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Help! 21 years old and about to start Tysabri!


Hopefully I can get some help here about my issues with tysabri ...

After being diagnosed at 16, I tried Rebif, but I couldn't handle that after just 8 months and Copaxone didn't work after 6 months either. Literally my only options are Tysbari or do nothing. I've been doing nothing for the past year and I haven't improved at all. In fact, I've progressed so far that my neuro told me "if you ...
Read more : Help! 21 years old and about to start Tysabri! | Views : 2092 | Replies : 6 | Forum : Tysabri (Antegren or Natalizumab)

Passed the paper along

My husband's GP requested that he see a neuro, as he hasn't seen one since last year this time. That was his old neuro, and I'm afraid we had come to the end of our relationship. Today we saw the new one and she seemed quite nice, although she admitted she wasn't an MS specialist. Well, who really is? Perhaps it is better she isn't, or at least doesn't think she is. So we gave ...
Read more : Passed the paper along | Views : 1441 | Replies : 2 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


MS Patients May Soon Benefit from a New Generation of Oral Drugs

(Amherst, NH) – Multiple sclerosis (MS) is the most common chronic disabling disease of the nervous system. According to the U.S. National Institute of Allergy and Infectious Diseases, MS afflicts one in 700 people in the United States. MS is a relapsing, frequently progressive disorder that affects the myelin sheath or fatty cover of the central nervous system in the
brain and spinal ...
Read more : yay!!!! | Views : 1182 | Replies : 1 | Forum : General Discussion

possitive ANA. Lupus?

I am still in diagnositic limbo but we are getting closer. I had a possitive ANA. this is consitant with someone with Lupus. problem is I have had neuropathy for years and I know I have always given normal blood tests. I had an MS panel 4 years ago and my question is, Is an ANA generally included on the blood tests with an MS panel. I am just trying to separate the yoke from ...
Read more : possitive ANA. Lupus? | Views : 1464 | Replies : 2 | Forum : General Discussion

Zap Goes to Stanford (Dec)

Well, it's finally on ... from the time I was first diagnosed in 2006, I have thought the answer lies this way (Schelling's "Venous Pressure Theory" explaining Dawson's Fingers lesion pattern made so much sense), and now it's time to put my neck out, literally.

After playing phone tag with Dake's office since June, I'm finally scheduled to go get scanned on December 7th.

I could have signed up for as soon as early Oct, ...
Read more : Zap Goes to Stanford (Dec) | Views : 1814 | Replies : 12 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Chatroom in real time

Would be good if we had a room where people can chat in realtime (if they wanted to)

Read more : Chatroom in real time | Views : 1086 | Replies : 0 | Forum : General Discussion

Hopes For Tailor-made Multiple Sclerosis Treatment With Mito

Science News Share Blog Cite Print Email BookmarkHopes For Tailor-made Multiple Sclerosis Treatment With Mitoxantrone
ScienceDaily (Sep. 1, 2009) — In view of the potential severe side effects of new immune therapies for multiple sclerosis (MS), research is now focused on the optimized use of established drugs with known side effect profiles. Neurologists in Bochum, working under the auspices of Associate Prof. Andrew Chan (RUB Clinic for Neurology, St. Josef Hospital, Director: Prof. Ralf Gold) ...
Read more : Hopes For Tailor-made Multiple Sclerosis Treatment With Mito | Views : 1463 | Replies : 0 | Forum : Drug Pipeline

Yoga anyone?

Has anyone here tried yoga?
I'm thinking the stretching and exercise would be good but not sure how much I would actually be able to do. Considering:
-no balance
-forget standing on 1 foot
-forget standing, except for short duration
-very weak legs (& hand, & arms, etc)

You know, all the usual stuff.

Can a yoga studio (?) create modified exercise plans.
If you have any experiences I'd be interested to hear about it. ...
Read more : Yoga anyone? | Views : 2473 | Replies : 11 | Forum : General Discussion

Catfreak's Trip to Stanford!!

Leaving for the Airport!

Will update soon.

Read more : Catfreak's Trip to Stanford!! | Views : 11142 | Replies : 78 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


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