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Hi from Cali


Hello - I just found this site and thought I would check it out.

I've been dx'd w/RRMS since July of 03; according to my Neuro - he believes I had episodes dating back to 1994.

I spent a few years with 'mysterious' symptoms that would appear and disappear and the docs could never figure it out. Some of the possible dx were Petite Mal Seizures, Tendonitis, Rheumatoid Arthritis, sore muscles, stress and I'm sure ...
Read more : Hi from Cali | Views : 1337 | Replies : 3 | Forum : Introductions


Running out of options - could use some advice!

New to this forum - diagnosed nearlly 8 yrs ago - relasping/remitting... progressing...
Avonex, Copaxone, Beta Seron, & Rebiff slowed things done some - but the side effects were not tolerable. Still pulsing IV solumedrol but it's not as effective as it used to be...
Need to make a change but am terrified of the options - 1)Chemo or 2) Tysabri...

I am at home now (on disability) with a 2 yr old... looking for ...
Read more : Running out of options - could use some advice! | Views : 3552 | Replies : 21 | Forum : Introductions


To re-dose or not...?

So, that is my question!

Dr. Kerr told me to re-dose, sooner than later, as I have some symptoms.

My last MRI did not have any enhancement (this was in March. December had enhancement). No word that the lesions are shrinking or anything.

I'm just not sure what to do. I wish it was local and hate that I can't have a doctor here in Los Angeles do this with me.

I also hate that ...
Read more : To re-dose or not...? | Views : 2112 | Replies : 2 | Forum : Revimmune (cyclophosphamide or cytoxan)


Almost 12 months on from HiCy - MRI Results and Round Up

Hello All,

Mel's first dose of HicY was April 24th 2008.

So here we are nearly a year on and she had her latest MRI and all is good, well all is excellent.

No enhancing lesions.
No spinal lesions.
No black holes.
Stable and reduced existing lesions.

No signs of activity at all.

The best news is this is the second MRI that states no black holes, when diagnosed she had two black holes (and ...


Validity of reflex tests by nuros and specialists

Hi all,
I am wondering how many of you out there have had the usually touchy feely tests done by nuros and specialists and come back clear. This may seem like a strange question but i have had a few of these tests done over the last few years and each time they say there is nothing abnormal with my senses and reflexes. Therefore i seem to keep getting told there is nothing medically wrong ...
Read more : Validity of reflex tests by nuros and specialists | Views : 1563 | Replies : 3 | Forum : General Discussion


Gluten Free Diets

For those on the Best-Bet or gluten free diets, do you have substitutes for bread and pasta? I've been considering this diet, but I tend to eat a lot of sandwiches and make pasta often, since it's so easy.
Read more : Gluten Free Diets | Views : 4290 | Replies : 14 | Forum : Diet


I did High Dose Cytoxan Treatment in North Carolina.

I am so glad to find this forum! I received my final dose of high dose cytoxan on March 19th and have been home for two weeks. I am a 43 year old woman diagnosed with RRMS in '94. Progressed to SPMS in '00 and have experienced slow disability (especially gait) since then. Progression really picked up about three/four years ago and none of the conventional treatments helped.

My neurologist (Dr. Ugo Goetzl of Raleigh ...


urinary tract treatment?

This sounds promising:


Effect of craniosacral therapy on lower urinary tract signs and symptoms in multiple sclerosis.

Complement Ther Clin Pract. 2009 May;15(2):72-75.
Raviv G, Shefi S, Nizani D, Achiron A.
Urology Department, Sheba Medical Center, Tel Hashomer, Affiliated to the Sackler School of medicine, Tel Aviv University, Israel; Multiple Sclerosis Center, Sheba Medical Center, Tel Hashomer, Affiliated to the Sackler School of medicine, Tel Aviv University, Israel.

To examine whether craniosacral therapy improves lower ...
Read more : urinary tract treatment? | Views : 1531 | Replies : 2 | Forum : General Discussion


A Caregivers' perspective

It was July of 2006 when I found my wife unable to move and in need of immediate medical attention. I had to carry her to the living room and call 911.

We weren't sure if it was a stroke or what had happened.

The Neurologists were called in and the initial diagnosis was Guillone Barré.

Various treatments were given, including a Plasma replacement treatment that she "bottomed out" on, and after a number of ...
Read more : A Caregivers' perspective | Views : 1488 | Replies : 12 | Forum : Introductions


odansetron

Hi,
Have any of you had any experience with the anti-emetic drug odansetron? I went into hospital in Dec for a minor op and was given Odeansetron via IV after the op to prevent sickness. What it actually did was improve all my MS symptoms (i.e l'hermittes). I then went and asked the nurse what I was given and has it ever been used for anything else other than sickness he had no idea but ...
Read more : odansetron | Views : 1137 | Replies : 1 | Forum : General Discussion


 

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