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Ernst...have you got any help in Finland

Was just wondering if you have spoken to your doctors and if they were going to help your wife do any testing? My husband was tested with a doppler in Paris, but we haven't gotten any further yet.

Copaxone for SPMS?

Hello All,

I was wondering if anyone else heard the Copaxone was useful in treating Secondary Progrssve MS. I was at a dinner a couple of weeks ago, and I could've sworn that I heard the speaker, (a neurologist from Mpls), mention that Copaxone was now being used for SPMS.

I, unfortunately, was involved in the Dirucotide Phase III trial which means I had to stop all medications, (Copaxone and steroids), in February of last ...
Read more : Copaxone for SPMS? | Views : 2060 | Replies : 0 | Forum : Copaxone

CCSVI and Slovakia, Europe

Hi everybody!
I am new here. I have RRMS since 1996. I live in Slovakia, Europe.
I am 36 years old woman. I had chance to visit many places in the USA and Canada. My cousins live in Toronto and Vancouver. But I prefered the weather in California.

I have started to ask doctors in Slovakia about possible tests and treatment of CCSVI. My MS doctor did not know about it so I gave her ...
Read more : CCSVI and Slovakia, Europe | Views : 58904 | Replies : 384 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Bon qui qui ~ funny!

This is what fast food around here has become! funny stuff
Read more : Bon qui qui ~ funny! | Views : 1616 | Replies : 0 | Forum : Humor

1,000 hands

Read the paragraphs below FIRST before you watch the video. This is an awesome dance, called the Thousand-Hand Guanyin, which is making its rounds across the net. Considering the tight coordination required, their accomplishment is nothing short of amazing, even if they were not all deaf. Yes, you read correctly. All 21 of the dancers are complete deaf-mutes. Relying only on signals from trainers at the four corners of the stage, these extraordinary dancers deliver ...
Read more : 1,000 hands | Views : 1258 | Replies : 0 | Forum : Humor

Surgery - main results so far?

I quess many people with ms have red this forum, and especially the experiences after surgery. I quess there are some differencies among operated people --> some have got very good results quite fast and some with slower time? Of course, this is all very very new stuff.. so this is maybe too early to ask, but I quess some things can be said already.

I list some thoughts that I have about surgery effects ...
Read more : Surgery - main results so far? | Views : 1862 | Replies : 4 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Help! Which wheelchair!!!

Hi :D ,
I was diagnosed with a really aggressive form of PPMS last October, which meant that I went from Salsa queen to struggling on crutches in just 6 month. I intend to probably get myself of scooter for cruising around in my home town at some stage, but I still have extensive travel plans. So I’m looking for a foldable power wheelchair that I ...
Read more : Help! Which wheelchair!!! | Views : 1456 | Replies : 5 | Forum : General Discussion

burning, aching, feeling

Everyday now I get a burning, aching, tired feeling in my legs, getting worse near the end of the day. It feels like after you've worked out a lot but I've just been doing regular daily activity. Is this part of the 'MS fatigue' that I hear about or is that meaning sleepy tired? I'm wondering if exercising will help what I am experiencing or make it worse because they already feel like I've worked ...
Read more : burning, aching, feeling | Views : 3646 | Replies : 7 | Forum : General Discussion

Catfreak's CCSVI journey

I hope I am not jumping the gun.

Alexandra just called me and she has given my info to Dr Dake and she said I will be getting a call from him next week.

I will update when he calls.

Read more : Catfreak's CCSVI journey | Views : 3871 | Replies : 22 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


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