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Dr. Dake Reviewed My CT Scans

I sent Dr. Dake my CT scans last week, and received a call from him today. Although the radiology report that came with my CT scans concluded that everything was "within normal ranges", Dr. Dake says that he detects that the very tops of my jugulars, at the C1-C2 level, are almost completely occluded, "pancaked" in his jargon. He spent quite some time with me on the phone, and explained that while he could not ...
Read more : Dr. Dake Reviewed My CT Scans | Views : 4466 | Replies : 25 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Copaxone Chills?

I'm about 10 weeks in on Copaxone and have had really unpleasant site reactions which I am dealing with the best I can.

But tonight (weirdly after I posted yesterday asking how others were doing!) I had what I think was a delayed reaction to my shot. (This one did hurt a bit going in which was unusual--usually just ouchy afterwards.) About 30 minutes after my shot, I started feeling suddenly sort of achy, cold ...
Read more : Copaxone Chills? | Views : 3740 | Replies : 7 | Forum : Copaxone

Cladribine pills

Merck submitted an application for Cladribine pills in Europe. They’re also submitting new drug applications for Cladribine tablets in other countries, including the U.S. this quarter. ... _42425.pdf
Read more : Cladribine pills | Views : 2594 | Replies : 4 | Forum : Drug Pipeline

Follow-Up w/ Local Endovascular Docs?

Hi All,

I've been in contact with Dr. Dake's office over the past month or so. Spoke with him once and Alex twice and faxed off a bundle of reports/letter. Will likely be scheduling soon.

As my medical history indicates cerebral venous flow & IJV issues, I'm probably a good CCSVI intervention candidate. And, clinically fatigue/cognitive fog is one of my most disabling symptoms taking me down daily. Although my walking is getting wonkier every ...

Jumping genes

Very interesting research. I've been bothered by the lack of MS concordance between identical twins, but this could go a long way to explaining why concordance is so low. Here are the two parts of the article that particularly caught my eye:

Strikingly, it also means that not all cells are created equal—humans are true chimeras since the DNA in their brain cells is different from the DNA in the rest of their cells.

More ...
Read more : Jumping genes | Views : 1225 | Replies : 4 | Forum : General Discussion

Anybody have UTI's while on Tysabri

Well, I have one and I called the Infusion nurse to make sure that when I went to the DR to get something for it that I didn't get anything that would be adverse to the Ty. She said to do what ever the Dr said and keep them informed. But, that we would most likely have to discuss it with my Neuro and see if I should continue with the Tysabri.

I am going ...
Read more : Anybody have UTI's while on Tysabri | Views : 2030 | Replies : 3 | Forum : Tysabri (Antegren or Natalizumab)

CCSVI Website:

Dear TIMS-Community!

We are very impressed by the work you have done over the last years and the achievements of TIMS for CCSVI. It’s just brilliant thank you so much guys!

As there is nothing comparable in Europe we decided to start something similar in Switzerland/Germany.

We created a platform, a website and a forum for CCSVI:

Currently, the page and the forum are in German because that’s ...
Read more : CCSVI Website: | Views : 6975 | Replies : 15 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

did anyone have a MRV before going to Dr. Dake?

I have a bunch of questions!

Just wondering if anyone had the testing done at their home and then sent the results to Dr. Dake at Stanford? And if so what did Dr. Dake have to say? I assume he ran the tests again when you arrived at Stanford? If the tests are run by him a second time did insurance cover both?

I have a skeptical family member who thinks I should be tested ...

Lady Stewart-Stanford Update

It is 8:45 pm Palo Alto - Sharon has been in her room for about 30 minutes. I spoke with her briefly - she had three stents - 2 left and 1 right (I think that is what she said---it has been a long day, so please excuse). She is groggy -- her throat hurts. Her sister Susann is with her - thanks Susan for coming all the way from Louisiana to stay by your ...
Read more : Lady Stewart-Stanford Update | Views : 5596 | Replies : 30 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Texas Heat!

Texas Heat

Dear Diary

Just moved to Texas! Now this is a state that knows how to live!! Beautiful sunny days and warm balmy evenings. It is beautiful. I've finally found my home. I love it here.

June 14th:
Really heating up. Got to 100 today. Not a problem. Live in an air-conditioned home, drive an air-conditioned car. What a pleasure to see the sun everyday like this. I'm turning into a sun worshipper. ...
Read more : Texas Heat! | Views : 2099 | Replies : 4 | Forum : Humor


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