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Anybody have UTI's while on Tysabri

Well, I have one and I called the Infusion nurse to make sure that when I went to the DR to get something for it that I didn't get anything that would be adverse to the Ty. She said to do what ever the Dr said and keep them informed. But, that we would most likely have to discuss it with my Neuro and see if I should continue with the Tysabri.

I am going ...
Read more : Anybody have UTI's while on Tysabri | Views : 2064 | Replies : 3 | Forum : Tysabri (Antegren or Natalizumab)

CCSVI Website:

Dear TIMS-Community!

We are very impressed by the work you have done over the last years and the achievements of TIMS for CCSVI. It’s just brilliant thank you so much guys!

As there is nothing comparable in Europe we decided to start something similar in Switzerland/Germany.

We created a platform, a website and a forum for CCSVI:

Currently, the page and the forum are in German because that’s ...
Read more : CCSVI Website: | Views : 7083 | Replies : 15 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

did anyone have a MRV before going to Dr. Dake?

I have a bunch of questions!

Just wondering if anyone had the testing done at their home and then sent the results to Dr. Dake at Stanford? And if so what did Dr. Dake have to say? I assume he ran the tests again when you arrived at Stanford? If the tests are run by him a second time did insurance cover both?

I have a skeptical family member who thinks I should be tested ...

Lady Stewart-Stanford Update

It is 8:45 pm Palo Alto - Sharon has been in her room for about 30 minutes. I spoke with her briefly - she had three stents - 2 left and 1 right (I think that is what she said---it has been a long day, so please excuse). She is groggy -- her throat hurts. Her sister Susann is with her - thanks Susan for coming all the way from Louisiana to stay by your ...
Read more : Lady Stewart-Stanford Update | Views : 5721 | Replies : 30 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Texas Heat!

Texas Heat

Dear Diary

Just moved to Texas! Now this is a state that knows how to live!! Beautiful sunny days and warm balmy evenings. It is beautiful. I've finally found my home. I love it here.

June 14th:
Really heating up. Got to 100 today. Not a problem. Live in an air-conditioned home, drive an air-conditioned car. What a pleasure to see the sun everyday like this. I'm turning into a sun worshipper. ...
Read more : Texas Heat! | Views : 2144 | Replies : 4 | Forum : Humor


Hey all, I am curious what the costs are for the tests and then the procedure. Also, are you guys using insurance on this?
Read more : Cost | Views : 5527 | Replies : 30 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Daclizumab is going to advance to phase-III

Facet Biotech announces Daclizumab program in Multiple Sclerosis to advance

Facet Biotech Corporation announced its decision, along with its partner Biogen Idec, to continue planning for the phase 3 trial of daclizumab high-yield process (DAC HYP) in multiple sclerosis (MS). The company plans to request a Special Protocol Assessment from the U.S. Food and Drug Administration (FDA) prior to the initiation of this study. The companies expect to start the phase 3 trial during ...
Read more : Daclizumab is going to advance to phase-III | Views : 2034 | Replies : 1 | Forum : Drug Pipeline

educational conferrence...

I was hoping for some input.
i will be taking part in an educational conference for MSerrs.
We've got a couple of speakers lined up, nutritionist, neurologist, exercise pro....but I was wondering what topic you would like to see a presentation about. i have options like CAM, social services (negotiating ins issues etc), safety issues..(like fall proofing your home). Choosing a healthcare team...

What would you guys like to see discussed...? I want this to ...
Read more : educational conferrence... | Views : 1250 | Replies : 5 | Forum : General Discussion

Stent Material

Does anyone know the type of material that the stents are made of that Dr Dake uses, and if they are x-ray and MRI compatible?
Read more : Stent Material | Views : 1790 | Replies : 2 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Pushing into October for surgery

I just talked to Alex. They are already pushing into October for scheduling the testing/surgery. So Dake read my file in just a few hours after receiving it but I guess there are so many people now calling for the surgery there is a backlog!

Just wanted to give everyone a head's up.


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