HELLO ALL :D

WAS WONDERING IF ANYONE IS ONT BIRTH CONTROL PILL WHILE ON AVONEX, I KNOW WITH ALOT OF MEDS, IT MAKES THE PILL LESS EFFECTIVE, WAS WONDERING IF ANYONE HAD ANY "INCIDENTS" WITH KNOWING? THANKS GUYS

I've done a bunch of research on LDN as some are you are familiar with, see http://LDNers.org . I am still doing great on only LDN for 1 yr now, the only other therapy I am using is physical therapy 2x week, and pulsed electromagnetic field (PEMF) technology. I've been testing this out for 8 months before I report results, but I am very pleased.

PEMF can provide relief ...

As I mentioned in the other thread that I was going to do, I talked with John Lauerman at Bloomberg.

It was painless, and pretty interesting. (You know me, though, being the legal "talker" that I am, boy was it hard to condense it all down!) :wink:

In any event, I got in as much as I could for the benefit of MS and those afflicted, but ...

So what's next? Our Neuro, when trying to tell my wife to get on Tysabri, more or less said that we now know that the interferons weren't much use. Luckily, she got pregnant, so the decision was postponed until the fall of 2005 after birth.

Now what? I think you'll see a lot of patients go back their neuro's and demand something off label - statins or abx's. Which in a way may be a ...

My husband and I are seeing a social worker to help us talk out our feelings about how my MS effects our relationship and how to cope in the future with changes that come about. Our discussions help us to broach topics and open up topics for discussion. We have a very open & loving relationship and our mediator helps us to discuss things we hadn't thought to put into action. We were referred to ...

I had 3 infusions of Tysabri since approval by the FDA. I was due for the 4th next Tuesday - 3/8. I am disappointed that the drug has been suspended (temporarily?). My infusions were beneficial to me. I had beneficial reactions during my infusions. About 20 minutes into the infusion, my left foot would straighten and overall pain would diminish. My posture would improve after the infusion. My nurse who administered & observed my infusion ...

My neuro has had me on CellCept, which suppresses the immune system, since August to help the Avonex which seems to not be enough as I keep having relapses and progressing disability. And now I've had one dose of Tysabri. Does the immunosuppressant increase the risk of problems with Tysabri (seems like the answer is yes) or with just Avonex alone? I've already asked and been allowed to stop the monthly pulse steroids she had ...

Dear all,

The NMSS review of research in 2004 concluded that:

'These and other leaps forward have made 2004 a momentous year in the fight against MS'.

3 months later - not so momentous after all.


The researchers / drugs companies / national societies build us up to knock us down.

What's next:

Aimspro results due mid year. If effective it will be a few years before approval / use. ...

Did anyone see this? I got this from www.webmd.com

Multiple Sclerosis Drug Suspended After Death
New MS Drug Tysabri Pulled From Market

Feb. 28, 2005 - The recently approved multiple sclerosis (MS) drug Tysabri has been voluntarily pulled from the market following reports of one death and one serious side effect in patients treated with the drug.

In cooperation with the FDA, the drug's makers, Biogen Idec and Elan ...

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Monday February 28, 8:43 am ET

Biogen Idec, Elan Suspend Use of Tysabri After Fatality in Clinical Trial


CAMBRIDGE, Mass. (AP) -- Biotech companies Biogen Idec Inc. and Elan Corp. reported Monday that they have suspended marketing and clinical trial use of multiple sclerosis treatment Tysabri and alerted doctors to stop using the treatment.
Biogen Idec shares closed Friday at $67.28 on the Nasdaq and were down $27.79, or 41.3 percent, to $39.49 in ...