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A board to discuss future MS therapies in early stage (Phase I or II) trials.

Question and Info

Hello,

I was diagnosed with relapsing/remitting MS in April of 2014. I began Tecfidera mid May of that year. This last summer has been rough...numbness, I fell, etc. Had an MRI and found that I had new lesions on my thoracic and cervical spine. I met with a n MS Specialist and after much discussion, labs, etc it was decided that I would start Tysabri infusions.

My first infusion is set for Tuesday Nov 15th ...
Read more : Question and Info | Views : 324 | Replies : 1




Should I take drugs or not?

Hi everyone,
I would like to ask a question that probably all of you were thinking about at some point. My question is how to make a decision about taking or not taking any drug? Let's say if you have very mild symptoms, such as lost of sensation, tingling in arms and legs, tremor of the hand, muscle weakness of one hand, dizziness, fatigue and sleeping trouble. That is mine situation. I was diagnosed one ...
Read more : Should I take drugs or not? | Views : 359 | Replies : 4


Ocrelizumab Conference in November

I have been asked to attend as a Patient Advisor. Would be happy to bring questions from all you fine folks. This drug is being targeted for both RRMS and PPMS.

Go Google and you will read all about it. Getting pretty positive reviews so far.

I already intend to ask if they will provide financial support to those whose insurance may not pay for it. So write those questions down and I will take ...
Read more : Ocrelizumab Conference in November | Views : 381 | Replies : 1


TRENDING TOPIC, BUT PRELIMINARY

Inhibiting the Autoimmune Response to Treat Multiple Sclerosis

http://www.bioe.umd.edu/news/news_story.php?id=9958

Full text:
http://www.cell.com/cell-reports/fullte ... %2931097-X
Read more : TRENDING TOPIC, BUT PRELIMINARY | Views : 616 | Replies : 0


Lucky Mice and perhaps us (in the future)

According to this article, a company from France called INSERM has successfully tested a drug with mice that seems to prevent MS disease progression.

here is the link

http://www.franceinfo.fr/vie-quotidienn ... ues-806939

(you will need to 'translate' the page as it is in French)


We can only hope this new approach really works BUT don't hold your breath!

(A friend of mine from France shared this with me.)
Read more : Lucky Mice and perhaps us (in the future) | Views : 536 | Replies : 3


Expanded Access? Previously enrolled / completed Terms study

Help! Anyone else out there with similar experience with Tovaxin? This is a long post but worth considering a new possibility on the road to full recovery.

I do not have MS, but my immediate family member was in Tovaxin study completed by Opexa Therapeutics. I cannot begin to describe how positive the results were for her. Unfortunately, as many of you might already know, once you have completed one of the trials you are ...
Read more : Expanded Access? Previously enrolled / completed Terms study | Views : 379 | Replies : 0




Tremors

Any type of meds for tremors associated with MS
Read more : Tremors | Views : 533 | Replies : 3


Biogen Opicinumab(Anti-LINGO-1) Fails Phase 2 Study of in MS

:sad: Biogen Reports Top-Line Results from Phase 2 Study of Opicinumab (Anti-LINGO-1) in Multiple Sclerosis

http://media.biogen.com/press-release/i ... anti-lingo
Read more : Biogen Opicinumab(Anti-LINGO-1) Fails Phase 2 Study of in MS | Views : 587 | Replies : 0


 

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