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I just found out today this is the name for very bothersome burning, freezing and stabbing pains in hands and right arm. They call it "tactile hallucination", but to me it is very real and painful and upsetting. I've tried Neurontin and Lyrica and both seemed to work initially, but then stopped working. Have had this since November, 2007. Does anyone have any advice, any recommendations, know of anything that eased the "discomfort"? Many thanks, ...
Read more : dysesthesia | Views : 1412 | Replies : 0 | Forum : General Discussion

Blech, snort, gag, aka Bill The Cat

Exactly how I feel. Just had to say I'm in the hotel.

That's it, I'll talk to you in a month.

Wife is updating my site daily.
Read more : Blech, snort, gag, aka Bill The Cat | Views : 1893 | Replies : 3 | Forum : Revimmune (cyclophosphamide or cytoxan)

Impaired Renal function in patients with progressive MS ... 59/11/1799

I would like to suggest that MS patients make sure their glomerular filtration rate (GFR) is satisfactory to excrete gadolinium dye used in MRIs, BEFORE they have an MRI with enhancement.

Since kidney disease is often not diagnosed until it is very far along, a slightly compromised system could be affected by gadolinium. A simple renal panel test will give you an idea. We'll have my ...
Read more : Impaired Renal function in patients with progressive MS | Views : 1427 | Replies : 1 | Forum : General Discussion

Aimspro in France ?

Can we try it in France ?
Read more : Aimspro in France ? | Views : 3443 | Replies : 0 | Forum : Aimspro

Tysabri and progressive MS

I have a progressive MS and I 'm really sad when french neuros said to me Tysabri is not for you.
Is there anboby treated with Tysabri and having progressive form ?

Help !
Read more : Tysabri and progressive MS | Views : 3501 | Replies : 8 | Forum : Tysabri (Antegren or Natalizumab)


Here's another link to an AAN abstract. This one is a study of lipitor (atorvastatin). It looks promising. Still looks to me like it's not beneficial to combine a statin with an interferon. ... 8L_P02.145
Read more : lipitor | Views : 1820 | Replies : 7 | Forum : Drug Pipeline


Hi All,
In doing some Internet research focusing on the MS/Sinusitis connection, I stumbled on some web articles about Serrapeptase. Like all things at this point, I am always initially skeptical. Does anyone have more info about this?
Read more : Serrapeptase | Views : 3369 | Replies : 5 | Forum : Natural Approach

If you're running out of injection sites....

I've been on Copaxone 5 years (or is it 6 :oops: just can't remember!). I took a year off to have my son who is nearly 4 weeks old now.

I have started back on Copaxone last week.

Just to say, before I took the break from Copaxone I had run out of usable sites because of lipoatrophy and hard lumps. It was getting very hard ...
Read more : If you're running out of injection sites.... | Views : 2709 | Replies : 0 | Forum : Copaxone

Mamahawk March 2008

I'm trying to remain calm.

I've been slacking. I admit. And now I guess I'm paying for it and need to get back on track ASAP. Any help appreciated.

For the past 18 months, I've had no symptoms - occasional tingling in the feet and lower legs during a flagyl pulse - but felt great with no issues in between. Last summer - - because I was feeling SO good... and was so busy, ...
Read more : Mamahawk March 2008 | Views : 5359 | Replies : 21 | Forum : Antibiotics

I'm so upset right now

....and just need to vent to my friends on this website.

I was just approached (or should I say confronted) at the grocery store by this woman who asked "are you REALLY handicapped?" (because I parked in the handicapped parking)

My response was "well yes, I have multiple sclerosis...and what is your problem, are you just rude?" She responded..."really?" and my response was "REALLY!"

WTF, where do these people get off?

Thanks for listening.
Read more : I'm so upset right now | Views : 2484 | Replies : 12 | Forum : General Discussion


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