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July 6th, Cali bound!

Hi everyone,

So, I spoke with Dr. Dake and have provisionally agreed to see him on Monday 6th July.

He is a very interesting guy to talk to, very open minded and positive about all this.

He has cleared his summer to accommodate any MS patients who contact him.

Houston has been NASTY with record heat for the past few weeks. Mel has really struggled, finally succumbed to provigil, felt better for a day or ...
Read more : July 6th, Cali bound! | Views : 1894 | Replies : 9 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Sticky Suggestion

Hi guys,

I've been lurking on this forum for a few weeks now, trying to educate myself on CCSVI, and trying even harder to locate and keep up with the post-op results of the venous stent insertion patients. Those post-op results are exactly what potential patients and physicians are looking for when considering whether or not to pursue treatment. Unfortunately, they are rather tough to find.

It would be very helpful if each insertion patient ...
Read more : Sticky Suggestion | Views : 1992 | Replies : 5 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)

reading material-calling all elders

I've noticed that the books and articles written for patients with ms say the same things over and over ..
Then I try to read what the neuros are reading and I can't figure out what they are saying, that is if I can get into their websites.
Anyone have any books, websites, that aren't written for village idiots?
I've already been through everything published by the nat ms society. Like I said...its the same ...
Read more : reading material-calling all elders | Views : 1410 | Replies : 3 | Forum : General Discussion


I read revimmune doesnt work with people who dont have any enhancenced lesions. Has anyone recently had this treatment who has not shown enhanancement for years?

My MS has been mild and I have had it for years, but recently I been having new symptoms. Tingling, burning muscle pain, just no energy, so tired I feel like someone gave me a sleeping pill etc...

My last MRI has been stable, like it always has been ...
Read more : question | Views : 4494 | Replies : 10 | Forum : Revimmune (cyclophosphamide or cytoxan)


I have had the worst two weeks of my life - PERIOD. I hurt my back roughly two weeks ago after I realized my lower body was getting fairly weak. I went to the gym and did a lot of exercises to strengthen it only to find I had lost a TON of muscle strength in a month. I had been in a car accident three months prior and blamed it on this.

Well my ...
Read more : MS.... MAYBE? | Views : 1390 | Replies : 3 | Forum : Introductions


Read more : Remyelination | Views : 1250 | Replies : 1 | Forum : General Discussion

day 2 done

well today went much faster as the pharmacy actually sent the meds up on time. i was just really sleepy the whole day. around hour three of the campath i was kinda nauseated, but just decided to go to sleep instead of getting anything for it. i didn't want to have to hang around any longer than necessary to be observed... funny thing was... my sister asked me when i get home if i was ...
Read more : day 2 done | Views : 1627 | Replies : 2 | Forum : Campath (Lemtrada, Alemtuzumab)

Interview with Dr. Zagon re: LDN

Listen to a radioblog interview on the Mary Bradley show with Dr. Zagon. If you are using LDN, I think you will find this very informative (or anyone thinking about starting LDN )- There was a technical problem at one point in the interview - stay online because it does resume.
Dr Ian Zagon, Distinguished University Professor from The Pennsylvania State University will share his cutting edge LDN research and explain why his work is ...
Read more : Interview with Dr. Zagon re: LDN | Views : 2892 | Replies : 0 | Forum : Low Dose Naltrexone

4th Infusion over and MRI Results

I went yesterday for my 4th Tysabri Infusion and also had my 1st MRI since starting Tysabri.

Infusion went uneventful except for the great conversations I have with all the other Tysabri patients. So many people with MS - it's scary to see young men and women with small children going through MS. At least my children are grown and on their own. My heart breaks for these families.

Anyway, my MRI showed no change ...
Read more : 4th Infusion over and MRI Results | Views : 1901 | Replies : 2 | Forum : Tysabri (Antegren or Natalizumab)


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