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Natural History

I had looked for the original study this was a follow up to recently and could not find it so wanted to post it here when I stumbled across this follow up study today:

Pittock SJ, Mayr WT, McClelland RL, Jorgensen NW, Weigand SD, Noseworthy JH, Rodriguez M.
Department of Neurology, Mayo Clinic, Rochester, MN 55905, USA.

OBJECTIVE: To assess whether the level of multiple sclerosis (MS) -related disability ...
Read more : Natural History | Views : 4325 | Replies : 44 | Forum : General Discussion

LDN update

I started 3mg's of ldn Feb. 13th and increased to 4.5 mg's on Feb 20th. From about day 3, I started to notice an increase in energy and strangely, that energy increased daily almost to the point that I could time the daily uptick.
As for other improvements, I have noticed no changes in pain or spasticity. But hey, energy is good!
By the way, on or around day 4, I almost stopped because the ...
Read more : LDN update | Views : 3058 | Replies : 1 | Forum : Low Dose Naltrexone

relapse vs. progression?

Can somebody explain the difference? Once progression starts from a relapse does it ever stop or slow down?
Read more : relapse vs. progression? | Views : 2160 | Replies : 6 | Forum : General Discussion

Vitamin D levels

So, when I was at JH a few weeks ago, they tested my Vitamin D.

I just received the results.... a 6. Normal is 20-100! So they put me on vitamin D.

wonder if anyone else was tested....

Read more : Vitamin D levels | Views : 3966 | Replies : 17 | Forum : Revimmune (cyclophosphamide or cytoxan)

anyone else have eyes that are working slower?

Hello all this is my first post but have beenn lurking for a while. I have RRMS since '97 and my original symtoms were numbness and issues with my eyes,floaters and my eyes working slow. Well that would come and go over the years and usually not stay to long. They have put me on copaxone in '05 and my first relapse was in oct. last year. Now since then my original symptoms are back ...
Read more : anyone else have eyes that are working slower? | Views : 2899 | Replies : 24 | Forum : General Discussion

MRI results

February MRI report in excerpts-

"Since the prior study in Nov the perivetricular plaques show mild improvement. The plaque above the posterior aspect of the left ventricular body has nearly healed. The small plaque on the left side of the splenum is slightly smaller. No enhancing plaques. The enhancing plaque previously see no longer enhances and has appeared to heal.


Improved mild cerebral and posterior fossa demyliation.

Back to me---not to bad eh?? The ...
Read more : MRI results | Views : 1590 | Replies : 3 | Forum : Revimmune (cyclophosphamide or cytoxan)

Cool Site like it here...

What a breath of fresh air to find so many people with one goal in mind... PPMS will not stop me !!! The info I can get from everyone here is sure to help. For me it was a rough road to the final conformation of ms. The early signs were largely ignored by all the Dr.'s I was seeing. They all said your in too good of health to have ms. Your just getting ...
Read more : Cool Site like it here... | Views : 1046 | Replies : 0 | Forum : Introductions

Crazy Tired

I have been falling asleep at work, a lot, now for me I was like i should just get more sleep at home, but I get 8-9 hours of sleep each night whether all at once or a nap here adn then sleep later.

At first I thought it was because I cut caffeine out, but I start drinking ti again and still like clock work, I fall asleep

its getting to teh point that ...
Read more : Crazy Tired | Views : 3326 | Replies : 18 | Forum : General Discussion

Attitude of Gratitude


As MS progresses, it can definitely bring out the dark thoughts. The gloomy outlook, hard to find a purpose, we all know the drill. As things get worse it is unavoidable to not have these thoughts. As I try and think about "how in the hell am I going to keep my chin up as my health goes down?", I am really wanting to try someting. I want to try and throw one thing ...
Read more : Attitude of Gratitude | Views : 18937 | Replies : 162 | Forum : Daily Life

First attack in almost five years

I am just coming out of my first attack in almost five years. I had one episode five years ago, double vision, and that led to a mri and then an 'unofficial' diagnosis (because there was one incident, one sympton). I was hopeful that maybe I was one of the few who would have one isolated incident and that would be it, but no such luck (and not very likely I guess, but hope springs ...
Read more : First attack in almost five years | Views : 2860 | Replies : 0 | Forum : Low Dose Naltrexone


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