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must speak up

I have contained myself as long as I can before exploding!!!!! Please people, step back and think about this CCSVI stuff!!!!!! The only thing I have seen so far is people suffering and spending their money to MAYBE clear some brain fog. I understand the desperation but I have to say the reasoning makes no sense to me. I have read on the thread where researchers at top universities will not even look at the ...
Read more : must speak up | Views : 7007 | Replies : 62 | Forum : General Discussion


I'm newly diagnosed with MS about 4 weeks ago. I'm still experiencing some symptoms (numbness mostly). I had my first appointment at the MS clinic last week. We talked about starting the DMT meds but my husband and I have been planning on expanding our family soon (we have a 16 month old little girl) and so the doctors said it's best to focus on family planning right now before I start the meds because ...
Read more : Pregnancy | Views : 3239 | Replies : 20 | Forum : General Discussion

Agatha's antibiotic log


I'm going to see Dr Wheldon this week with a view to starting the combined antibiotic treatment for RRMS. Like others on this forum I'm going to chronicle my treatment journey - partly to keep track of how things go for myself and partly for the benefit of those who come after - I've found other people's treatment logs have helped me a great deal in understanding the treatment and in making the decision ...
Read more : Agatha's antibiotic log | Views : 8636 | Replies : 30 | Forum : Antibiotics

Mr. Impatient

I know I'm a nervous ninny and am about as impatient as an ADHD child with 2 mountain dews in him, but was anyone else's experience with their legs during the first week or so that they were weak? My legs don't get tingly like they would before the operation with very little use, but they are just feeling weak. I know I just got the procedure Tues. late afternoon, but I was just curious ...
Read more : Mr. Impatient | Views : 3786 | Replies : 28 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

CCSVI before HiCy


Mel had hicy before having stents placed. I wonder if having stents placed and then trying to apply for hicy might not be allowed.

I wonder if Chris or Mel could have a quick word with Dr Kerr to find out if they would ever accept patients that have stents. (I wonder because of the risk of blood clotting whilst receiving revimmune)

If that is the case maybe I should consider Revimmune b4 CCSVI. ...
Read more : CCSVI before HiCy | Views : 4419 | Replies : 5 | Forum : Revimmune (cyclophosphamide or cytoxan)

Inhibiting Blood To Save The Brain?

I found this article couple of yrs ago. What do you think.. does this relate any to CCSVI?

Heartbeat throbbing in my eyesight?

Loobie mentioned this in his LoobieDoobie’s CCSVI stuff
thread on the CCSVI forum, and it raised questions in my mind. I did not want to interrupt the conversation, so I decided to make a new thread.
Loobie wrote:

“Since I can't catcher's squat, I bend at the waist to get things like pots and pans from the lower cupboards. Well that would ALWAYS, without exception, cause the following: vision would "close in" (seeing ...
Read more : Heartbeat throbbing in my eyesight? | Views : 2111 | Replies : 6 | Forum : General Discussion

HiCy Study

I posted this in the Revimmune forum, but thought I'd put it here, too:

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Looks like Hopkins might be starting a HiCy trial, but it appears it will be a small study and not multi-center.
Read more : HiCy Study | Views : 1874 | Replies : 5 | Forum : Drug Pipeline

shaving alert!

I found out this morning that if you're clumsy, uncoordenated, and stupid enough you can cut your chin while shaving with a Mach 3 SAFETY razer. What a clutz!!! 3 nice 3/4" long slices on my chin. Bleeds like crazy too. Had to put on a bandaide to stop the bleeding. You should have seen my hands a couple weeks ago when I helped my brother in law fix his dock. No wonder my wife ...
Read more : shaving alert! | Views : 1619 | Replies : 1 | Forum : Daily Life

(Shrimp Cocktail) can you say mmmmmmmmm mmmmm good

OK no bull, this is the best I have ever had. I made this last night and woke up this morning wanting more. It is so fresh with lots of onion and peppers. I think it's great for a hot summer day with a cold beer!! Add the crab and follow these direction to a T. Let me know if you do it and how it turns out for ya ...
Read more : (Shrimp Cocktail) can you say mmmmmmmmm mmmmm good | Views : 1557 | Replies : 3 | Forum : Daily Life


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