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Last first phase and first extension visit

Well I got my last first phase and first extension visit done today. They give you a much more thorough going over (almost a full physical) and all the usual stuff for EDSS. I'm now a 4. That really blows for me psychologically but what are you going to do? My blood bag for the extension is set for a week from today, but my research coordinator said to "just pencil it in" since they ...
Read more : Last first phase and first extension visit | Views : 8915 | Replies : 51 | Forum : Tcelna (Tovaxin)


Interesting video

This isn't for everyone. It's a half hour video about a guy with Crohn's (one of the inflammatory bowel diseases, which are also considered "autoimmune" or one of the inflammatory diseases).

I think this will be of interest to those of "us" who feel these diseases share common causes/mechanisms/cure and have an interest in helminth immunomodulation. I'm in the process of watching it but I'm told there is a segment on hookworm and Crohn's.

I ...
Read more : Interesting video | Views : 1563 | Replies : 2 | Forum : General Discussion




ladies' problem and gabapentine/baclofen

Hiya,
I started gabapentine a week ago, and baclofen 2 weeks ago. Over the weekend and last night (3 nights out of 4) I have had EXTREMELY heavy bleeding. I'm not going to be course but we're talking about (apologises) flooding, not just a heavy period.

I wondered if it could be the tablets, prob gabapentine as that started more recently. I also have PCOS which means I have had this problem before, but only ...
Read more : ladies' problem and gabapentine/baclofen | Views : 4085 | Replies : 21 | Forum : General Discussion


Mirror Neurons: Therapeutic Reflection

I recently saw a TV show which talked about "Mirror Neurons". It seemed like they would be a possible therapeutic target for motor skills. I have since tried a couple of times to find anything relating these to MS, but always came out empty handed. Finally, I found the following article, related to stroke.

I have included the whole article, as it can only be found "Cached" on google, not at the actual web site. ...
Read more : Mirror Neurons: Therapeutic Reflection | Views : 1466 | Replies : 2 | Forum : General Discussion


December the 3rd

December the 3rd - The International Day for Solidarity with the Disabled People
Read more : December the 3rd | Views : 1598 | Replies : 0 | Forum : Daily Life


Injection Technique

In using the dry powdered form of Avonex, I've developed the following injection technique which is a modification of the instructions in the doctor's prescribing information which is packaged with the medication. I've discovered that if you remove all of the air from the syringe prior to the IM injection, then there will be about 65 µL which will remain in the syringe. With Avonex, this represents a loss of about 2 µg of the ...
Read more : Injection Technique | Views : 4018 | Replies : 4 | Forum : Avonex


Here in Ottawa, Canada

Hi. My name is Danny. I am 52 years old, and have been diagnosed with MS as of July, 2007. I have posted a few notes on the Drug Pipeline (teriflunomide) which I have been taking since early November.

I guess I am somewhat fortunate. I only had one episode, Nov/Dec 2006, with some slight numbing of my left hand fingertips and the left side of my mouth, and that is about it. It hung ...
Read more : Here in Ottawa, Canada | Views : 1589 | Replies : 3 | Forum : Introductions


IIb TRIAL RESULTS SO FAR

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Read more : IIb TRIAL RESULTS SO FAR | Views : 2171 | Replies : 1 | Forum : Tcelna (Tovaxin)


Tysabri Infusion updates...

Hi everyone..., I hope that all is well. If anyone is interested, I had my 15th Tysabri infusion yesterday, Friday the 30th.

After a long nap when I got home, I was feeling wonderful.

I am happy to report that I still have no side effects or infusion site reactions. Even with the cold, rainy, dreary day out here, I was happy to have been headed off for my 15th infusion only a few miles ...
Read more : Tysabri Infusion updates... | Views : 5581 | Replies : 7 | Forum : Tysabri (Antegren or Natalizumab)


 

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