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A CCSVI Patient Log: All About Steve

This is Steve’s treatment and recovery log. The Stanford imaging and surgery are scheduled for 9/28 and 9/29. I thought it appropriate to start with his MS symptoms and history. Please forgive me if some of the future entries are very dry and clinical.

About the man: Steve is 56, ½ Sicilian, ¼ Italian, 1/8 Irish, and 1/8 German. He was born and raised in Schenectady, NY, and he’s lived in the Dallas area for ...

Insurance denied for MRV

Any hints on what dx local vascular doc can use? He went with the swollen ankle angle.

Medicare is primary and XYZ is secondary. The secondary denied. I am keeping the name of XYZ confidential. :evil:

I can't physically go to Stanford.
Read more : Insurance denied for MRV | Views : 1345 | Replies : 2 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

CCSVI and vaccination

Another connection between vaccination and neurological disorders before CCSVI is recognised and widely accepted: ... -vaccines/
Read more : CCSVI and vaccination | Views : 1373 | Replies : 2 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Looking for answers to questions re the surgery

Hi All,
I’m Hoodyup’s aka Andrew’s wife. He’s posted another thread. I read the responses and comments. Frankly, I am not here to whine and don’t need any online support. Yes, I’m pretty abrasive these days because of this stupid MS and well…I’m just down right pissed at it AND the medical profession and I’m not even PMSing or on steroids. As of today, I’m now moderately pissed at Andrew for going behind my back ...

BIG dose o'prednisone ?

So my neuro prescribed 500 mg/day (10 pills of the 25mg tabs twice a day) for the next 4 days of prednisone, followed by smaller and smaller doses over the next week and a bit.

Does that seem like a lot? He also prescribed something for my stomach and some ativan to help sleep.

Anyone else experienced a dose like this? did it kick your relapse in the ass? I've had facial numbness for over ...
Read more : BIG dose o'prednisone ? | Views : 2415 | Replies : 12 | Forum : General Discussion

Am 25 and really want to get married

My boy friend and I had decided to get married when I got my diagnosis ( 3 weeks back). I do want to get married, but if there are married people out there with MS, could you tell me if it is a good idea for the spouse?

I do not want him to end up living a care giver's life and I do want him to have a fun life. We had made plans ...
Read more : Am 25 and really want to get married | Views : 5887 | Replies : 9 | Forum : Under 25 with MS

Coach -To Stanford and Back

Thought I hadd posted about my Stanford experience, but I guess it got lost in cyberspace. Left for Stanford last Sunday and arrived in San Jose in a small drizzle of rain. My husband and I did the scouting of Stanford to find out locations of the different tests. Had the tests on Tuesday. Which went fine. I think I even momentarily dozed off during the MRI. Someone had mentioned in a previous post that ...
Read more : Coach -To Stanford and Back | Views : 4027 | Replies : 22 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Getting Doppler in Finland


Surprise to me too, but I was in private sector clinic today visiting vascular surgeon.
He was very sceptic first but I show him CCSVI article from Finnish MS-magazine and then we was able to speak the same language(maybe?) :D

I made a cd-disc to him, full of CCSVI documents and pictures,
all that I can found.
He said that this thing is very interesting ...
Read more : Getting Doppler in Finland | Views : 2086 | Replies : 11 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


On Wikipedia I found one sentence regarding vasolidation that I find interesting:
"Tetrahydrocannabinol (THC) - the major active chemical in marijuana. Its mild vasodilating effects redden the eyes of cannabis users."

I remember articles where I read about cases where people could walk right after smoking marijuana. Maybe because of that effect.

Another fact is that vasolidation leads to a decrease in blood pressure and I read that low BP was found helpful in MS ...
Read more : Vasolidation | Views : 1270 | Replies : 2 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


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