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Patients ‘abandoned’ by care unit revamp

Campaigners have made a last-ditch plea to reinstate beds at a specialist neurological unit amid claims patients have been 'abandoned'...Read more - http://www.ms-uk.org/MSnews
Read more : Patients ‘abandoned’ by care unit revamp | Views : 233 | Replies : 0 | Forum : General Discussion


Cancer treatment shows “remarkable” results for MS patients

Doctors in Sheffield say patients with multiple sclerosis (MS) are showing "remarkable" improvements after receiving a treatment usually used for cancer...Read more - http://www.ms-uk.org/MSnews
Read more : Cancer treatment shows “remarkable” results for MS patients | Views : 228 | Replies : 1 | Forum : Stem Cells




Choosing Meds - Insurance Issues?

Hey! I was recently diagnosed with RRMS and given three different beginning drug choices. Tecfidera, Gilenya, and Copaxone. I was told that my insurance (Fidelis Medicaid) would fully cover the Copaxone, but that they don't currently cover either Gilenya or Tecfidera. However, the neuro resident I met with concerning the med information was very confident that although they would decline covering the medication a first time, so long as they re-submitted it a second time ...
Read more : Choosing Meds - Insurance Issues? | Views : 268 | Replies : 3 | Forum : Tecfidera (BG-12, dimethyl fumarate)


Multiple Sclerosis Barbie

Hi! I'm newly diagnosed with RRMS, I'm a twenty-three year old college student & mother to my gloriously sassy two year old daughter. I was recently diagnosed after I finally brought up some concerning symptoms I'd been having periodically to my family doctor. My symptoms started in 2014 when my right hand and arm went numb for about two months. The symptoms faded away as mysteriously as they'd come on, and I didn't think much ...
Read more : Multiple Sclerosis Barbie | Views : 363 | Replies : 9 | Forum : Introductions


First neuro appointment - what to ask?

Hi, I am having my first meeting with the neurologist after diagnosis.

Any questions I should ask? Feeling a bit blank.
I will be getting to see my MRI and getting it explained. I have also gotten Tecfidera and taking it for a month, so medication is ok. I have the general picture of the illness.
Are there more things I should know?

Any advice is greatly appreciated:)
Read more : First neuro appointment - what to ask? | Views : 254 | Replies : 1 | Forum : General Discussion


the suicide

I am planning my future/ right now.

I think that there is sense in my life if I can realize myself. When I can change something in the world around.
But the MS is cruel and fearful. I understand what is waiting for me/ Complete paralysis when I ll be lie on the bed.
c
I have seen such guys.
He can not move a leg or an arm. He can not carry a spoon ...
Read more : the suicide | Views : 398 | Replies : 3 | Forum : General Discussion


about high dose vitamin D treatment

I have read about Coimbra protocol for healing multiple sclerosis. The protocol includes using very high doses of vitamin D-3 and some other medicines.
In the Internet you can find FANTASTIC videos about effectiveness ofthe treatment. Seems like it is much more effective then conventional medicine.
According these videos: People using the Coimpra protocol stop neurological regression, more of that - they improve a lot. No of the conventional treatment generates such a miraculous result. ...
Read more : about high dose vitamin D treatment | Views : 1741 | Replies : 70 | Forum : General Discussion


Six taken ill during French drug trial

Six people are seriously ill after taking part in a medical trial at laboratory in France...Read more - http://www.ms-uk.org/MSnews
Read more : Six taken ill during French drug trial | Views : 344 | Replies : 2 | Forum : General Discussion


PML case reported despite negative JCV test

A case of progressive multifocal leukoencephalopathy (PML) associated with Tysabri has been reported in an MS patient who had tested negative for the JC virus (JCV) antibodies just two weeks before symptoms developed...Read more - http://www.ms-uk.org/MSnews
Read more : PML case reported despite negative JCV test | Views : 252 | Replies : 0 | Forum : Tysabri (Antegren or Natalizumab)


 

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