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CCSVI and Slovakia, Europe

Hi everybody!
I am new here. I have RRMS since 1996. I live in Slovakia, Europe.
I am 36 years old woman. I had chance to visit many places in the USA and Canada. My cousins live in Toronto and Vancouver. But I prefered the weather in California.

I have started to ask doctors in Slovakia about possible tests and treatment of CCSVI. My MS doctor did not know about it so I gave her ...
Read more : CCSVI and Slovakia, Europe | Views : 56860 | Replies : 384 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Bon qui qui ~ funny!

This is what fast food around here has become! funny stuff
Read more : Bon qui qui ~ funny! | Views : 1558 | Replies : 0 | Forum : Humor

1,000 hands

Read the paragraphs below FIRST before you watch the video. This is an awesome dance, called the Thousand-Hand Guanyin, which is making its rounds across the net. Considering the tight coordination required, their accomplishment is nothing short of amazing, even if they were not all deaf. Yes, you read correctly. All 21 of the dancers are complete deaf-mutes. Relying only on signals from trainers at the four corners of the stage, these extraordinary dancers deliver ...
Read more : 1,000 hands | Views : 1204 | Replies : 0 | Forum : Humor

Surgery - main results so far?

I quess many people with ms have red this forum, and especially the experiences after surgery. I quess there are some differencies among operated people --> some have got very good results quite fast and some with slower time? Of course, this is all very very new stuff.. so this is maybe too early to ask, but I quess some things can be said already.

I list some thoughts that I have about surgery effects ...
Read more : Surgery - main results so far? | Views : 1811 | Replies : 4 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Help! Which wheelchair!!!

Hi :D ,
I was diagnosed with a really aggressive form of PPMS last October, which meant that I went from Salsa queen to struggling on crutches in just 6 month. I intend to probably get myself of scooter for cruising around in my home town at some stage, but I still have extensive travel plans. So I’m looking for a foldable power wheelchair that I ...
Read more : Help! Which wheelchair!!! | Views : 1383 | Replies : 5 | Forum : General Discussion

burning, aching, feeling

Everyday now I get a burning, aching, tired feeling in my legs, getting worse near the end of the day. It feels like after you've worked out a lot but I've just been doing regular daily activity. Is this part of the 'MS fatigue' that I hear about or is that meaning sleepy tired? I'm wondering if exercising will help what I am experiencing or make it worse because they already feel like I've worked ...
Read more : burning, aching, feeling | Views : 3539 | Replies : 7 | Forum : General Discussion

Catfreak's CCSVI journey

I hope I am not jumping the gun.

Alexandra just called me and she has given my info to Dr Dake and she said I will be getting a call from him next week.

I will update when he calls.

Read more : Catfreak's CCSVI journey | Views : 3680 | Replies : 22 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

EGCG Question

If we can ever connect with Dr. Dake, we're going to Stanford. He tried to call us 3 times while we were at Mass Saturday evening, one time was on my mobile phone which I always turn off in church.

In the meantime, I've been pondering on iron chelation, finding rx drugs like M30, HLA20, and deferiprone, but also finding highly touted supplements for iron chelation like EGCG (in green tea extract) and circumin. Steve's ...
Read more : EGCG Question | Views : 1689 | Replies : 2 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

How diffuse hypoxia of the brain changes a person...

Increasingly, elaboration of inflammatory cytokines appears key to the brain-based response to hypoxia, as evidenced by the biobehaviors of malaise, fatigue, lethargy, and loss of interest in the physical and social environment. These sickness symptoms implicate hypoxia-dependent activation of the neuroimmune system as a key component of acute hypoxia.

I've mentioned before that Jeff's first signs of his MS progression- which began 15 years ago, although he ...


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