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Not MSer, but wondering...

Hi, there,

My brother has RR MS. I have many symptoms (the usual: tingling, numbness, loss of strength and balance, cognitive issues) but I don't show any lesions. He has been diagnosed with celiac disease (as has 1/2 of our family) and I surely have it but stopped eating gluten so long ago and am so sensitive to it I can't get the blood test to confirm if I have the antibodies.

Since the neuro ...
Read more : Not MSer, but wondering... | Views : 1678 | Replies : 3 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

bad results for Tysabri


Two more cases of a rare brain infection have emerged in users of the multiple-sclerosis drug Tysabri, sold by Biogen Idec Inc. and Elan PLC, the first such incidences since Biogen stopped updating investors of the situation in July.

At that time, Biogen had confirmed 11 cases of progressive multifocal leukoencephalopathy, or PML, since the drug's relaunch in July 2006; Tysabri was pulled from the U.S. market in 2005 because of PML concerns. ...
Read more : bad results for Tysabri | Views : 1717 | Replies : 0 | Forum : Tysabri (Antegren or Natalizumab)

good results for Tysabri

Biogen Idec and Elan Corporation, plc announced that data was presented at the 25th Congress of the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) showing the potential of Tysabri (natalizumab) to redefine successful multiple sclerosis (MS) therapy. These data were from observational studies and retrospective analyses of the phase-III AFFIRM clinical trial.

Tysabri significantly improves measures of physical and cognitive disability using the Multiple Sclerosis Functional Composite (MSFC) in patients from the ...
Read more : good results for Tysabri | Views : 1951 | Replies : 1 | Forum : Tysabri (Antegren or Natalizumab)

Spreading the news

I belong to the group of people who believed that prof. Zamboni's original idea of the correlation between CCSVI and MS was right, and my belief has grown even stronger reading his subsequent publications and after the congress in Bologna.
We need to accept the fact that even an 100% correlation does not prove cause and effect. In other words, the finding that all MS patients have anomalous drainage of venous blood from the brain ...
Read more : Spreading the news | Views : 10186 | Replies : 77 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


I know that there has been conversation here about what comes first, CCSVI or MS? But I'd like to begin own discussion about this - cause this might be very hot topic.. or already is. Maybe neurology likes to see that CCSVI is just ms consequence and vascular experts say vise versa.

How many reasons can you say, that CCSVI leads to MS? I have some idea about the CCSVI to MS process, but some ...
Read more : CCSVI MS or MS CCSVI? | Views : 2207 | Replies : 8 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

RTL 1000 phase 1 results

Artielle ImmunoTherapeutics Announces Positive Results of Phase 1 Multiple
Sclerosis Trial
Results Presented at 13th Congress of the European Federation of Neurological
Societies in Florence, Italy

PORTLAND, Ore., Sept. 14 /PRNewswire/ -- Artielle ImmunoTherapeutics, a
clinical stage biopharmaceutical company announced today the presentation of
"Results of a Phase 1 safety study of RTL1000, a recombinant T-Cell receptor
ligand specific for an immunodominant MOG peptide, in multiple sclerosis." The
results were presented yesterday by one of ...
Read more : RTL 1000 phase 1 results | Views : 3134 | Replies : 3 | Forum : Drug Pipeline

question about type of NAC


I've gone to two stores and can find N-acetyl L cysteine, but not N-acetyl cysteine.

Are they the same thing? I can find the version without the "L" online if that is preferable.

Read more : question about type of NAC | Views : 2237 | Replies : 4 | Forum : Antibiotics

Rebif and Resveratrol or OPCs

This is also has been posted in the Rebif forum and I'm going to post in the Supplements forum to cover all the bases.

Is there any known/good reason not to do certain supplements while on rebif?

The few I'm most concerned with are: Vitamin D, Resveritrol, and OPCs. Or, if you know of any others to look into that would also be appreciated. (I'm going through the forum now)

These three all look like ...
Read more : Rebif and Resveratrol or OPCs | Views : 2675 | Replies : 7 | Forum : Natural Approach

Dr. Frohman and Normal Pressure Hydrocephalus

Dr. Eliot Frohman, professor of neurology at Southwestern University- was a moderator and participant in the CCSVI convocation. He consistently had cogent and insightful questions and comments during the day. One of his points has stayed with me, and prompted me to do some more research on cerebrospinal fluid. Dr. Frohman commented that CCSVI was reminding him of his shunting treatment of normal pressure hydrocephalus ...mainly in the fact that the third ventricle was being ...

How best to tackle CCSVI with neuro?

Ok, I'm in Ireland, so doubt many CCSVI specialists here, but I am due to see my Neuro in December.

I want to ask about investigatioin for CCSVI. What should I take with me to the appointment? There's so little time I don't want to walk in with a stack of papers. My neuro is very well up on new developments but just not sure how to broach it in the time available......


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