Read more : Good News - Alex is full time! | Views : 2168 | Replies : 14

MS Society eNews and CCSVI

I just got the November eNews from the National Multiple Sclerosis Society and CCSVI has top billing. Of course they add a disclaimer that results are unconfirmed, many questions remain, etc. But I'd say they're definitely paying attention.
Read more : MS Society eNews and CCSVI | Views : 14405 | Replies : 91

I'm so glad

Right now I am just so glad that the procedures are over. I've been doing this since July and I am just procedure weary. My hat is tipped to anyone who has to go through months of chemotherapy and other long term unpleasant drug therapies. I can see why some people who've done it once, just choose to not to round 2 if the Dr. recommends. And this wasn't even close to feeling like that. ...
Read more : I'm so glad | Views : 3855 | Replies : 23


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