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United Health Care Bites

I've got a problem and I hope someone on here responds who has some knowledge of handling these types of situations. As some of you know, I just started Tysabri. So you have to enroll in the TOUCH prescribing program. They not only tell you about PML about a thousand times, but they also 'do your insuarance stuff'. This all happens before you get your first dose so you know what to expect and all ...
Read more : United Health Care Bites | Views : 1916 | Replies : 7 | Forum : General Discussion


Someone other than Chris

I had talked to one of the Docs at JH and I won't say who, because I didn't ask if I could say this lol.

They have had to treat someone else again. I have no idea who. I guess they are 3-4 months out. I have no idea how long they made it before they reactivated either.

I may have experienced some fatigue today. I had a crap night though so it's hard to ...
Read more : Someone other than Chris | Views : 3666 | Replies : 18 | Forum : Revimmune (cyclophosphamide or cytoxan)


Fatigue and the missing enzyme

Researchers at Howard Hughes Medical Institute find an enzyme, neuronal nitric oxide synthase, is missing in mice with fatigue...after giving a vasodilator (viagra, in this instance) the mice are much more active and fatigue less easily. Here is the nitric oxide link we've been writing about in our vascular discussions, and provides an explanation for why many are finding relief from fatigue by pursuing this route.

In studies with genetically engineered mice that showed ...
Read more : Fatigue and the missing enzyme | Views : 1474 | Replies : 1 | Forum : General Discussion




Pre-relapse signs....put our heads together?

Hi
I'm just wondering if we could all put our heads together to discuss the pre-relapse period....
I've noticed that I have a short phase, just before a relapse, when signs and symptoms happen. I am curious to know if others have a set pattern of these too? Perhaps we might come up with some ideas or suggestions.

I tend to get these things before a relapse (up to 4 wks before):

Increased bruising (typically ...
Read more : Pre-relapse signs....put our heads together? | Views : 3651 | Replies : 16 | Forum : General Discussion


DRUG INTERACTIONS

I am on LDN - just started (4 days) so can anyone tell me whether Capadex (Paradex) interfers with LDN. I need a strong pain medication. I am on Diclofenac 75mgs whch I take at night but need something through the day so can anyone please help?
Read more : DRUG INTERACTIONS | Views : 2852 | Replies : 2 | Forum : Low Dose Naltrexone


Alternative Funding Sources

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Read more : Alternative Funding Sources | Views : 2285 | Replies : 5 | Forum : Tcelna (Tovaxin)


Server Disruption (and we're back!)

Sorry for the down time this week, folks. As a preventative measure, our site was moved from an older server to a newer one. The newer one wasn't playing well, and it took about 24 hours for us to get everything back in order.

We're back now, as you can tell. If you see any further issues, please let us know!

Much love,
-the This is MS Admins
Read more : Server Disruption (and we're back!) | Views : 1364 | Replies : 2 | Forum : General Discussion


Happy Thanksgiving!

Somewhere in a parallel universe...


Image
Read more : Happy Thanksgiving! | Views : 2387 | Replies : 1 | Forum : Humor


Newby says-Name This Tune!

Name This Tune

Hello, I’ve been poking around the forums for a couple of weeks now. Currently I’m considered sub clinical or pre sero something…by one top neuro and no MS by another. That’s the good news. The ‘bad’ news is symptom don’t lie. I’ve had many precursors: Epstein Barr virus/about 20 yrs ago...lasted for over a year. Two separate week long bouts of vertigo. Two yrs ago a five week ‘hug’ couldn’t take a ...
Read more : Newby says-Name This Tune! | Views : 1188 | Replies : 0 | Forum : Introductions


 

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