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Doctors are rubbish!!!

Hi all,

I've not been diagnosed with anything yet (and this isn't another "do I have MS?" post!), but for a few months I've been back and forwards to my doctor with a list of symptoms (numbness, weakness, pins and needles on left side, extreme cold in hands and feet, memory problems, difficulty swallowing...)

Doctor initially thought some kind of peripheral neuropathy(!), and put me on NSAIDs for a trapped nerve. Those didn't work, and ...
Read more : Doctors are rubbish!!! | Views : 2634 | Replies : 14 | Forum : General Discussion

Fetal stem cells generate brain tumors

I don't know if this has been posted previously, however, this article might be of interest to folks watching the development of stem cell therapies...

Fetal stem cells trigger tumors in ill boy

By Lauran Neergaard
AP Medical Writer

WASHINGTON (AP) -- A family desperate to save a child from a lethal brain disease sought highly experimental injections of fetal stem cells - injections that triggered tumors in the boy's brain and spinal cord, Israeli ...
Read more : Fetal stem cells generate brain tumors | Views : 1197 | Replies : 1 | Forum : Stem Cells


Has anyone ever heard of glycothymoline? I have a friend who is reading about Edgar Casey and it stated that Glycothymoline is supposed to relieve MS symptoms. I have found it online as a mouthwash for about ten dollars. Is it worth trying?
Read more : Glycothymoline? | Views : 2018 | Replies : 14 | Forum : General Discussion

MS Neurologist Rating Website

I came across a very interesting website that I think has a tremendous potential to be a very valuable resource for the worldwide MS community. It's a place were you can post info, both positive and negative, about MS neurologists you've had experiences with. Of course, you can also read what others have posted about a neuro you might be considering seeing.

It would be great if this could become a comprehensive database that could ...
Read more : MS Neurologist Rating Website | Views : 1250 | Replies : 0 | Forum : General Discussion

w-five last night on tv

Read more : w-five last night on tv | Views : 1757 | Replies : 10 | Forum : General Discussion

Allergy to mannitol?

I am a longtime thisisms fan but this is my first contribution. I am very grateful to the regular contributors who have helped me through many struggles along my journey.

I was diagnosed 5 years ago and was on Copaxone successfully up until a few months ago when I began to have an allergic reaction in the form of hives. It took a long time for me to associate the hives with the Copaxone because ...
Read more : Allergy to mannitol? | Views : 2503 | Replies : 10 | Forum : General Discussion

general anaesthetic and MS

Hi guys, just curious after reading a few posts, is there a problem with a person who has MS to go under General Anaesthetic?

I know that I am not diagnosed yet but after having my last general anaesthetic in November it took a while to get me back steady and strong on my feet.
I was so weak and walking snail pace, couldn't work out why. It continued for days and days.
It was ...
Read more : general anaesthetic and MS | Views : 1613 | Replies : 1 | Forum : General Discussion

having kids

i have been on copaxone treatment for about 6 months
and my g/f and i are thinking about having kids
i just want to know if anyone is on copaxone and had kids before
Read more : having kids | Views : 2035 | Replies : 3 | Forum : Copaxone


Many here have dealt with MS a lot longer than I have, so I'd figure I solicit some advice on something I've been considering.

Just a little background: I'm 38 years old, and was diagnosed last August, and started having symptoms that lead me to the doctor last mid-April. I started on Copaxone in October. My symptoms have been mostly sensory, some nerve pain, but I do feel my legs and arms get tired more ...
Read more : Advice | Views : 2038 | Replies : 14 | Forum : General Discussion

Contact info

Anyone have a number or who to contact for revimmune? I am looking into the North Western treatment as well right now. Problem is I was told it is in phase II and randomized study. Some would get chemo and some would get chemo with the stem cells.

Have not contacted anyone at Rush hospital yet. I amnot quite sure what their treatment is.

Interestined in looking into revimmune.
Read more : Contact info | Views : 1719 | Replies : 4 | Forum : Revimmune (cyclophosphamide or cytoxan)


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