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LDN Info Help!!!!!!!!!!

I need help with LDN information for my SS Disability appeal. This is my second appeal before the Federal appeal's council. I was found to be disabled, but they did not include the previous four years, the actual date of onset, so I am appealing the denial of those past four years or the alleged onset date Mentioned numerous times in the decision is the fact that I don't take any of the MS approved ...
Read more : LDN Info Help!!!!!!!!!! | Views : 2983 | Replies : 5 | Forum : Low Dose Naltrexone

3rd anniversary of ms

i was just looking through some files and found these interesting pre-dx messages to my neuro. it's funny and sad. wish i could go back and talk to that girl, she's in full on terrified denial that this could be anything other than the usual b12 problem. she still hasn't realized that there is not going to be any flight to australia happening on feb 2. what a difference 3 years makes!

2006 01 27 ...
Read more : 3rd anniversary of ms | Views : 1607 | Replies : 11 | Forum : General Discussion

Leg Swelling

In the last month we noticed that my husband's right leg is swelling from the foot to the top of the leg. It is one to two inches bigger than the left leg. PCP doctor sent him for doplar which showed no blood clot and gave him lasik (sp?) which he could not take (can't get to the bathroom in time). MS nurse at infusion center said something about "nerve endings are not working properly; ...
Read more : Leg Swelling | Views : 7836 | Replies : 11 | Forum : General Discussion

Day 4 of my campath infusion!

I'm on day 4 and it's going MUCH better than expected. I was diagnosed in Sept 08 and started campath off-label Jan 5, 2009. Only minor side effect was hives, which goes away with benadryl, and other antihistimines. no major aches, pains other than some tiredness and aches day 1. Each day takes about 5 hours in the infusion area. I am very hopeful for the future and thrilled i was able to get infusions. ...
Read more : Day 4 of my campath infusion! | Views : 1844 | Replies : 4 | Forum : Campath (Lemtrada, Alemtuzumab)

tovaxin phase III

I am an italian girl, i was diagnosed in 1999.
I would like to know when Tovaxin will end Phase II trial.
Does someone know if this drug will start phase III?
And when? Do you think there will be some centre in Europe starting phase III?
thank you for your reply!!
Read more : tovaxin phase III | Views : 5718 | Replies : 24 | Forum : Tcelna (Tovaxin)

Counterfit drugs flood into Britain

Health fears grow as fake drugs flood into Britain

Counterfeiting gangs based in China are producing sophisticated copies of the world's bestselling pharmaceuticals. In 2008 an estimated 8m of these potentially deadly pills found their way to NHS patients. The health of millions of people is at risk.

They were made in China, labelled in French and then shipped to Singapore. They ended up in Liverpool and from there were sold straight into the heart ...
Read more : Counterfit drugs flood into Britain | Views : 1092 | Replies : 0 | Forum : General Discussion

Combined Antibiotic Protocol for MS - Begin Here

There is a lot of info here, there and everywhere. I'm putting this post up as a very basic place to start. I realize that my TIMS thread is now so long, it's likely cumbersome for someone to follow if they just want to find a starting point. I simply want to cover what I think are the obvious things someone with no prior knowledge of the ABX protocol would want to know.

Has this ...
Read more : Combined Antibiotic Protocol for MS - Begin Here | Views : 7188 | Replies : 9 | Forum : Antibiotics

Fetal stem cell/Medra?

Has anyone heard anything about Medra? Apparently they are doing fetal stem cell therapy somewhere in the Caribbean. Yea, I know, sounds hokey.
Read more : Fetal stem cell/Medra? | Views : 1906 | Replies : 0 | Forum : Stem Cells

Current Clinical Studies (US)

this is a list of current ms studies that are seeking volunteers.

Found 153 studies with search of: Open Studies | "Multiple Sclerosis" ... lerosis%22
Read more : Current Clinical Studies (US) | Views : 1645 | Replies : 3 | Forum : General Discussion

Cold worsening symptoms?

I know that heat makes my symptoms get worse and that hottubs are lethal but in the UK we are having a big cold snap and temperatures have been below freezing for days. I have noticed that the colder I am, especially if I am outside, the worse my symptoms get - my leg becomes very difficult to control, the dragging and dropping is severe and my walking becomes very spastic.

Is that normal?
Read more : Cold worsening symptoms? | Views : 1628 | Replies : 5 | Forum : General Discussion


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