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New, Betaseron, and depressed

Hi. I'm new, just started Betaseron with Betaject, my belly is bruised and my mood is crappy. I read all these technical posts and I think 'what'? Do I really have this? I don't know what my vitamin count is, don't recall how many lesions I have (memory issues), don't get tingling or burning in my legs, didn't get a baseline liver enzyme count...Flailing around...
Read more : New, Betaseron, and depressed | Views : 1422 | Replies : 3 | Forum : Introductions

Just diagnosed...

Hi All-

I am Kevin in Colorado and on Tuesday received the word that I have RRMS. Have had 2 bouts of optic neuritus and currently have left eye double vision with severe numbness on the entire right side for 4 weeks now. MRI showed 3 lesions.

While I am completely overwhelmed with information, and the decisions for therapy, I am eager to 'Have MS' and not let MS 'have me.'

Since I am not ...
Read more : Just diagnosed... | Views : 1912 | Replies : 4 | Forum : Introductions

Copaxone and Lipoatrophy - when to stop?

for those of you who don't know me, been dx with MS 10 years. First 5 years frequent severe relapses, classified as an "interferon failure" on Rebif after 5 years. Switched to Copaxone against my neuros advice (he wanted me on Mitoxantrone but I said no because I wanted children) and to his surprise I have done fabulously well on Cop. I've had maybe 1 relapse a year in the last 5 years, very ...
Read more : Copaxone and Lipoatrophy - when to stop? | Views : 2048 | Replies : 6 | Forum : General Discussion

First MS hospitalisation

It would appear that tuesday/wednesay's fatigue was building up to something bigger. On thursday things were feeling 'off', friday I took a half day at work so I had some relax time and by the evening both feet and my right leg were numb and weak, along with right arm weakness & increased difficulty walking.

Because it was both feet I was worried so I called the out of hours doctors - they admitted me ...
Read more : First MS hospitalisation | Views : 1970 | Replies : 10 | Forum : General Discussion

GM atrophy related to longterm (20yrs) disability

Gray matter atrophy is related to long-term disability in multiple sclerosis.
Ann Neurol. 2008 Jun 20

Nuclear Magnetic Resonance Research Unit, Institute of Neurology, University College London, United Kingdom.

To determine the relation of gray matter (GM) and white matter (WM) brain volumes, and WM lesion load, with clinical outcomes 20 years after first presentation with clinically isolated syndrome suggestive of multiple sclerosis (MS).

Seventy-three patients were studied a mean of 20 years ...
Read more : GM atrophy related to longterm (20yrs) disability | Views : 1364 | Replies : 0 | Forum : General Discussion

IV steroids protocol success in PPMS

Its only a small cohort of 11 PPMS patients but still encouraging because disability got actually better over a treatment period of 11 years.

The full text of the study can be found here.

Read more : IV steroids protocol success in PPMS | Views : 4727 | Replies : 13 | Forum : Drug Pipeline

Curious about a failed physical & MRI

Hey there, I am curious as to why my neurologist wants an MRI? I guess that I failed the physical, so what does that really mean?

I have migraines, fatigue, body hurts to touch (doc said it is like fibro...but not) I have morning stiffness, and after any activity stiffness. In the last year I have lost vision and in the past had a "curtain" of gray over vision on hot days. This year I ...
Read more : Curious about a failed physical & MRI | Views : 1836 | Replies : 7 | Forum : General Discussion

Greetings from an Italian researcher

Hello everyone. Let me start by saying that I do not have MS. But I am a researcher, working on immunology for years. I am not a clinician and I've always conducted my research on rodents. I have to admit to you that I was in the middle of a crisis: experiments not working, which make me wonder why I even do research at all. Then I thought of patients, people that may benefit from ...
Read more : Greetings from an Italian researcher | Views : 1920 | Replies : 8 | Forum : General Discussion

Interesting MS/stem page

Surfing around and found a page with a bunch of interesting stem stories, some alread in this forum, some not but the page is a fun read anyway. ... ageid/1405

Read more : Interesting MS/stem page | Views : 1760 | Replies : 0 | Forum : Stem Cells

Just found this article. ... sis_study/

Has this been posted yet? I see the date line is July 9, 2008.

Opexa Wins Positive Review for Phase IIb Multiple Sclerosis Study

Posted on: Wednesday, 9 July 2008, 06:00 CDT

Opexa Therapeutics has announced that the data safety monitoring board overseeing the on-going Phase IIb clinical study of Tovaxin has recommended that the trial continue unmodified.

This positive recommendation follows a regularly scheduled meeting ...
Read more : Just found this article. | Views : 2081 | Replies : 5 | Forum : Tcelna (Tovaxin)


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