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Posted "Update on CCSVI" on my blog...

My original blog post about CCSVI has gotten hundreds of hits, so I thought it appropriate to post an update.

Feel free to critique at will... ... sease.html

My Friend, Mary

Mary had her surgery yesterday..blockage high up in the left jugular vein (I think I said right jugular in another thread -oops!). She is resting comfortably at the Sheraton tonight. Mary had some nausea to deal with, but seems to be over that now. The forum has talked about how Dr. D is learning, and changing his protocal. Well, Mary is his first patient being sent home without Coumadin! How lucky is she? So maybe ...
Read more : My Friend, Mary | Views : 2180 | Replies : 11 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

New - not yet confirmed MS-TERRIFED

Hi All,

The last month or so Ive been having some strange things happen. Ive had constant pins and needles in my arms and legs which in the last week has not subsided. Im usually fine in the morning and by th time I get home from work its a constant tingling. It seems most severe in my feet and hands. Ive also been having charlie horse type feelings in my legs and arms, but ...
Read more : New - not yet confirmed MS-TERRIFED | Views : 1629 | Replies : 6 | Forum : Introductions

how long did it take for some of you to get in JH??

Hello everybody, my name is Juliana I am new to this board...

my husband has MS and we are trying to get him into JH for Revimmune treatment ASAP due to his conditions... I was given an appointment for October 2010 :(
I was wondering how long did it take for some of you to get in.
Also if they gave you a far away date at ...

MS or Migraine?

I've had migraines for 24 years but nothing like what started yesterday morning:

Sharp, shooting pains on right side of head, from about 1" behind my ear, up and around to top of head. Very incessant. Since there is a low pressure system in the area (a migraine trigger for me) I assumed it was a migraine but Excedrin Migraine didn't touch it (usually takes care of my migraines).

Hurts enough to have kept me ...
Read more : MS or Migraine? | Views : 1425 | Replies : 3 | Forum : General Discussion

Did Anyone Have Toxoplasmosis?

I'm still in the diagnosis phase and testing phase with MRI's ... Cervical MRI found myelin sheath damage and lesions.

Everything my doctor asked me to possibly find an answer on why that might be happening was unexplained. I have not had migraines, head injury, severe infections, etc. etc. that I can think of.

Something I thought of is that I did have TOXOPLASMOSIS when I was in high school. I'm wondering if the disease ...
Read more : Did Anyone Have Toxoplasmosis? | Views : 2491 | Replies : 4 | Forum : General Discussion

Fear, Greed and X-Rays

Fear, Greed and X-Rays

Fear and greed are potent motivators. When both of these forces push in the same direction, virtually no human being can resist. And doctors -- despite many expectations to the contrary -- are human beings.

This is one reason why medical costs in the U.S. have spiraled out of control, yet we are among the least healthy people in the developed world.

On the fear side, consider this email I got ...
Read more : Fear, Greed and X-Rays | Views : 1138 | Replies : 0 | Forum : General Discussion

My Copaxone has arrived

Hi, My copaxone has arrived today, It will be the first DMD I have taken.
It really brings home the fact that you have MS when the package arrives with all its injections and booklets etc:(
The problem is, I don't know If I have any faith that it will do anything plus I hate injections.
Read more : My Copaxone has arrived | Views : 2015 | Replies : 6 | Forum : Copaxone

Stem cell product from New Zealand? Anyone heard of this?

Hi everyone,

An article in a local women's magazine led me to this link. Does anyone know anything about this treatment? ... rosis.html
Read more : Stem cell product from New Zealand? Anyone heard of this? | Views : 2908 | Replies : 8 | Forum : Stem Cells

Heard Back from the NIH

Just a quick recap: I've been going down to Bethesda, Maryland to be seen by the doctors and researchers at the NIH, to take part in a "Natural History of MS" study that they're doing. My case is so atypical that they've taken a special interest in it, and have done some additional testing (MRI SPECT, diffusion tensor scans, etc.).

Last Thursday I made my third trip down to the facility, and I had sensory ...
Read more : Heard Back from the NIH | Views : 5554 | Replies : 37 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


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