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Gilenya, or Fingolimod, is the first approved oral disease modifying drug for MS.

Gilenya, the first oral MS treatment, approved in Europe


The European Commission has granted Novartis approval for Gilenya® (fingolimod) 0.5 mg daily as a disease modifying therapy in patients with highly active relapsing-remitting multiple sclerosis (RRMS) despite treatment with beta interferon, or in patients with rapidly evolving severe RRMS.

"Today marks an important step forward in the way we manage this chronic, debilitating disease in Europe,” said Professor Hans-Peter Hartung, Professor and Chairman, Dept. of Neurology, Heinrich-Heine University, Germany. “Gilenya is the first ...
Read more : Gilenya, the first oral MS treatment, approved in Europe | Views : 1237 | Replies : 0

Humble reminder

Humble reminder that this while doing great things IS NOT A CURE!!!
I DO feel a MILLION times better but for the past 2 days have had a couple of old altered sensation symptoms "flare up" in my arms & legs, not enough to hurt, but enough to slow me down, be VERY annoying & put me back on a pulse steroid for a couple of days. Not a big deal, but a bit of ...
Read more : Humble reminder | Views : 2672 | Replies : 11

Week #2

So it's off to a good start! Still sleeping great & waking at normal hours feeling rested & ready to go. Noticing that bladder & bowl functions have returned to NORMAL. Really appreciative of that & hoping that perhaps my libido will return to normal again soon... anyone else who understands how difficult that loss can be on a marriage will also understand my desire for its return!
Read more : Week #2 | Views : 1591 | Replies : 2

Day #.... Highlights of the first few days

So day one - whew, LONG wait in MD waiting room. Took first dose at nearby cardiologist office. Staff great & kind & NO ill effects. heart rate, BP & EKG all the same at 6 hrs as when I walked in. Was still suffering from fatigue after 6 hrs of sitting but happy to move a bit and had some dinner & went to bed.
Day 2: woke and felt RESTED!!!!! Hadn't felt that ...
Read more : Day #.... Highlights of the first few days | Views : 7044 | Replies : 39

Warning! Cancer after 6 months of taking Fingolimod(Gilenya)

Warning! Cancer after 6 months of taking Fingolimod (Gilenya).
Please find attached the photographs of skin cancer caused by Fingolimod ($48,000 annually). Speed it developed left no doubt as to its malignancy. Israeli professor does not have the slightest doubt that this is a malignant skin cancer. ...
Read more : Warning! Cancer after 6 months of taking Fingolimod(Gilenya) | Views : 11031 | Replies : 24

Switching from Tysabri to Gilenya

Does anybody know if there is a standard protocol for switching from Tysabri to Gilenya? Anybody did the switch?
Read more : Switching from Tysabri to Gilenya | Views : 3560 | Replies : 4

Gilenya Effects on the CNS

A team from The Scripps Research Institute has recently discovered that Gilenya's success may involve an unexpected biological mechanism acting within the central nervous system (CNS). This difference may mean that Gilenya offers even more benefits than previously realized and would represent the first MS therapy with direct CNS activities. :)

The attached link provides more details..... ... ureCode=en

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Gilenya Usage History


I was dx'd in October and will be starting Gilenya soon after I complete my pre-med tests (i.e., blood work, EKG, neuro-optholmologice exam, etc.).

Please share your Gilenya experience (safety / efficacy), especially if you were / are in a clinical trial. I will do the same after I start.


Read more : Gilenya Usage History | Views : 5831 | Replies : 14


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