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I just called......

I spoke to Angela, she said Alexandra was gone for the day, so I am to call back tomorrow at 9am there/11am here.

She was very nice. So until tomorrow...

Read more : I just called...... | Views : 3311 | Replies : 18 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


Well---I go to Stanford 8/4..Can't wait. I cannot type(slow), talk. walk. Relaping progressive 7 years and counting......I will keep all abreast when I FINALLY go. Praying for something!!!
Read more : Ladystewart-------Finally | Views : 2321 | Replies : 11 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


Read more : ..... | Views : 4614 | Replies : 33 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


It seems Dr Dake is not seeing near as much azygous involvement as Dr Zamboni did.

Possible explanations:

1. Dr Dake's sample size so far is too small (not enough PPMS).
2. Dr Zamboni saw azygous stenosis that isn't there.
3. Dr Dake isn't seeing azygous stenosis that is there.
4. Others?

Just curious if anyone else is a little bothered by this.

Read more : Azygous | Views : 1621 | Replies : 2 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Anxios !!!! Your valued openion/suggestions please.

Hi fello MSears,

:?: My meds changed by my neuro for the third time in two months.
Previous meds: Current meds:
----------------- ----------------
1.Beclafen 10 mg thrice a day Beclafen (XL) 20 mg twice a day
2.Methylprednisolon 8 mg Methylprednisolon 8 mg
3.Absolute 3G( hor fatigue) Withdrawn
4.Imuran (Deises Modifying Drug) twice a day Same
5. --- GEMCAL (Calcirtol,Cacium Carbonate & Zink )one cap a day
6. ...
Read more : Anxios !!!! Your valued openion/suggestions please. | Views : 2371 | Replies : 0 | Forum : Regimens

Three month mark

I am now nearing the three month mark post campath infusions.
I'm feeling pretty good, in spite of a recent fall that banged me up.
Friday, I return to the doc.
I am wondering how others are doing, as time goes by post infusions, and what I might expect.
Has anyone seen real improvement yet?
Read more : Three month mark | Views : 1830 | Replies : 2 | Forum : Campath (Lemtrada, Alemtuzumab)

Career Change

Work has been a struggle lately, as I am a chef with PPMS. Not exactly the best career for an MS sufferer as it is rated one of the most stressful careers and there's no way I could possibly keep myself cool. I've been feeling guilty at work for not living up to the requirements of my job and relying too much on my employees as I tend to more administrational duties. I need to ...
Read more : Career Change | Views : 1687 | Replies : 3 | Forum : Daily Life

thank god its only ms

just had my first mri in 5 years today. the last one said phrases like " consistant with the demylination process in ms and tm" but the lesion did not contrast. this is the first bout I have had in 5 years and I would assume that after all this time and waiting this mri would be definitive either way ms or no ms. I made the mistake in asking the radiology clinic to send ...
Read more : thank god its only ms | Views : 1267 | Replies : 6 | Forum : General Discussion

Hello and goodbye

Hi All,
I haven't been around in the past few months and I'm sorry to see there is not much news on the Tovaxin site. I have gotten divorced, moved to a super rural hunting cabin, have no e-mail and I think this is my farewell. I appreciate all you have done for me over the past years and still hold out hope for Tovaxin's resurgence. I don't know how I would have coped without ...
Read more : Hello and goodbye | Views : 2546 | Replies : 2 | Forum : Tcelna (Tovaxin)

recently diagnosed with PPMS

Hi all!

I am a 33 year old man who was diagnosed with PPMS in March after finally finding a GP that would send me to a neuro. Bowel and bladder symptoms began 4 years ago after an anxiety attack, GP diagnosed chronic stress. Fatigue progressed, bowels stabilized, urinary issues worsened, sexual dysfunction crept in. Visited several doctors over the past two years and kept getting the same response. Legs went numb in January and ...
Read more : recently diagnosed with PPMS | Views : 1801 | Replies : 5 | Forum : Introductions


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