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sleepiness

hi everybody!
I've been here before (in May) but now I have a new question. I have re-started taking Tysabri yesterday (I have already taken it in April but had a very bad experience since - I think - it was overrun by a hepathitis vaccin which is in itself no good for MS though my doctor did not mention it... + I had a seriouds relapse with my (non)walking) Anyway, this time it seems ...
Read more : sleepiness | Views : 2086 | Replies : 2 | Forum : Tysabri (Antegren or Natalizumab)


shortness of breath

I was diagnosed with RRMS about 9 years ago, and have had a pretty easy go of it. My concern relates to chronic persistent shortness of breath I've experienced for about a year now; it seems to be worsened while doing exercises involving changing my head elevation. For example, when I do squats in the gym with a moderate amount of weight, I feel very lightheaded, dizzy, and of course short of breath. I even ...
Read more : shortness of breath | Views : 12431 | Replies : 21 | Forum : General Discussion


When will it make a difference?

I have been on Copaxone for 3 months now and I am still waiting for it to make a difference. I have had 1 fairly major relapse and am less healthy now then when I started, I have new symptoms popping up such as numb fingers. The MS hug is finally fading after 4 weeks!

My skin is covered in bruises and blotchy patches. Is it really all worth this? They didn't tell me it ...
Read more : When will it make a difference? | Views : 1935 | Replies : 4 | Forum : Copaxone


Need Help

Alright, So NYS decide that 50 cents over min wage means you dont get state health care. So, I cant afford to keep paying for Betaseron anymore, which doesnt matter cause I dont like all the side effects it gives me. BUT....
No insurance means no doctors anymore, or anything. So I need to know what would be the best vitimins and such to take daily to fight MS.
Read more : Need Help | Views : 1800 | Replies : 1 | Forum : Regimens


Getting to Grips with MS

The local branch of the MS Society is runnign a course called 'getting to grips' - It starts next week and will run for 6 weeks, one evening a week. There will be neuros, MS sufferers, the local MS therapy centre etc coming to talk.

In the first week there is an opportunity to write down questions for the neuro to answer the following week. Any suggestions on what to ask - the truth is ...
Read more : Getting to Grips with MS | Views : 1399 | Replies : 8 | Forum : General Discussion


TOVAXIN GUINEA PIGS PLEASE HELP!

can all you knowledgeable and experienced folks tell me whose heads at opexa i need to bust to get my freaking questionnaire phone call and my freaking procurement appointment set? i've got major problems going on and they won't call! and yes, i'm mrtc positive big time.

thanks,

ToNY
Read more : TOVAXIN GUINEA PIGS PLEASE HELP! | Views : 10120 | Replies : 62 | Forum : Tcelna (Tovaxin)


Notes from my HiCy experience...

Hi!
I'm a newbie and after recently completing the HiCy protocol at JH I wanted to pass along notes that may help any of you that may consider having the procedure.
Hospital
Must haves:
Your own Pillow (JH pillows are like flat rocks)!!!!!!!!!
Can get parking passes for $4 a day (outside admissions), which saves money.
Things for friends/family to do while you sleep i.e.: DVD player, IPOD.
You can take your own pjs, but ...
Read more : Notes from my HiCy experience... | Views : 3323 | Replies : 11 | Forum : Revimmune (cyclophosphamide or cytoxan)


Primary Vs Secondary Blepharospasm

Primary Vs Secondary Blepharospasm / Brain-damage-induced Vs Non-brain-damage-induced Eyelid-twitching / Eye-blinking



Please refer to the following medical explanations entitled 'Primary Vs Secondary Blepharospasm' which is actually an excerpt of my reply to the other party and I hope that the information given will be useful to the intended readers. Thank you.


Quotation :


" 'However, from this posting I have much more clearly understood that your blepharospasm symptoms are a form of secondary blepharospasm, not ...
Read more : Primary Vs Secondary Blepharospasm | Views : 4104 | Replies : 10 | Forum : General Discussion


Fall is coming!

I've always been a fan of fall with the weather, holidays, and scenery it brings but this year is more significant to me. Even though we had a relatively mild summer the heat was really starting to get to me. I'm thankful that all I had was decreased energy and increased grogginess but the onset of the lower temperatures has me happy. I will have the ambition to get out and do the things I ...
Read more : Fall is coming! | Views : 1504 | Replies : 1 | Forum : General Discussion


MS and taking Cipro

My FNP thought I had a UTI and placed me on Cipro. When my MS Nurse found out she said stop the Cipro because it's not a drug for people with MS to take. Now Im a Nurse and I never heard that, course I'm not an expert by any means on MS infact Im rather clueless about it and am learning painfully slow about this monster called MS.

Well I think the UTI is ...
Read more : MS and taking Cipro | Views : 3190 | Replies : 7 | Forum : General Discussion


 

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