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The Burning Question

I refer y'all to p.2 of our new protocol/consent form stuff.

p. 2 of 14


· You cannot be in this study if you did not receive at least one dose in the previous TERMS study...

Is this "one dose" Tovaxin? As you all may recall, I stirred up a hornet's nest when I reported back that my first injection was different "stuff" than what I received subsequently.

My wild ...
Read more : The Burning Question | Views : 1781 | Replies : 3 | Forum : Tcelna (Tovaxin)

NMSS Summer research bulletin


There's a bit on EPO and an article on channel blockers (sodium) ... px?id=1088
Read more : NMSS Summer research bulletin | Views : 1359 | Replies : 0 | Forum : General Discussion

New to LDN

Thought I would let you all know that I decided to go on LDN. I started last week at the 1.5 mg dosage. Thanks to the LDN website and the links to Crystal's website, I was able to find a prescribing doctor, who coincidentally spoke at the 2007 LDN conference - Dr. Terry Grossman. Dr. Grossman has me on the 1.5 mg dosage for 30 days, and then I will go to the 3.0 mg ...
Read more : New to LDN | Views : 2633 | Replies : 2 | Forum : Low Dose Naltrexone

Welcome Tidbits for the "Second Half"

Guess what? During my visit last Friday for Week 52/0, I got some news "hot off the press" for us.

We will no longer have to endure that "memory/math" torture with the Hal9000 voice. This is a real relief--I was a wreck before each and every one of those "tests." It was too much of a habit to make a running total of those numbers... I'm sure my b/p spiked 50 points during those few ...
Read more : Welcome Tidbits for the "Second Half" | Views : 1863 | Replies : 6 | Forum : Tcelna (Tovaxin)

If you already had your big blood draw

I go in at 1pm EST today for the big blood draw. How do you feel afterwards? I used to give blood regularly but only weigh 107lbs. I've never had an issue giving but LifeBlood told me they were going to take the pint plus 20 vials. That equivocates to 1.5 pints. I'm used to giving a "blood light" which is less than a pint since my weight is under 115lbs. The blood draw hasn't ...
Read more : If you already had your big blood draw | Views : 2723 | Replies : 10 | Forum : Tcelna (Tovaxin)

A new, much faster, way to produce mAB

Its no longer one new mAB line in a year or two, but 100 per year.

Read more : A new, much faster, way to produce mAB | Views : 1189 | Replies : 0 | Forum : General Discussion

DaVinci Code by Dan Brown

A fabulous mystery filled with a lot of factual historical data.???
Read more : DaVinci Code by Dan Brown | Views : 4362 | Replies : 6 | Forum : Reading Nook


first of all i should say sorry for not writting sooner
it's been an off and on nightmare since coming back

my major MS issue is pain, not rare but not too common either
my neck, hands, arms, shoulders and ribs are agony i haven't been able to walk because of pain, i've had very little to no relief in 3 years

so my first visit was to the ms clinic in kingston
saw the ...
Read more : canadians | Views : 2353 | Replies : 10 | Forum : Revimmune (cyclophosphamide or cytoxan)

Stony Brook (NY) results in an easy to read format.....

This has possibly been posted before but when I look for it I can only find outdated links etc, so forgive me if I am being redundant:

This is what JH sent to us:


High-Dose Cyclophosphamide for Moderate
to Severe Refractory Multiple Sclerosis

Douglas E. Gladstone, MD; Kenneth W. Zamkoff, MD; Lauren Krupp, MD; Robert Peyster, MD; Patrick Sibony, MD;
Christopher Christodoulou, PhD; Emily Locher, RN; Patricia K. Coyle, MD

Background: High-dose cyclophosphamide is ...

A Smart Guy on Our Side

There's quite a bit of background, but near the middle there's some detail on the research he's doing.

A rising star

Twenty-two-year-old Fulbright scholar Joseph (Joey) Oved came all the way from the US for an academic year at the Weizmann Institute of Science in Rehovot to research an animal model of multiple sclerosis (MS) - even though he has never met anyone in the throes of the autoimmune disease.
Read more : A Smart Guy on Our Side | Views : 1502 | Replies : 0 | Forum : Drug Pipeline


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