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Running out of options - could use some advice!

New to this forum - diagnosed nearlly 8 yrs ago - relasping/remitting... progressing...
Avonex, Copaxone, Beta Seron, & Rebiff slowed things done some - but the side effects were not tolerable. Still pulsing IV solumedrol but it's not as effective as it used to be...
Need to make a change but am terrified of the options - 1)Chemo or 2) Tysabri...

I am at home now (on disability) with a 2 yr old... looking for ...
Read more : Running out of options - could use some advice! | Views : 3400 | Replies : 21


A Caregivers' perspective

It was July of 2006 when I found my wife unable to move and in need of immediate medical attention. I had to carry her to the living room and call 911.

We weren't sure if it was a stroke or what had happened.

The Neurologists were called in and the initial diagnosis was Guillone Barré.

Various treatments were given, including a Plasma replacement treatment that she "bottomed out" on, and after a number of ...
Read more : A Caregivers' perspective | Views : 1439 | Replies : 12


New but trying to adjust...

Hi I am a new patient dx...As of Feburary 3rd. I start my tx about a month ago...I am doing better with it than I thought I would the thought of giving my self a shot everyday was horrible to me. I have over came that fear and now I am just trying to live my life as normal as I can, which is easier said than done. I am tired all of the time, ...
Read more : New but trying to adjust... | Views : 1133 | Replies : 2


Uncertain - Please Help?

Hi, folks.
I haven't been officially diagnosed with MS, but under the circumstances, I am starting to believe that I have it. I've been going to a neurologist for 5 months and he hasn't been able to figure out what is wrong.

I've been doing a lot of reading and from the looks of it, some people with MS can go undiagnosed, or misdiagnosed for a while. I guess I just want someone else's opinion. ...
Read more : Uncertain - Please Help? | Views : 4010 | Replies : 29


50% Anger, 50% Denial

I'm a 41 year old female with a wonderfully supportive husband and teenage son. I was diagnosed in Jan of this year after being blindsided (pun intended) by ON. Yeah, I'd heard of MS (it was the one I always got mixed up with MD) but I didn't know the first thing about it.
In February (when I could finally read a paragraph in under 2 minutes), I found this forum and I thought "no, ...
Read more : 50% Anger, 50% Denial | Views : 1479 | Replies : 5


Hello from PA

Hi everyone. 42 and newly diagnosed with MS ( dec 08 ). Just started with Avonex injections yesterday. Still feeling very ignorant about the disease....but places like this help with the self-education :)

Anyways.... just wanted to say I appreciated the info provided here.... it helps take some of the mystery out of what to expect.

Peace
Read more : Hello from PA | Views : 1179 | Replies : 2


New and not sure ...

- Update March 28 (i dig further back)
Note: Sorry for misspelling, I'm French speaking.

Hi all

I don’t want to bother anyone of you so I will make it short but clear.
First I don’t have yet been diag with MS.

1985??:
Get up and ... lost my strength on left leg
- Drop foot
- Unable to go out the car without the help of both arms lifting my leg
- Gone after ...
Read more : New and not sure ... | Views : 3223 | Replies : 2


Hi folks...I too have MS actually PPMS

I have been watching this site for roughly 6 mos. I found this site by googling Dawsons Fingers. Otherwise I would not have found this site. I'm passing the word! I find the group forums exciting, knowlegeable and very friendly.

I was originally mis- diagnosed w/ RRMS in 2000. at that time my symptoms were not severe and the Neuro went with the stats. 80% of the MS pop have RRMS and the rest = ...
Read more : Hi folks...I too have MS actually PPMS | Views : 1374 | Replies : 1


Hi I'm new and on the undiagnosed roller coaster

Hi There,
I had posted this under the "general discussion" but thought it may be more appropriate here so please excuse me if you have already read this before.
Let me explain a bit about myself. I am a 38 yo man with a loving wife and 2 wonderful children. In 2004 i had a 1 off session. It started with a really strange sensation in my head. What followed was like a seizure (but ...
Read more : Hi I'm new and on the undiagnosed roller coaster | Views : 1718 | Replies : 9


New from Britain, Diagnosed 5 years.

Have been reading this site, and will continue to do so, really informative. Dx 5 years ago and up until last Saturday worked and limped along ok. Woke up last Saturday and havent really been mobile since, agony to walk and not been to work. Really hoping I can get back to where I was at. My back hurts and I think lugging the dead leg around has taken its toll. I do have an ...
Read more : New from Britain, Diagnosed 5 years. | Views : 1367 | Replies : 2


 

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