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I really can't think of a title for this post.

I haven't been posting much lately because I have had non-MS related issues to deal with in life. All of you here have been so supportive and helpful since I was diagnosed, I feel like you guys are my on-line family, so I want to share what's been going on.

A few days before Halloween, my longtime (almost 23 years) live-in girlfriend, Di Ann, ended her life with a gun. I was present when she ...
Read more : I really can't think of a title for this post. | Views : 2248 | Replies : 11 | Forum : Daily Life




Long term outcome of AHSCT

Its specially interesting because the the trial included SPMS patiens with active deterioration before treatment.

Medium duration of disease was 36 months (15–156), and medium attacking interval time was 6.5 months.

Does this mean the had MS for an average of 36 month (this would be a short time for a transition from RRMS to SPMS) or does the time refer to since when they were diagnosed as SPMS?

I also wonder what is ...
Read more : Long term outcome of AHSCT | Views : 1707 | Replies : 0 | Forum : Drug Pipeline


The List of Questions

How long did it take a doctor to diagnosis you? I was doing some research and it stated that it takes 6 month to diagnosis MS to be sure, is this a myth or no, cause I was dianose within a month ( had MRI met doctor he told me I had ms, did a spinal tab to confirm) with only one attack and no repeat attack at all since my diagnosis nearly 6 months ...
Read more : The List of Questions | Views : 1346 | Replies : 2 | Forum : General Discussion


Long-Acting 4-AP following HiCy

Chris,
Are you going to try the 4-AP? I'm going to ask for a script next week during my visit to Hopkins. There's a pharmacy in California, Leiter's Pharmacy, which people on-line have claimed to be getting the long acting version compounded from. I will give them a call, or e-mail them to find out. I need more functionality than I have right now to take care of my kids.

Sandy
Read more : Long-Acting 4-AP following HiCy | Views : 1590 | Replies : 1 | Forum : Revimmune (cyclophosphamide or cytoxan)


Off the shelf stems........

This company whose website is here

http://www.osiristx.com/

is creating an off the shelf mesenchymal stem cell product. The website is interesting and they have stage II/III trials going in Crohn's and graft vs host diseases with fast track status granted already.

Apparently they screen donors carefully and then harvest and grow the stem cells from these healthy people in the lab for donation to others.

from the website
Osiris ...
Read more : Off the shelf stems........ | Views : 2114 | Replies : 8 | Forum : Stem Cells


Radiologically Isolated Syndrome in MS

A new study published online in this week's Neurology, the medical journal of the American Academy of Neurology, reports that a third of people who underwent an MRI (magnetic resonance imaging) for other brain-related problems, but whose scans also showed abnormalities suggestive of MS, went on to develop the chronic disease within an average of about five years.

The research raises medical and ethical questions that genetic researchers and patients have bandied about for ...
Read more : Radiologically Isolated Syndrome in MS | Views : 1587 | Replies : 2 | Forum : General Discussion


It's snow ing in Texas

or atleast it did, but it's all but melted :(

these are from this morning

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Read more : It's snow ing in Texas | Views : 1523 | Replies : 6 | Forum : Daily Life


Not disabled enough

Gotta love the English benefits system. I applied for Disability living allowance - a small benefit to help disabled people be able to live more normally and afford a little help with the costs of disability. I still work so it's not full-time sickness benefit. After 6 months they ahve come back and told me that I am not disabled enough. I have been on crutches or a walking stick permenantly since May. But it ...
Read more : Not disabled enough | Views : 1833 | Replies : 5 | Forum : General Discussion


Prof Scolding stem cell trial

Not much in this article, but thought it worth posting.

Introducing stem cell based Myelin repair therapies in patients with Multiple Sclerosis

Professor Neil J. Scolding, FRCP PhD, University of Bristol Institute of Clinical Neurosciences, U.K., provided a report of his studies of bone-marrow derived cells for the treatment of multiple sclerosis.

About 30 years ago, investigators began to think that cell therapies might be useful to treat loss of myelin caused by multiple ...
Read more : Prof Scolding stem cell trial | Views : 2064 | Replies : 2 | Forum : Stem Cells


 

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