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Goodbye Rebif - Hello Tysabri

Went to my Neuro yesterday for a check-up after 9 months on Rebif.

I have tried to be upbeat and positive but some days I just want to cry. I have a constant fever and I am so fatigued I can hardly move. Well he took one look at me yesterday and said it's time for a change.

My options as far a drug therapy are:

Rebif at 1/2 dose .22mcg ...
Read more : Goodbye Rebif - Hello Tysabri | Views : 3097 | Replies : 4 | Forum : Rebif


Arkansans new on site.

My wife has MS but she is a Luddite so I handle the computer stuff. We recently (3 yrs) moved from Las Vegas to 15 acres in very rural northern Arkansas. Best move we've ever made.
If you look under the Betaseron forum, you'll find some more specific information about the Betaseron we have available as Pamela had to quit that option just as she had received 3 brand new boxes each containing 15 single ...
Read more : Arkansans new on site. | Views : 1471 | Replies : 4 | Forum : Introductions


Betaseron Available / 45 single use packs

Hi, I'm a newbie to the site. My wife is the one w/MS but she is a confirmed Luddite so I do the computer stuff. Wish we'd heard of/found this site long ago. Anyhow, to get to the point. She'd been on Betaseron for about 14 years. Unfortunately over the last 2 or 3 years the tissue beneath the injections sites suddenly and completely broke down & it was no longer a viable treatment.
She ...
Read more : Betaseron Available / 45 single use packs | Views : 3578 | Replies : 0 | Forum : Betaseron


Eye Issue

I'm having an attack on my left eye now :o(. The eye sight is dimmer and the contrast is bad. My doctor is away and would only be back next week. My predicament is wheather I should just straight away take prednisolone (I have my supply with me) rather than wait till my doctor is back or weather thru this relapz (not sure if it will get ...
Read more : Eye Issue | Views : 2531 | Replies : 5 | Forum : Rebif


What are the rules for medical articles?

Situation

I find an article out of a journal somewhere and I print it and link to it in a later post. Then one day I find that the link doesn't work anymore. So there is no article there when folks go to see the support for the observations I've posted about.

Rules?

I have a copy of the article that I had previously linked. But, I can't clearly find a new copy of the ...
Read more : What are the rules for medical articles? | Views : 1582 | Replies : 0 | Forum : General Discussion


1 gram prednisone oral in lieu of IV solumedrol

Mr. Neuro just gave me an Rx for 1g oral prednisone x 3 days. this is in lieu of the IV steroids. IT was done this way for a number of reasons one of is that I just had a course of infusions for the Campath trial and they had a tough time with the external lines because my skin is "tough" and my veins like to roll. Whatever -

Anyway, 200mg prednisone 5 X ...
Read more : 1 gram prednisone oral in lieu of IV solumedrol | Views : 3343 | Replies : 12 | Forum : General Discussion


Re-dosing

Hi Everyone,

Well, it's a go. I'm on schedule to re-dose at the end of April. Still not 1000% positive of this choice - mainly b/c pulling it all together seems like much more of a hurdle this time. I may have to hire "help" to be with me. :(

I had a MRI on Friday. It did not show any enhancing lesions and the previous one ...
Read more : Re-dosing | Views : 2089 | Replies : 7 | Forum : Revimmune (cyclophosphamide or cytoxan)


Rough draft

Please comment so I can do the necessary editing. After I get your-all's approval, I'll be sending this to Dawn McGuire and Donna Rill of Opexa and Edward Fox of that central TX MS Center. Here goes:

Four months ago, when Opexa Therapeutics pulled the plug on Phase II-B of Tovaxin, a lot of people were shocked and very unhappy. Especially when some of them—us, rather—had, over the course of the study, become cheerleading advocates. ...
Read more : Rough draft | Views : 2490 | Replies : 10 | Forum : Tcelna (Tovaxin)


Alcohol and Rebif

I have yet another question about Rebif... I heard that you cannot consume beer while taking Rebif. I went to their website and couldnt find anything on that. Does anyone know? I am not an acoholic by any means, however I like to drink beer on my days off. I am trying to impact my life as little as possible. So, from what I was told, you can drink beer on copax but not on ...
Read more : Alcohol and Rebif | Views : 7684 | Replies : 4 | Forum : Rebif


at my wit's end

Hello. I am a 29 year-old woman living in Israel with secondary progressive MS (diagnosed with MS when I was 20) that has tried every treatment there is possible (as far as I know).

This includes (in chronological order):
Avonex
Betaseron
Copaxone
Rebif
Hemonoglobin
Cytoxan
Tysabri
Novantrone

Currentlyl, I am in a wheelchair, and in a recent visit to my neurologist, he told me that he's not sure what I should try next, because, as ...
Read more : at my wit's end | Views : 5259 | Replies : 19 | Forum : Regimens


 

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