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Double blind trials / placebo arm

Just something that has been bothering me from when i was on rebif.

The CRABS generally have noticeable side effects, and have all been tested in double blind, placebo controlled trials.

How do they ensure that the recipients dont KNOW they are getting the actual CRAB? for example, when I took rebif, i suffered from flu like reactions. Therefore, i think if i was in the placebo arm of a rebif trial, i would pretty ...
Read more : Double blind trials / placebo arm | Views : 1501 | Replies : 10 | Forum : General Discussion


Opexa

Hi everyone,
Not really sure what this means but Opexa is the company that is researching Tovaxin. I am hoping that this means more money for them which I hope will go towards research and marketing of the drug? Anyone with some stock market background that could clarify?
NN


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Read more : Opexa | Views : 1298 | Replies : 5 | Forum : General Discussion


Stem cell failure

I have attached an article that appeared on the MSRC website. It is of particular importance to me as it was after reading this article that I came to the decsion that should things get worse, I would undertake stem cell treatment:

'Miracle' MS cure dismissed
A young multiple-sclerosis patient who walked for the first time in five years following expensive stem-cell replacement therapy has warned fellow MSers not to waste their money on ...
Read more : Stem cell failure | Views : 2178 | Replies : 13 | Forum : General Discussion


Regenerating neurons

Damping down inflammation can be of benefit but atrophy is the cause of disability and the real breakthrough will be replacing the brain cells we have lost. Here is some positive news in this area.

Ian



Harvard scientists identify compounds that stimulate stem cell growth in the brain

Scientists at Harvard University have identified key compounds that stimulate stem cell growth in the brain, which may one day lead to restored function for people ...
Read more : Regenerating neurons | Views : 874 | Replies : 1 | Forum : General Discussion


Stem cell story

For the last 18 months the British press was full of stories about MS sufferers who had stem cell treatment in Holland and had seen miraculous recoveries. Now all the stories are about the same people who no longer see any benefit!

Ian

'Miracle' MS cure dismissed

A young multiple-sclerosis patient who walked for the first time in five years following expensive stem-cell replacement therapy has warned fellow MSers not to waste their money on ...
Read more : Stem cell story | Views : 1354 | Replies : 1 | Forum : Stem Cells


Seizures MS?

Is this common to have seizures? Does anyone have this happening to them... My husband has had 7 since March...begins with a very bad headache. He was diagnosed with MS 7 months ago. MS came out of no where... Seizures come out of no where... we are so frustrated hearing from the Doctors they dont know what is happening. I also posted this under the tysabri forum in error. We have been approved for this ...
Read more : Seizures MS? | Views : 1085 | Replies : 1 | Forum : General Discussion


MS & Seizures

Is this common to have seizures? My husband has had 7 since March...begins with a very bad headache. He was diagnosed with MS 7 months ago. MS came out of no where... Seizures come out of no where... bad headaches are the only warnings...
Read more : MS & Seizures | Views : 1514 | Replies : 1 | Forum : Tysabri (Antegren or Natalizumab)


ABX -- not really working for me

I’ve been on ABX regimen for sixteen months. And I’ve got to say, with a lot of regret, that its benefits for me appear to have been limited.

I had a single neurological episode (with no prior symptoms) in January 05 which left me pretty weak and screwed up. Within a few weeks I started taking ABX according to a regimen provided through correspondence with by Dr. C Stratton (minocycline, azithromycine, metronidazole).

In the first ...
Read more : ABX -- not really working for me | Views : 3494 | Replies : 22 | Forum : General Discussion


hi. I'm new

Hi. newly diagnosed today. Not sure how to feel. Part of me just wants to get on with treatment and get rid of the tiredness and pain. Another part is afraid of the future. I have twin 8 year old daughters, a wonderful husband with a brand new business and a demanding career at one of Fortune's top companies.

During the diagnosis (which all started with Lhermitte's Sign that I mentioned to my doctor in ...
Read more : hi. I'm new | Views : 1669 | Replies : 5 | Forum : Introductions


2nd infusion

I have been out of touch for a couple of weeks so I didn't know about all the insurance stuff going on over Tysabri. It was predictable I guess. At the risk of sounding ______________ (fill in the blank) I am having my second infusion on Wednesday of next week.

I did not fill dramatic difference with the first infusion. No bells, whistles, drums. Having said that, prior to the first infusion, I was starting ...
Read more : 2nd infusion | Views : 1998 | Replies : 3 | Forum : Tysabri (Antegren or Natalizumab)


 

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