:lol: Betaseron ( for the obvious), folic acid 3mg (lg dose) for severe pain from elbows down to hands. Neuro said nerve pain but not carpel tunnel or cubital tunnel. He says it is still out in the medical world whether or not it is caused by the MS or by the Interferon.

B12, L-carnitine (for fatigue), Provigil (for fatigue), milk thistle (for my liver), cranberry extract ...

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Progressive Multifocal Leukoencephalopathy(PML) info

New research article for May 2005 release describes full recovery of PML after removal of immune suppression. I think immune monitoring can remove PML cases from occurring.


Am J Transplant. 2005 May,5

Successful outcome of progressive multifocal leukoencephalopathy in a renal transplant patient.

Crowder CD, Gyure KA, Drachenberg CB, Werner J, Morales RE, Hirsch HH, Ramos E.

Department of Pathology, University of Maryland School of Medicine, Baltimore, Maryland, USA.

We ...

Has anyone experienced seizures while on the above. My daughter was diagnosed with Rel/Rem. M.S. at the beginning she would have a relapse and then feel well for a period of time. It was decided she should go on Beta Interferon started this in Sept. 04 went into rel. within a month of taking the drug and gradually got worse so bad now urine incontinent and cognitively very badly impared, She then had a very ...

I was diagnosed 13 years ago with MS..my mobility is limited and I use a cane to get around. My neuro and physical therapist felt that a scooter would be benefical for my daily living/social recreation..my health insurance has a denied a pre-authorization submitted by a DME company, their reason being that the scooter "is a transportation devise. It does not treat an illness nor serve a medical purpose. It is useful to a person ...

OK I am starting Betaseron tommorrow. I am a little nervous the only other thing I have taken was Tysabri...........enough said. I am interested to know how this stuff is going to make me feel. They are stepping up my dose so I am not going full dose to begin with. Will this help me feel better? I know probably not at first but given time will this help my quality of life? I have ...

Hi. I got this link sent to me and thought I'd check it out. I like what I see. I am a 32 yr old married mom of a 2 year old little girl and I was dx in 2000 with RRMS. I live in Chicago and have recently decided to begin treatment with Copaxone beginning in early May.

Looking forward to meeting other other young married mothers, such as myself, who can share in ...

Found this on the internet.

OxyPharma Announces Selection of Multiple Sclerosis (MS) Drug Development Candidate

STOCKHOLM, Sweden, April 5, 2005--Swedish drug development company OxyPharma has selected a candidate drug (CD) for the treatment of multiple sclerosis (MS) from its autoimmune diseases drug discovery program. The selected compound, Rob 895, is now ready to go into a full-scale pre-clinical program.

Rob 895 has been developed from OxyPharma's patented lead compound B-220, from which OxyPharma has developed ...

http://www.mssociety.org.uk/news_events/news/research/goatsdisapoint.html

http://www.davalinternational.com/markup/news-multiple-7-4-05.cfm

Make of these what you will. I'll leave them with you! :?

Sarah
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Ok, I'm new to this site, so I don't presume I can actually say much that would be of interest but here goes.

I recently checked Vanderbilt site and noted that S. Sriram will shortly be publishing the results of his pilot trial of antibiotics in RR MS.

So I called him. Of course he didn't answer, but the woman who did was friendly. I said I was SO looking forward to the publication because ...