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Going on LDN

I have made my mind up to go on this. I am in England and have found a Dr who will let me have this. There is an inital fee then I pay for a 1 month suppy. I have nothing to lose I feel and have stopped totally the Avonex as the side-effects were like entering hell and being spat out again.
Had another ropey week and am hoping so hard that this will ...
Read more : Going on LDN | Views : 1255 | Replies : 2 | Forum : General Discussion


My new MRI

Some lesions are now completely gone with all of them healing now.

Seems to be working on the AI side of MS.
Read more : My new MRI | Views : 2425 | Replies : 1 | Forum : Revimmune (cyclophosphamide or cytoxan)


CCSVI patients' log

Hoping each patient can post the following information in this format, so we can keep track here. Please go ahead and add any other pertinent info Marie, Sharon, Holly and the gang....

patient: Jeff
diagnosis: RRMS 3/07 (at age 43)
lesions: multiple brain lesions, 20 or so, small, round and scattered ("Steiners' splashes")
one lesion on cervical spine
symptoms: fatigue, bladder issues, depression, occasional numbness and tingling in feet, leg pain, heat intolerance
EDSS: 1.5 ...
Read more : CCSVI patients' log | Views : 36677 | Replies : 168 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


Vertigo-away

Anyone experience this annoying little symptom? The first time I had it, it lasted for 24 hours and it was really just annoying and didn't cause any other issues.

Yesterday it popped up again. My son had an assessment test for his new school next year and I ended up having to run to the restroom to vomit. The only positive is that I made it to the bathroom. I ended up vomiting 5 times ...
Read more : Vertigo-away | Views : 2079 | Replies : 12 | Forum : General Discussion


Immun-regulation using a diabetes drug

It seems they are currently thinking more about employing this for cancer treatment and vaccination but might also have some importance for autoimmune disseases:
http://www.sciencedaily.com/releases/20 ... 131433.htm

--Frank
Read more : Immun-regulation using a diabetes drug | Views : 1274 | Replies : 0 | Forum : General Discussion


CCSVI- just the facts, ma'am

CCSVI, Just the facts, ma’am

1. What is CCSVI?

Chronic cerebrospinal venous insufficiency... it’s a chronic (ongoing) problem where blood from the brain and spine has trouble getting back to the heart. It’s caused by stenosis (a narrowing) in the veins that drain the spine and brain. Blood takes longer to get back to the heart, and it can reflux back into the brain and spine or cause edema and leakage of red blood ...
Read more : CCSVI- just the facts, ma'am | Views : 88451 | Replies : 114 | Forum : Chronic Cerebrospinal Venous Insufficiency (CCSVI)


In the Phase 3 Campath study!

So I needed to switch tx after 4 years on copaxone. Doc recommended I choose between tysabri and Campath, as he is involved in the study. It was a really hard decision, especially since I was dead set against taking an interferon. The research nurse said that if I was randomized onto the rebif I could drop out. So I went thru the entire process, then on randomization day - hooray!!!
I got my five ...
Read more : In the Phase 3 Campath study! | Views : 1768 | Replies : 0 | Forum : Campath (Lemtrada, Alemtuzumab)


going in for #3 tomorrow

So tomorrow is infusion #3 for me

Haven't really noticed many differences as of yet but here's hoping that good changes are around the corner

Have had several side effects after the other 2 infusions so I'm hoping this time goes a bit better. My boss doesn't seem to understand that i'm pre-emptively booking off the next 2 days as sick days.

Wish me luck!
Read more : going in for #3 tomorrow | Views : 1594 | Replies : 2 | Forum : Tysabri (Antegren or Natalizumab)


Keri??

How are you???
Read more : Keri?? | Views : 4625 | Replies : 4 | Forum : Revimmune (cyclophosphamide or cytoxan)


Pilot-trial results of INF+pioglitazone

A small study found a significant effectivenes of pioglitazone (an approved diabetes typ-II drug) in protecting grey matter and a positive trend towards lower lesion load:

PubMed


--Frank
Read more : Pilot-trial results of INF+pioglitazone | Views : 1943 | Replies : 1 | Forum : Drug Pipeline


 

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