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Gilenya, or Fingolimod, is the first approved oral disease modifying drug for MS.

Gilenya Side Effects?

I have been taking Gilenya since March 2013 and after 9 years on Betaferon it's been brilliant. However this year it seems like the side effects have started to kick in. Around Easter 2014 I started experiencing low back pain, but only when I am lying down to sleep. Some nights are ok, but other nights it's really painful. When it is bad I find it very difficult to turn over and even if I ...
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Wider use of MS drug Gilenya approved in Europ

The European Commission has endorsed the recent Committee for Medicinal Products for Human Use (CHMP) positive opinion recommending the expanded use of Swiss drug major Novartis’ drug Gilenya (fingolimod) for adult patients with highly active relapsing-remitting multiple sclerosis (RRMS)..... Read More - http://www.ms-uk.org/gilenya
Read more : Wider use of MS drug Gilenya approved in Europ | Views : 1816 | Replies : 0


Three months on Gilenya

Well I have been on a Gilenya for 3 months.
No flares or anything. Easiest med I have been on for MS.
My neuro wants 1st blood work between 3 & 4 months.
How often is blood work typically done?
Read more : Three months on Gilenya | Views : 1057 | Replies : 4


Gilenya appears to slow brain volume loss in relapsing patie

Novartis International AG ( NVS ) announced new data showing that more patients with relapsing multiple sclerosis treated with Gilenya (fingolimod) achieved an average annual rate of brain volume loss within the range of those expected for healthy adults of a similar age vs. those patients taking placebo. People with multiple sclerosis experience shrinkage of the brain up to three to five times faster. This acceleration starts early in people with relapsing MS, even before ...
Read more : Gilenya appears to slow brain volume loss in relapsing patie | Views : 839 | Replies : 0


CHMP issues positive opinion to expand EU label for Gilenya

CHMP issues positive opinion to expand EU label for Gilenya in RRMS

Swiss drug giant Novartis said that the Committee for Medicinal Products for Human Use or CHMP has issued a positive opinion to expand the EU label for Gilenya (fingolimod) in relapsing remitting multiple sclerosis or RRMS..... Read More - http://www.ms-uk.org/gilenya
Read more : CHMP issues positive opinion to expand EU label for Gilenya | Views : 654 | Replies : 0


Doubt about cannabinoids and fingolimod

Hi,

I'm a diagnosed MS patient for around 7 years or so. I've been taking Interferon B1a, first 44mu and now 22mu throughout all this time.

Around a week ago I discovered I had another relapse and the doctor recommended me to start with Fingolimod. But the first thing I did after that was checking Wikipedia and got to this quote:

Fingolimod has also been reported to be a cannabinoid receptor antagonist


Does that mean ...
Read more : Doubt about cannabinoids and fingolimod | Views : 721 | Replies : 0


Gilenya and increased frequency of urination?

Hi -
I just started taking Gilenya a month ago, and thought I had developed a UTI. Cultures are negative, but I have been using the bathroom at least twice an hour over the past several days. Definitely worse shortly after I take my meds, and dissipates before I am ready for my next dosage. Has anyone else experienced this, and if so, how did you manage it? I'm happy with Gilenya otherwise....
Read more : Gilenya and increased frequency of urination? | Views : 611 | Replies : 2


Gilenya and rash

Hi everyone,
I started Gilenya on January 20th. About two weeks ago I noticed a rash that has now spread all over my body (small itchy bumps that are hard to see, but can be felt). Last week my neuro wanted me to start a once every other day dose and take benadryl at night. One week later and no improvements so they're taking me off it. Has anyone else had this reaction? I had ...
Read more : Gilenya and rash | Views : 557 | Replies : 0


Gilenya appears to have an effect on B-Cells in MS

Differential effects of fingolimod on B-cell populations in multiple sclerosis.... Read More - http://www.ms-uk.org/gilenya
Read more : Gilenya appears to have an effect on B-Cells in MS | Views : 568 | Replies : 0


Starting Gilenya soon

I have been on Avonex, Rebif, Tysabri, Tecfidera & Copaxone. I am currently on Copaxone. I can't wait to start Gilenya. The lumps and itching drives me crazy.
I am still waiting to have my EKG, eye exam and blood work. I am going to get three ekg's. Is this standard? My neuro wants an EKG, blood work and the eye exam before filling out the paperwork and sending in to Novartis.
This seems like ...
Read more : Starting Gilenya soon | Views : 1131 | Replies : 3


 

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