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I have been thinking about this for a long time. TIMS is a loosely knit group of people with the commonality of MS. I thought it would be nice if we all got together. My thought was to plan a get-together in Naples, FL, perhaps for a weekend. I think the best time to do this would be next March, 2009. It would allow those of you located in the cold weather to get a ...
Read more : Party! | Views : 1665 | Replies : 5 | Forum : General Discussion

what treatments or strategies do you think complement abx?

From another thread:

notasperfectasyou wrote:Here's a big thought........


There's all the other stuff folks are taking. Like, Axonex. Avonex is supposed to better solidify the blood brain barrier. Well, what if it's making it harder for the ABX to get in?

Might some of the other things we take because they have an anti-inflamatory effect ...... might some of this stuff actually make it harder for the CPN to get exposed to the ...
Read more : what treatments or strategies do you think complement abx? | Views : 1718 | Replies : 0 | Forum : Antibiotics

rr vs spms and ppms

I am thinking of the saying no question is to stupid to ask :) here anyway!

-I know the difference on how they happen rr coming and going spms being more constant but milder than ppms but what is the actually difference?
-How do they change from one to another?
-Is it still the immune system doing the damage in all these forms of ms or does ...
Read more : rr vs spms and ppms | Views : 10737 | Replies : 87 | Forum : General Discussion

Optic Neuritis

I am fairly convinced that I have optic neuritis again but in my left eye this time. I have had pain on movement and a noticible change to my vision (blurriness) for a couple of weeks and have now reached the point where the pain is constant and the accompanying headache is no better.

Unfortunately as I still have not had a dx or have even met my current neuro I don't know what to ...
Read more : Optic Neuritis | Views : 3347 | Replies : 22 | Forum : General Discussion

Genomic Scans...a conundrum

A thought provoking essay in the LA Times written by a young woman who had a genomic test done by Navigenics, utilizing the technology of the genotyping chip. For those of us with children who might wonder if our kids have the genetic predisposition for MS....would this test be blessing or curse?

It's not cheap...$2500 for a spit analysis. I'm not rushing out any time soon for this test for my child (or myself- my ...
Read more : Genomic Scans...a conundrum | Views : 1349 | Replies : 2 | Forum : General Discussion

Optical Coherence Tomography- interesting

Hi All,
I generally post things here after they have been discussed at great length but I thought this might interest some who have not heard of it. I initially read about this in Southwestern Medicine Magazine which is a publication from UT Southwestern. This link is from a Johns Hopkins study, I'm not sure who is really the leading research facility but no matter, give it a read.
Lars ...

Cellcept linked to PML

Again it looks like a very low risk and possibly from a combination of drugs... but I would really like to take PML out behind the shed and have a word with it.

FDA investigates CellCept and Myfortic PML risk

The FDA is investigating a possible link between the use of CellCept (mycophenolate mofetil, from Roche) and Myfortic (mycophenolic acid, from Novartis) and the development of progressive multifocal leukoencephalopathy (PML).

The FDA is reviewing Roche’s ...
Read more : Cellcept linked to PML | Views : 1691 | Replies : 2 | Forum : Drug Pipeline

New here and could use some direction...

I am looking for help/advice choosing a Medicare Health and Prescription Drug Plan that would best-suit someone with MS.

I would love to hear from other folks and if there are resources on this site for that, maybe someone could direct me there?

This is for my loved-one. He is 44 years old, and has now become disabled from MS. He is receiving Soc Sec Dis, and is on Copaxone. Also, we are in ...
Read more : New here and could use some direction... | Views : 1355 | Replies : 2 | Forum : Introductions

So long for now, abx.....

Yikes, I had another abx. crash. The third one in 15 months of being on CAP. Unfortunately, this one severe enough to tip the benefit/risk ratio in the wrong direction to make anti-biotics a feasible treatment path for me. I would still encourage anyone especially with progressive disease to try it.

Thanks to all my forum friends for your support and information on the antibiotic protocol. Good luck to everyone on this treatment path!
Read more : So long for now, abx..... | Views : 1931 | Replies : 1 | Forum : Antibiotics

Three weeks after Campath

where to begin?

Well physically things are okay.

I am definitely having a flare up. I guess the fact that I expected it, makes it a little easier to swallow. My flare ups are almost always centered around Optic Neuritis. And for the past week, my vision has been its worst since my diagnosis. Usually it only affects one eye severely (usually my right eye). However the past few weeks, both eyes have been affected ...
Read more : Three weeks after Campath | Views : 2535 | Replies : 6 | Forum : Campath (Lemtrada, Alemtuzumab)


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