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Ok...I checked in with Mary Brown again today and she was like: "Ohhh..."

Apparently I got lost-track-of at some point, which is why nobody ever called me back to reschedule the appointments I had to cancel back in August (due to the need for an emergency wisdom-teeth extraction).

So it looks like Mary is going to check with Dr.s Kerr and Brodsky and see if she can get me appointments sometime this summer. (I am ...
Read more : Progress...possibly. | Views : 1747 | Replies : 2 | Forum : Revimmune (cyclophosphamide or cytoxan)

Campath feedback please

Hello all,

I am new to the Campath forum but some of you may recognize me from the Tovaxin forum. I want to for some feedback from you folks, especially the those who have gone through the Campath treatment. Below the paragraph with my questions is a description of my situation if that helps with your input.

After the Tovaxin study was shut down, the Campath folks finally decided to let us Tovaxin folks into ...
Read more : Campath feedback please | Views : 5177 | Replies : 17 | Forum : Campath (Lemtrada, Alemtuzumab)

Doctors are rubbish!!!

Hi all,

I've not been diagnosed with anything yet (and this isn't another "do I have MS?" post!), but for a few months I've been back and forwards to my doctor with a list of symptoms (numbness, weakness, pins and needles on left side, extreme cold in hands and feet, memory problems, difficulty swallowing...)

Doctor initially thought some kind of peripheral neuropathy(!), and put me on NSAIDs for a trapped nerve. Those didn't work, and ...
Read more : Doctors are rubbish!!! | Views : 2669 | Replies : 14 | Forum : General Discussion

Fetal stem cells generate brain tumors

I don't know if this has been posted previously, however, this article might be of interest to folks watching the development of stem cell therapies...

Fetal stem cells trigger tumors in ill boy

By Lauran Neergaard
AP Medical Writer

WASHINGTON (AP) -- A family desperate to save a child from a lethal brain disease sought highly experimental injections of fetal stem cells - injections that triggered tumors in the boy's brain and spinal cord, Israeli ...
Read more : Fetal stem cells generate brain tumors | Views : 1252 | Replies : 1 | Forum : Stem Cells


Has anyone ever heard of glycothymoline? I have a friend who is reading about Edgar Casey and it stated that Glycothymoline is supposed to relieve MS symptoms. I have found it online as a mouthwash for about ten dollars. Is it worth trying?
Read more : Glycothymoline? | Views : 2050 | Replies : 14 | Forum : General Discussion

MS Neurologist Rating Website

I came across a very interesting website that I think has a tremendous potential to be a very valuable resource for the worldwide MS community. It's a place were you can post info, both positive and negative, about MS neurologists you've had experiences with. Of course, you can also read what others have posted about a neuro you might be considering seeing.

It would be great if this could become a comprehensive database that could ...
Read more : MS Neurologist Rating Website | Views : 1261 | Replies : 0 | Forum : General Discussion

w-five last night on tv

Read more : w-five last night on tv | Views : 1797 | Replies : 10 | Forum : General Discussion

Allergy to mannitol?

I am a longtime thisisms fan but this is my first contribution. I am very grateful to the regular contributors who have helped me through many struggles along my journey.

I was diagnosed 5 years ago and was on Copaxone successfully up until a few months ago when I began to have an allergic reaction in the form of hives. It took a long time for me to associate the hives with the Copaxone because ...
Read more : Allergy to mannitol? | Views : 2597 | Replies : 10 | Forum : General Discussion

general anaesthetic and MS

Hi guys, just curious after reading a few posts, is there a problem with a person who has MS to go under General Anaesthetic?

I know that I am not diagnosed yet but after having my last general anaesthetic in November it took a while to get me back steady and strong on my feet.
I was so weak and walking snail pace, couldn't work out why. It continued for days and days.
It was ...
Read more : general anaesthetic and MS | Views : 1643 | Replies : 1 | Forum : General Discussion

having kids

i have been on copaxone treatment for about 6 months
and my g/f and i are thinking about having kids
i just want to know if anyone is on copaxone and had kids before
Read more : having kids | Views : 2086 | Replies : 3 | Forum : Copaxone


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