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Looking for Feedback on CCSVI Friendly Regime

Hi All,

I'm 27 and had my first attack in October '08, and modified my diet a month later. I've since had my second attack in May that I'm almost over. I'm set to start Copaxone next week. I've got roughly a dozen lesions in my brain and I believe 1-2 on my spine.

Originally I have been trying to follow the BBD diet, and I've eliminated wheat/gluten, dairy and legumes from my diet. I ...
Read more : Looking for Feedback on CCSVI Friendly Regime | Views : 2618 | Replies : 2 | Forum : Regimens

T and B cells

I don't think this was posted before..

Tracking Down The Causes Of Multiple Sclerosis

ScienceDaily (June 10, 2009) — Over 100,000 people suffer from multiple sclerosis in Germany alone. Despite intensive research, the factors that trigger the disease and influence its progress remain unclear. Scientists from the Max Planck Institute of Neurobiology in Martinsried and an international research team have succeeded in attaining three important new insights into the disease.

It would appear that B ...
Read more : T and B cells | Views : 1220 | Replies : 2 | Forum : General Discussion

Susceptibility to MS

The following link was posted on the LDN Yahoo site. You will note, it is from John Hopkins University - genetic links to multiple sclerosis. There is so much information here - you could spend days looking at all the research which is referenced. I would imagine some of the abstracts have already been posted on TIMS ---- I am interesed in the genetic link because I have a sibling with MS.

Read more : Susceptibility to MS | Views : 1336 | Replies : 1 | Forum : General Discussion

Did my first small run in 11 years

:oops: I know this is pathetic really but for the first time in 11 years I put on my runners and did 6 mins walk/1 min running x 3.

For me this felt like scaling Everest. It felt flippin' great! I wish every day was a good day.....I get about 4 a year......but it felt good to move.

Here's to more good days for all of us.....sending ...
Read more : Did my first small run in 11 years | Views : 2117 | Replies : 5 | Forum : Daily Life

MRV clinical trials recruiting NYNY, MD, France

Magnetic Resonance Imaging to Detect Brain Damage in Patients With Multiple Sclerosis
This study is currently recruiting participants.
Verified by National Institutes of Health Clinical Center (CC), February 2009
First Received: May 3, 2006 Last Updated: June 9, 2009 History of Changes
Sponsored by: National Institute of Neurological Disorders and Stroke (NINDS)

Information provided by: National Institutes of Health Clinical Center (CC) Identifier: NCT00321568

This study will evaluate the ability of magnetic resonance ...

Happy Fathers Day !!!

Going to the beach with my son. Everyone have a great fathers day. Peace to all Mark
Read more : Happy Fathers Day !!! | Views : 1708 | Replies : 2 | Forum : Daily Life

i start tomorrow

so.... i got the campath arm of this thing. which is good, because i hate rebiff with a passion. now i'm kinda scared. i start tomorrow. my husband is working nights this week, and my sister is going to watch my kids(she lives nextdoor). they said i'd probably be able to drive myself. but i have to ask people that have already done this: were you nauseous? do i need to take some sort of ...
Read more : i start tomorrow | Views : 2194 | Replies : 4 | Forum : Campath (Lemtrada, Alemtuzumab)

amazing research

ScienceDaily (June 19, 2009) — The ability to learn and to establish new memories is essential to our daily existence and identity; enabling us to navigate through the world. A new study by researchers at the Montreal Neurological Institute and Hospital (The Neuro), McGill University and University of California, Los Angeles has captured an image for the first time of a mechanism, specifically protein translation, which underlies long-term memory formation.

The finding provides the first ...
Read more : amazing research | Views : 1379 | Replies : 0 | Forum : General Discussion

9th PML... where's the info?

So i got a Google alert yesterday for this: ... 0820090619

I love how it talks most about the $ being made and not about the patient.

As a Tysabri patient, shouldn't we be kept apprised of these situations?
i've only got 3 infusions in me but PML is obviously still the elephant in the room when i'm getting it.

If I called the TOUCH program (Tysbari's patient ...
Read more : 9th PML... where's the info? | Views : 2322 | Replies : 4 | Forum : Tysabri (Antegren or Natalizumab)


Hi group members,
I am Bibek from India,had several diagnosis since 2003.First PPMS than Aquiductal stenosis in 2004 , Deymelinatory deises ? Progressive MS in 2003 and was only on deises modifying drug "IMURAN" it is only few months back i got steroids from the neuro who first dxd PPMS.
My symptols are:
1.Walking difficulty (Gait,sapsticity)
2.Balancs Problem ( Had vertigo twice ,long before MS diagnosos)
3.Bladder incontinence
4.Bowel Disfuction
6.Heat intolorance ( lot ...
Read more : Introdution | Views : 1175 | Replies : 2 | Forum : Introductions


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