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need non-ms advice!

ok this is weird, but in the last month i ran across trace of something that i am 99.999% sure is mine, that went missing about 17 years ago. i knew at the time that somebody in my circle of friends was lying to me about it, but not who.

now i think i know. it arose because it got sent from party A to party B, and they were communicating publicly about it.

I ...
Read more : need non-ms advice! | Views : 1858 | Replies : 4 | Forum : Daily Life

What works

It seems to me that most of the people here who really believe they are getting better are taking antibiotics. Am I correct on this? Robbie, you started abx, right? I am waiting and hoping that you'll soon say you are improving. How are you?
Read more : What works | Views : 7278 | Replies : 53 | Forum : General Discussion

Hello from Germany

Hello, here is Sally in Germany. I have had MS for 3 years now, I can still walk on 2 legs so I can't complain.
I am a Brit, I live in S. Germany near Lake Constance, I work as a Software Engineer. I have an understanding husband and 2 teenagers, also 3 clarinets and 2 saxophones.
I look forward to interesting topics here...
Read more : Hello from Germany | Views : 1546 | Replies : 4 | Forum : Introductions

Recommendations for MS specialist in Los Angeles?

First, thank you all for your very warm and supportive responses to my introductory post in September. I haven't been on this site in two months, as I've been working very long hours on a TV show and under a lot of pressure (stress and exhaustion -- not so good for fighting this monster, eh?). I am moved by how kind the people here are.

The Neuro I've seen twice at UCLA, Dr. Norman Namerow, ...
Read more : Recommendations for MS specialist in Los Angeles? | Views : 3585 | Replies : 10 | Forum : General Discussion

Discontinuing My Avonex Injections

Hi everyone - I've been lurking for awhile and finally decided to post. I just quit injecting Avonex two weeks ago after doing the injections for just about two years. I couldn't take the side effects any longer which after two years never really subsided. On my "good" nights I would experience all the typical flu-like symptoms but after every several "good" nights I would experience extreme side effects (uncontrollable shaking - convulsion like, headache, ...
Read more : Discontinuing My Avonex Injections | Views : 25850 | Replies : 32 | Forum : Avonex

Myelin Repair Foundation

The Myelin Repair Foundation has posted a research summary on their website. It summarizes their efforts from July 2004 - July 2007. If you haven't read it already, you can read it here: ... ults.shtml
Read more : Myelin Repair Foundation | Views : 1355 | Replies : 0 | Forum : General Discussion

'Saboteur' - MS TV Commercial

The following is a link about a TV advertisement (which I never saw) by the MS Society in Aus. Nothing of benefit, just interesting to see.
or you can go straight to the video (15MB) at
Read more : 'Saboteur' - MS TV Commercial | Views : 1615 | Replies : 2 | Forum : General Discussion

Kegel question for women

Ok, I know this topic is a little unpleasant but I am currently experiencing a lovely UTI and it reminded me to ask this question. In 2004 I had a very bad exacerbation which left me with very little bladder control or bladder capacity. At the time I didn't go on medication for it and eventually it got better but it has never been the same. I was wondering if anyone has ever used a ...
Read more : Kegel question for women | Views : 1929 | Replies : 6 | Forum : General Discussion

has anyone else!

ok my boyfriend's mom was telling me about some research that someone (dont know who) has found out that the epstein barr virus has been linked to people that have M.S! has anyone else heard anything about this????
Read more : has anyone else! | Views : 1725 | Replies : 5 | Forum : General Discussion

Another trial

Hadassah uses stem cells for MS, ALS patients

Judy Siegel-Itzkovich , THE JERUSALEM POST Nov. 22, 2007

Neurologists at Jerusalem's Hadassah-University Hospital, Ein Kerem, are the first in the world to help multiple sclerosis (MS) and amyotropic lateral sclerosis (ALS) patients by injecting their spinal columns with large numbers of adult stem cells taken from their bone marrow and multiplied in culture.

The clinical trial, while "encouraging" and "promising," remains highly experimental, as all the ...
Read more : Another trial | Views : 1798 | Replies : 0 | Forum : Stem Cells


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