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LDN now for 6 months

:D I have been on LDN for 6 months. I have had MS for about 23 years. Did Copaxone for 6.5 yrs and then reacted badly and had to stop. I had just found out about LDN and started it 6 months ago. Initially it did disturb my sleep for about 8 days. That first 8 days I was very sleepy and napped alot. After the ...
Read more : LDN now for 6 months | Views : 6080 | Replies : 5 | Forum : Low Dose Naltrexone


MS and books - fantasy genre

Ok for something totally off normal topics!
Has anyone else noticed that Harry Potter could be a metaphor for JK Rowling's grief for her Mum and her Mum's MS? Voldemort going away, gaining strength, attacking periodically (relapses), the Dementors taking all hope from the victims. All the metaphors for magic, power, control, betrayal from things that seemed like friends etc.

And for those who've read Mervyn Peake's Gormenghast, same thing? - I'm not sure what ...
Read more : MS and books - fantasy genre | Views : 1010 | Replies : 0 | Forum : General Discussion


Fast Forward programme for new drugs

Translating research in the laboratory into medicines in the real world can be frustratingly slow, so the NMSS has set up this project in the hope of speeding things up:

National Multiple Sclerosis Society Launches Drug Development Initiative 28 November 2007
Fast Forward Program Will Bridge the Gap Between University Research and Drug Development, Speeding New Treatments for People With MS

The National Multiple Sclerosis Society today announced the creation of Fast Forward LLC, a ...
Read more : Fast Forward programme for new drugs | Views : 1078 | Replies : 0 | Forum : General Discussion


Significant changes in MS brain blood flow

From time to time, the idea of MS being a vascular disease crops up, and this study appears to show a significant correlation between blood flow, lesions and disability:

Intracranial venous haemodynamics in multiple sclerosis.
Zamboni P, Menegatti E, Bartolomei I, Galeotti R, Malagoni AM, Tacconi G, Salvi F.

Vascular Diseases Center, University of Ferrara, Ferrara, Italy. zmp@unife.it.

In multiple sclerosis (MS) plaques are known to be venocentric; in addition, ...
Read more : Significant changes in MS brain blood flow | Views : 2680 | Replies : 8 | Forum : General Discussion


The Birth of a Brain Cell: Scientists Witness Neurogenesis

Stumbled on this one while looking for something else.
For the first time, researchers have developed a way to view stem cells in the brains of living animals, including humans—a finding that allows scientists to follow the process neurogenesis (the birth of neurons).
The key ingredient in this process is a substance unique to immature cells that is neither found in mature neurons nor in glia, the brain's nonneuronal support cells.
They were able to determine the chemical ...
Read more : The Birth of a Brain Cell: Scientists Witness Neurogenesis | Views : 1084 | Replies : 0 | Forum : General Discussion


Hives, copaxone

Hello, I searched and the topic hives was already discussed, but though I´m askink. Did anybody have hives? I have terrible hives for 14 days (now I ´m hospitalized on cortizone cure, which helps, but when it stops, it appears again). I use copaxone 1 year and had no problems so far, but my neuro said, she couldn´t separete out the copaxone like a reason of hives. That´s why I don´t continue with copaxone now ...
Read more : Hives, copaxone | Views : 1696 | Replies : 3 | Forum : General Discussion


Hives, copaxone - need information

Hello, I searched and the topic hives was already discussed, but though I´m askink. Did anybody have hives? I have terrible hives for 14 days (now I ´m hospitalized on cortizone cure, which helps, but when it stops, it appears again). I use copaxone 1 year and had no problems so far, but my neuro said, she couldn´t separete out the copaxone like a reason of hives. That´s why I don´t continue with copaxone now ...
Read more : Hives, copaxone - need information | Views : 6654 | Replies : 9 | Forum : Copaxone


ITP autoimmune disease treatment found

ITP is a serious sideffect that can occure during Campath treatment.
Sciencedaily

--Frank
Read more : ITP autoimmune disease treatment found | Views : 2291 | Replies : 1 | Forum : Campath (Lemtrada, Alemtuzumab)


Legs tingle when I put my head down?

I noticed it for the first time when I was running on Monday. Now whenever I run if I put my head down too quickly my legs shoot with a tingling sensation that also seems to tire them out. I've continued running since if I don't tilt my head quickly nothing happens and even if I do I don't get dizzy or lightheaded or anything, just the odd sensation. The effect goes away after I'm ...
Read more : Legs tingle when I put my head down? | Views : 4887 | Replies : 6 | Forum : General Discussion


EEG to check gray matter area

Hi to everyone. Have not posted for awhile but thought some of you may have responses to my questions. Had latest MRI in Oct. after none for 3 years. Had some 11 + lesions plus two more. Report said could be MS but not to rule out other things. Apparently not enough since the last one. Neuro would not say MS. Did say if 29 years old would dx MS but 60 so could still ...
Read more : EEG to check gray matter area | Views : 5049 | Replies : 7 | Forum : MS in the Golden Years


 

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