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New Wheelchair Kamikaze Video Posted: The Quest for Bagels

Hey folks, I posted a brand-new Wheelchair Kamikaze video, "The Quest for Bagels". This edition of Wheelchair Kamikaze has us heading up Broadway to my favorite bagel shop, and then for a ride through Central Park on the way home.

Hope everybody enjoys my latest adventure...

http://www.youtube.com/watch?v=RM0GjqwrwHs
Read more : New Wheelchair Kamikaze Video Posted: The Quest for Bagels | Views : 1655 | Replies : 8 | Forum : General Discussion


Newbie Question

Hi,
I just discovered this site today!! I was dx with RRMS 7/05, based on my workup we believe I had symptoms as early as 1996. I started Rebif 44mcg 3xs/wk and stayed on that therapy until I was diagnosed with Ewing's Sarcoma (bone cancer) 11/20/06. I had 1 exacerbation (4/06) between my MS dx and my cancer dx. Nystagmus - solumedrol resolved it.

I took a TON of chemo from 12/06 - 9/14/07. Adriamycin, ...
Read more : Newbie Question | Views : 2362 | Replies : 9 | Forum : Revimmune (cyclophosphamide or cytoxan)


Bartonella induced MS

http://www.uvaldeleadernews.com/article ... /news1.txt

Our 17 yr old is thought to have been infected with two strains of this bug....which in her case caused a lot of psychiatric symptoms. Luckily her mri's were normal, but they did show "enlarged perivascular spaces" and treatment has helped her VERY much.
Read more : Bartonella induced MS | Views : 1624 | Replies : 1 | Forum : General Discussion


Tysabri + Copaxone trial results

The double blind phase-II results indicate that the combination might be safe and effectivenes was signifficatly higher in the combination group.
Abstract

--Frank
Read more : Tysabri + Copaxone trial results | Views : 1836 | Replies : 0 | Forum : Tysabri (Antegren or Natalizumab)


This is a letter I got this morning for Ploymyositis

Hi Chris,

I did HiCy at Hopkins this November for my Polymyositis and am doing very well. I hope you are as well. I have a friend with MS that would like to do HiCy but she said Hopkins wouldn't have anything to do with her because she is not recurring and remitting and not in a wheelchair. I am not sure if she talked to the right person. Did you remember any of these ...
Read more : This is a letter I got this morning for Ploymyositis | Views : 1392 | Replies : 2 | Forum : General Discussion


I have a date

My first infusion will be March 26th. I got a box of stuff from Biogen today. A tote bag and blanket to take to my infusions. :roll:

I'll let y'all know how it goes.

CF
Read more : I have a date | Views : 1941 | Replies : 5 | Forum : Tysabri (Antegren or Natalizumab)


Drug Studies Fraud (not MS drugs)

http://www.sciam.com/article.cfm?id=a-m ... faked-data

Beautiful. I'd like to get my hands on this f*!?@er while I'm still able to choke the breath out of him.
Read more : Drug Studies Fraud (not MS drugs) | Views : 1422 | Replies : 3 | Forum : General Discussion


Looking in Central California

I'm looking for a doctor to prescribe me LDN. I read through these post and found no one on the west coast.

Any help would be appreciated.

Misty
Read more : Looking in Central California | Views : 2769 | Replies : 1 | Forum : Low Dose Naltrexone


second dose day two

I have in IV in my right wrist, so it is hard for me to type. Therefore, I not sure how long this post will be. Yesterday the infusion went ok. Although, I went into vagus shock during the IV insertion and passed out ( my blood pressure also dropped in half). But after that is was pretty smooth sailing. Kristin and I had some serious headaches. I also had a stomach ache and some ...
Read more : second dose day two | Views : 1516 | Replies : 0 | Forum : Campath (Lemtrada, Alemtuzumab)


Puns for the day...

  1. The roundest knight at King Arthur's round table was Sir Cumference. He acquired his size from too much Pi.
  2. I thought I saw an eye doctor on an Alaskan island, but it turned
    out to be an optical Aleutian.
  3. She was only a whisky maker, but he loved her still.
  4. A rubber band pistol was confiscated from algebra class because it
    was a weapon of math disruption.
  5. No matter how much ...
Read more : Puns for the day... | Views : 1960 | Replies : 2 | Forum : Humor


 

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