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dad with MS

Hi Everyone,

My dad has MS so I have decided to base my third year Product Design Project around exercise and fitness for MS'ers. I have a quick and easy survey that i'd be really grateful if you would fill out for me.

http://www.surveymonkey.com/s.aspx?sm=0 ... rSFA_3d_3d

Thanks for your help!

Sarah
Read more : dad with MS | Views : 1462 | Replies : 3 | Forum : General Discussion


Cladribine (Mylinax)

In Dignan's recent post on phase III trial end dates, he mentioned Cladribine. I talked with the nurse coordinator at the MS center near me and asked about this drug. The information I got is that that phase III trials are finishing next month (as Dignan indicated), and then they are moving into an open label extension. I got no information about the data from the trials (i.e. effectiveness).

The drug does have fast track ...
Read more : Cladribine (Mylinax) | Views : 1729 | Replies : 0 | Forum : Drug Pipeline


Some good news

I have just saw the boys and Carrie and one lesion right now is no big deal.

In other cases they have seen the body pop off a couple of lesions, then it stops and seems to go dormant. They never have them again.

I am not showing anything but a bit more spasticity. My strength and dexterity was better but they all agree'd I was not ready for sedimentary work.

So my best ever ...
Read more : Some good news | Views : 1849 | Replies : 5 | Forum : Revimmune (cyclophosphamide or cytoxan)


Termination Appt. and What Did You Switch To

Hey gang,

I thought it would be interesting to have a topic where we post how the termination appointment went as well as what meds/treatment did you decide to switch to. My termination appointment is tomorrow so I will update you then.

Take care,
Mike
Read more : Termination Appt. and What Did You Switch To | Views : 13531 | Replies : 81 | Forum : Tcelna (Tovaxin)


Mitomycin and an MS Vaccine - EAE + Mice warning!

Vaccine Against Multiple Sclerosis? Mouse Experiment Yields Promising Results

ScienceDaily (Dec. 3, 2008) — Some 80,000 people in Germany suffer from multiple sclerosis – their immune system attacks and destroys healthy nerve tissue. Researchers at the Heidelberg University Hospital and the German Cancer Research Center in Heidelberg have succeeded in vaccinating mice with specially treated, autologous immune cells and preventing them from developing encephalitis, which is similar to multiple sclerosis in humans.

A protein of ...
Read more : Mitomycin and an MS Vaccine - EAE + Mice warning! | Views : 1627 | Replies : 0 | Forum : Drug Pipeline


Disability

I need some help with ss disability issues. I recently won a partially favorable decision, meaning I was awarded benefits, but none of the back pay because they changed my onset date to July 2008, rather than the actual date I became disabled June 2004. I have several questions:

1. Has anyone appealed to the federal appeal's council more than once with any success? :?

2. Is ...
Read more : Disability | Views : 1403 | Replies : 1 | Forum : General Discussion


MerryChristmas

Image
Read more : MerryChristmas | Views : 1398 | Replies : 4 | Forum : General Discussion


LDN AND QUESTIONS

I am a ppms'er and only been on LDN for approx 1 week. Still have spasticity and seem to want to rest a lot, is this normal? I also have a lot of pain still and just wondering if u can recommend a pain killer that won't interfere with LDN. I have asked my Dr and he said he would look into it but has not come back to me! My previous doctor said there ...
Read more : LDN AND QUESTIONS | Views : 3062 | Replies : 3 | Forum : Low Dose Naltrexone


United Health Care Bites

I've got a problem and I hope someone on here responds who has some knowledge of handling these types of situations. As some of you know, I just started Tysabri. So you have to enroll in the TOUCH prescribing program. They not only tell you about PML about a thousand times, but they also 'do your insuarance stuff'. This all happens before you get your first dose so you know what to expect and all ...
Read more : United Health Care Bites | Views : 1958 | Replies : 7 | Forum : General Discussion


Someone other than Chris

I had talked to one of the Docs at JH and I won't say who, because I didn't ask if I could say this lol.

They have had to treat someone else again. I have no idea who. I guess they are 3-4 months out. I have no idea how long they made it before they reactivated either.

I may have experienced some fatigue today. I had a crap night though so it's hard to ...
Read more : Someone other than Chris | Views : 3734 | Replies : 18 | Forum : Revimmune (cyclophosphamide or cytoxan)


 

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