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My update!

Hi everyone,

Sorry, I haven't been around lately... (and geez, I missed a lot - especially the CCSVI stuff....gonna head over to that board in a minute).

I came home from my second round on May 26th. The treatment went off without a hitch. Once again, I could swear that chemo wasn't in the IV, as I didn't get sick at all. The first night, after the treatment, I was almost nauseous - but not ...
Read more : My update! | Views : 4341 | Replies : 3 | Forum : Revimmune (cyclophosphamide or cytoxan)

High Hopes on Pacific Coast

Hi everyone...
I just got off the phone with Dr. Dake. He asked me a few questions about my medical history, and gave me a high-level overview of the steps to come next. He said he'll be out of town for the next few days and asked me to contact Alex to work on selecting a date for the procedure.

I feel like I just won the lottery! ...
Read more : High Hopes on Pacific Coast | Views : 21290 | Replies : 94 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Improved model of motor nerve system

Researchers design first model motor nerve system that's insulated and organized like the human body

Advances in lab-grown motor nerves can lead to cures for diabetic neuropathy and help further understanding of multiple sclerosis and related conditions

Amsterdam, 21 July 2009 - In the July issue of Biomaterials, published by Elsevier, researchers from the University of Central Florida (UCF) report on the first lab-grown motor nerves that are insulated and organized just like they are ...
Read more : Improved model of motor nerve system | Views : 1187 | Replies : 0 | Forum : General Discussion

CT Venography Scheduled for Thursday

After consulting with Dr. Dake, my PCP has scheduled me for a CT venography of my jugular and azygous veins, this Thursday at 9 AM. I believe Dr. Dake spoke to the radiologist at the hospital where I'll be having the procedure done, to fully brief him on what precise protocols need to be followed.

I spoke with Dr. Dake, and he wants me to send him a disk with the results. Should be interesting...

It's a go.

Read more : It's a go. | Views : 1460 | Replies : 3 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Second round of infusions start tomorrow

Hey everyone,
I start my second round of campath tomorrow. I can't believe it has been a year already. Only three days this time. I hope everyone is doing well. I am anticipating an uneventful few days of sitting in the office with an IV in my hand/arm. I will post anything of importance over the next couple of days.
Read more : Second round of infusions start tomorrow | Views : 4434 | Replies : 17 | Forum : Campath (Lemtrada, Alemtuzumab)

Anyone else get a rash?

I was lying around today and was just constantly itching my head around the hairliine and also my lower torso. After a couple of hours of this I decided it was more than just dry skin so I looked in the mirror. I have an ever so light rash that I can hardly see, but it feels kind of like barely raised chicken skin; ie, can't even feel unless touching very lightly. It's probably nothing, ...
Read more : Anyone else get a rash? | Views : 5510 | Replies : 24 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Steve's Turn: waiting for the call

All the records and other documentation have been sent to Alexandra, we've already had our introduction by phone, and we've been exchanging e-mails. Now, we're just waiting for the call.

Can the wheels of healing be more excruciatingly slow??? Of course they can be---like for healing that's never dreamt of, like for healing that never comes.

New and ready to learn

Hello everyone. I stumbled on this site and already i am grateful that I did. Everyone seems very welcoming and knowledgable on the subject. I hope to learn more from everyone and hopefully get a grip on this MS stuff. I'm newly diagnosed.
Read more : New and ready to learn | Views : 1489 | Replies : 2 | Forum : Introductions

In the Army and New to MS

Wow. Did not expect this at all after 5 years in. I had a migranal stroke, which lead to my whole left side numb and also messed up my right side as well (Couldn't write my name !!)) I was like that for a week. I kept going back to the doctors and they kept making light of my situation. I finally got in to see a neurologist, and they did several MRI's with and ...
Read more : In the Army and New to MS | Views : 1549 | Replies : 8 | Forum : General Discussion


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