Hi -

I've just started experiencing heaviness and burning in both legs. I'm assuming it has to do with my MS. I was dx'd 5 years ago after some visual and hearing problems. To date I haven't had any spinal lesions on my MRI - perhaps that is changing :(

Does anyone else have this symptom and if so how to they manage it? I'm going away ...

Love those smaller needles! I guess it doesn't take much to make me happy.

Although the 29 gauge needles are only about 15% smaller, they have made a world of difference. At one point I stopped using my upper arm sites due to large red marks with severe itching and some swelling.

Since I've been using the smaller needles, the reddened areas are at least 50% smaller, some barely noticable, yea!!

I still inject manually, ...

Hi! I,m a new member. I've had MS for about 17 years. I'm not able to walk without the use of a walker for short distances or my scooter for longer ones. Question, Has anyone been on Tysalri and found any improvements in their mobility? My Dr is trying to get me approved for it.

I just started Refib two weeks ago and things have been going really well. I don't seem to be having any real flu-like symptoms and the shots are much easier to deal with than I thought they would be. However, I'm waking up the day after the injections with a backache that won't go away with ibuprofin or alieve. I'm wondering if this is common and if anyone has found anything to help it.

This is not an endorsement of any kind of self medication. But let's face it - it's there as an option. One could always order LDN or minocycline from overseas over the web.

Here's a poll...

Hi All,

As far as I am aware there have been only 137 people who have
responded to the survey set up by The LDN Research Trust. Hundreds
of people worldwide take LDN, so why is there so few of you filling
out the form? The Trustees have put a lot of time and effort into
trying to get LDN into trial and responses like this make their work
even harder. Now,we would ALL like ...

Hello all,

I've been reading this site since I was diagnosed with MS in October 2004. I thought I would finally intoduce myself and try to find out some practical answers to my questions.

My symptoms were/are numbness/tingling from the abdomen down through both legs. My right knee was also fairly weak and unstable. I had painful cramping feelings in my feet as if my toes were tied in knots. Initially, the docs thought I ...

I am going to a dual therapy approach to my PPMS starting in 2/05. It is going to be a combination of Novantrone and a daily injection of Copaxone for 6 months (until I get stabilized). Of course, I realize there is a lifetime limit I can have of Novantrone.

Has anyone done a similiar combo therapy?

Hi there,
Just wanted to mention that there is an update to the previous message regarding the LDN Conference that was cancelled a few months back. It is now rescheduled for this June 11th. See the update info in the post labeled LDN Conference. Hope to see you all there....{{{hugs}}}.

This recent publication from the MS Trust in the UK entitled Exercises for people with MS by Liz Betts may be helpful to some people.

http://www.mstrust.org.uk/downloads/exercises.pdf