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New to the Site

Hello to all!

I just came across this site - and am eager to get into it more! I've been diagnosed for a year and a half - after a 5 year struggle! Just started Avonex, also on Lamictol. Most days are great, but some days really really suck!

Glad to be here! Any advice welcome!
Read more : New to the Site | Views : 1498 | Replies : 2 | Forum : Introductions

Would appreciate new friends/contact

My name is Cindy and was diagnosed with RRMS in early 2002.
Have been reading this wonderful forum for several months... this is my first post. Just turned 51, I am in North Carolina, originally from CA, USA.
At this stage, there is no pain but my mobility is really bad.
I'm not sure what I want to say--other than I just have to get started and actually reach out/connect this time...
The bottom line, ...
Read more : Would appreciate new friends/contact | Views : 2332 | Replies : 10 | Forum : Introductions

Research article

A research article on Campath - but not from the Cambridge team overeeing the trials.

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Read more : Research article | Views : 1833 | Replies : 0 | Forum : Campath (Lemtrada, Alemtuzumab)

Tovaxin Extension Study Blood Drawn

Ok people. Had my blood drawn today (02/25/08) for the Tovaxin extension study. Here's a link to my journal (blog) about the Tovaxin extension study I won't be on this forum allot so if you have any questions please email me or post a comment on my journal (blog). Email and all my contact information are on my profile.

This is what we been waiting for.
Read more : Tovaxin Extension Study Blood Drawn | Views : 1654 | Replies : 0 | Forum : Tcelna (Tovaxin)

New book on Lyme (MS?) including LDN

New book: The Lyme Disease Solution by Ken singleton. MD

Lyme is still a controvercial area, good to see an MD weighing in. He also has a chapter on the use of Low Dose Naltrexone LDN in treating
Lyme. Here's the intro

Just thought I'd point this out, since I have a positive Lyme PCR from
Igenex, and that is likely the cause of my "MS". I ...
Read more : New book on Lyme (MS?) including LDN | Views : 2628 | Replies : 0 | Forum : Low Dose Naltrexone

Gadolinium/blood draws

I really don't sit around contemplating disaster, but this has been on my mind since before the Gadolinium issues came up. Since I have been in this trial, my trial days have been set up like this; I have an MRI and get injected with contrast then I go to my site for tests, injections and BLOOD DRAWS. My common sense alarms have been going off about the blood used for my vaccine being full ...
Read more : Gadolinium/blood draws | Views : 2518 | Replies : 11 | Forum : Tcelna (Tovaxin)

Full text of recent study at Stony Brook .

This is a very interesting technique.

I did a bit of research for those interested the link to read the full text and the is below.

Here is the link


Read more : Full text of recent study at Stony Brook . | Views : 4605 | Replies : 18 | Forum : Revimmune (cyclophosphamide or cytoxan)

Early aggresive treatment in Crohn's & stimulating T-cel

Two articles I thought were interesting today, maybe not directly related to MS but enlightening.

Reverse treatment aids Crohn's sufferers

Early use of powerful immune-suppressing drugs shown to be more successful than traditional methods

And under the category: do this but in reverse...

Stimulating Thymus Reactivates T-Cell Production

It has long been believed that it wasn't possible to reactivate T-cell production in the thymus. The new study, by researchers at the Gladstone Institute of Virology ...
Read more : Early aggresive treatment in Crohn's & stimulating T-cel | Views : 1253 | Replies : 0 | Forum : General Discussion

Pinworms! for Bob

Hey Bob-
Need your help. My darling son brought home a case of pinworms. (The things children can bring to your life!) Our family doc wants us all to take mebendazole, since we're all showing signs of infection. I won't give any more's truly disgusting. (We won't know for sure which parasite we have until our, uh, samples are studied, but the doc wanted to get us going in the mean time.)

I mentioned ...
Read more : Pinworms! for Bob | Views : 1925 | Replies : 3 | Forum : General Discussion

hello from Boulder, CO, US

Hi everyone,

I'm Trish. I've been dx'ed for about 9 years. In two weeks I'll have my 7th or 8th Tysabri infusion. I had previously used Copaxone, Rebif and Novantrone without good results. The depression from the Rebif was unbearable.

Tysabri has been good for me so far. I have not had a serious relapse since I started it. I've noticed that I have kind of lost my appetite and I've lost about 15 - ...
Read more : hello from Boulder, CO, US | Views : 1815 | Replies : 5 | Forum : Introductions


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