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Time Period/Buffalo-REsearch

Approximately speaking, how long will it take before we see the results of the Buffalo research efforts? (The one calling for 1000 participants) :) 8O 8)
Read more : Time Period/Buffalo-REsearch | Views : 1666 | Replies : 2 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


WA state

Hi. I am struggling on this site a bit and I am wondering if there is anyone here from WA I can speak to. The information here is massive and I think I am learning a ton, but it is overwhelming.

I have had MS for 16 years and most of this information is new to me.

I would appreciate a voice. Thank you.
Read more : WA state | Views : 1291 | Replies : 0 | Forum : General Discussion


Need Help on the CCSVI wikipedia page (urgent!)

Hello,

I need your help on the CCSVI Wikipedia page.

http://en.wikipedia.org/wiki/Chronic_ce ... ufficiency

Is there anyone who can 'defend' this page against persons who want to delete information on this page. All things went okay, until 25th of November. The person WLU started to delete most of it. His remark was:

"if it is this new we shouldn't be emphasizing it so much; general changes, citation templates, removing problematic, ...


headache question for stenters

My MS symptoms have improved greatly, but I have developed intense headaches stemming from my neck and shoulder I believe. When I lie down and take the pressure off of the neck muscles, I'm fine. In the morning I'm fine. But, after about 4 hours upright the pain begins. It's everyday now. It's not improving. If it is from the stent, has anyone had headaches this bad? I tried muscle relaxers and haven't had any ...
Read more : headache question for stenters | Views : 1495 | Replies : 3 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


Does the thigh shot hurt everytime?

Been at this for awhile, but that leg shot still hurts am I doing something wrong?
Read more : Does the thigh shot hurt everytime? | Views : 4908 | Replies : 19 | Forum : Copaxone


How Many Treatments?

Does anyone know how many treatments are required for stem cell transplant?

Is it a single treatment or numerous?

Thanks


Jam
Read more : How Many Treatments? | Views : 1473 | Replies : 2 | Forum : Stem Cells


Paying for CCSVI

H, I'm new on here but was wondering if it is possible to go to Europe and be investigated and treated for the ccsvi? If so where do you go and who to see. Is it Poland?

Thankyou 8O
Read more : Paying for CCSVI | Views : 1676 | Replies : 4 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


Michelle Obama's father had MS

How can we make Michelle Obama aware of CCSVI and Multiple Sclerosis. What a wonderful spokesperson she would be if she would support this theory !! I don't know how to contact a First Lady.

Michelle Obama’s father was diagnosed with MS in his 30s and lived with the disease for much of her life. President Obama witnessed firsthand, as well, the effects that Multiple Sclerosis can have on a family.
Read more : Michelle Obama's father had MS | Views : 2466 | Replies : 12 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


Medicare/Medicare Advantage

I'm so glad to discover this community of people reaching out to help each other. Thank you for your time and efforts. I've been searching to see if any of you have experience with Medicare or Medicare Advantage paying for the tests anywhere in the US or the surgery at Stanford. I haven't seen anything in the forum so far. So if you have, please post.
Read more : Medicare/Medicare Advantage | Views : 1328 | Replies : 1 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


How do I approach a GP in the UK?

Hi Everyone,

I'm following all your stories with great interest and I'm wishing all of those who have had the Liberation procedure or who are embarking on the scans: best wishes, speedy recovery and I pray for many improvements in the coming months.

I'm in quite a lucky situation I suppose as my fathers best friend is a Consultant Vascular Surgeon and Director of Surgery.

He has really taken this on board and fully supports ...


 

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