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Unexpected major role for venous stenting in deep reflux

This research is not about CCSVI in the CNS, but I thought it was interesting for some of the conclusions which were reached and especially because there has been discussion on the forum about the patency of stents and because of the results shown - quality of life improved significantly.
Unexpected major role for venous stenting in deep reflux disease
Presented at the 2009 Vascular Annual Meeting, Denver, Colo.
Seshadri Raju, MDa, Rikki Darcey, BSb, ...


CTV news coverage of UBC and CCSVI -Dec 15

We are doing a news story tonight about the fact that University of British Columbia and Vancouver Coastal Health plan to start a study on CCSVI..

Their study will be a collaboration between neurology, radiology, interventional vascular specialists and physics experts

It looks like the study will have two parts:
1) to see if the treatment works...
2. to develop an MRI protocol that gives an imaging biomarker of the existence of CCSVI in patients ...


UBC announces major CCSVI study!

Hi everyone,

I just watched a news broadcast where UBC MS clinic announced a $500,000, 100 patient study beginning in 2 months to test and treat CCSVI. They are not accepting patients yet pending ethics approval. Looks like a multidisciplinary study involving vascular and radiology experts.

The news clip may be available online shortly -- I will re-post.

That's my doc! (Traboulsee)

More BC CCSVI news on the Facebook page:
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Read more : UBC announces major CCSVI study! | Views : 5835 | Replies : 15 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


Excellent news from UBC

It has just been announced that UBC will be testing 100 MS patients with Doppler ultrasound. If Dr. Zamboni’s theory is correct, they are going to be treating patients right here in Vancouver, BC. The studies are going to start in as soon as two months.
Read more : Excellent news from UBC | Views : 2227 | Replies : 11 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


An email from Holly's sister

Yesterday, I received an email from Holly's sister.
Hi, Sharon-John (Holly's boyfriend) called me yesterday and said that it was posted on the MS website that Holly's mother died of the same thing-I went and found those postings and am very grateful to you for clarifying the circumstances surrounding Holly at the time of her death...
AS for our mother, she is still alive...she had a massive brain bleed do to a fall where she ...
Read more : An email from Holly's sister | Views : 2673 | Replies : 12 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


Canada MS Society-deserves its own thread IMHO

so i will recap my communications with the Canadian Ms Society ,

----------------------------------------------------------------------------

Date: 23/11/2009 4:20:00 PM

initial email regarding CCSVI as seen on CTV W5 requested Society take a more active role this very exciting new research -(a wait and see just not acceptable in my humble opinion.) and i indicated this in my email.

http://ccsviresearchtransparency.com/in ... ?topic=9.0

---------------------------------------------------------------------------

From: Bill
Date: 24/11/2009 11:17:30 AM
To: ...


Zamboni papers

Does anyone know if Zamboni's paper about angioplasty treatment from earlier in the year at the Charing Cross Symposium and the paper just released are referring to the same study group? I was under the impression that the paper from Charing Cross was a prelude to the one in the Journal of Vascular Surgery. But, going back and reading both papers again, I've noticed some inconsistencies.
Read more : Zamboni papers | Views : 1992 | Replies : 4 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


scared. could this be MS?

hi all.

i hope you don't mind me writing here, but i'm kinda freaking out and i wanted some input.

I am a 40 yr old female, and some symptoms i'm having right now are scaring me greatly. all i can think about is it might be MS.

any input or help would be greatly appreciated.

here are what i'm feeling~
~about 2 mths ago i started getting twinges in my right cheek, like electric ...
Read more : scared. could this be MS? | Views : 1562 | Replies : 3 | Forum : General Discussion


Please sign this petition for CCSVI in the USA!!

This is to get more coverage of Dr. Zamboni's findings and more studies than just the one in Buffalo. I have seen no media coverage of this in the USA other than a small local story out of New York.

They talked about the study they were going to be doing and not one mention of Dr. Zamboni.

http://www.gopetition.com/online/32858.html

Sincerely,
Andrea


How to give to Buffalo study so they can complete research

Thank you, everybody for your interest in helping this study get completed. They need to raise $5million and with the help of TIMSers, they can make a dent!

To give on line, go to
http://ubfoundation.buffalo.edu/giving/ ... parameters
Select "Search other funds" and enter BNAC
In the "Additional Instructions" you can enter "TIMS" to let them know the powerful source of this gift!

You can mail a check or money ...


 

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